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Tralala
Member
since
07-09-2017
30
Posts
5
Hugs
01-10-2018
02:09
Apart from free booklets available on the onocology ward and elusive BC nurses I got no help from them whatsoever. friends of mine stopped their subsciption after seeing their advertisement on TV which promised help but in fact they do not seem to offer any practical support at all.
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01-10-2018
02:05
They will give you anti sickness treatment before you start each chemo session and then to take at home during the time you are "recovering" from the session. If they do not work ask to see your onocologist immediately / I did and got prescribed some other anti sickness tabs.
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01-10-2018
01:58
I only saw A BC nurse before chemo treatment she explained what was going to happen and then no nurse at all until the surgery It was impossible to get through on the phone to BC nurses and I got help from family and friends only
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01-10-2018
01:52
Hi Becca I posted a year ago. I am about to go for my second onocology follow up and follow up mammogram . Also my final surgical review. Back at work but only parttime Thank you NHS
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01-10-2018
01:47
Most not all but most rad patients seem to have the worst side effects at the end of or after their treatment so many people find it possible to work during their rads depending on how long it takes to get to and fro to the place of treatment. The actual treatment takes may be only half an hour including undressing and dressing
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01-10-2018
01:40
I found very cold and sweet things eg frozen yogurt helped Also mouth wash
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01-10-2018
01:33
I went to the GP and asked for a Second opinion. I was sent for a PET scan which showed the cancer had spread to lymph glands but was slow growing so continuing with treatment was enough to contain the spread
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28-09-2018
02:01
2 Hugs
I had stage 3 Triple Neg BC. After 2 chemos I was taken into the onocologists office without any warning and told I had incurable cancer and they wanted to stop treatment. I was surprised as scans showed no distant organs effected. Anyway I went for a second opinion (pet scan) and they then continued with the rest of the chemo and then subsequent masectomy and radiotherapy. That was nearly 2 years ago and I am still alive and according to family and friends looking very well
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28-09-2018
01:55
It may take a while yet. Try not to panic. My underarm was still aching a bit after several months but all is ok now. The nerves get damaged with any surgery and then while they are healing they can start to hurt a little again or at least that it what I was told
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28-09-2018
01:48
I really do not know how they allowed you to get the wound so bad it it weeping. Is the wound following sentinel node removal? My wound was checked while the strips were being removed and I am sure they would have recommended something if the wound had looked suspicious The same was after my masectomy checked by nurse at my local GP surgery and by BC nurse. After radiontherapy I had an itchy bit and was warned not to scratch it as it could break the skin and cause a weeping wound. I was given patch things which I just used at night in case I scratched in my sleep as I wanted to let the air get at it during the day. It took nearly 2 weeks but I managed not to get the skin broken. Poor you
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27-09-2018
05:19
I was diagnosed in December 2016 In the January 2017 I had numerous scans eg Breast mri CT scan Bone scan It is ROUTINE well was in my case. The worst scan was 27th April 2017 it was a CT scan to tell them whether the chemo was working. I was shaking Stage 3 has to be watched carefully but if treated in time with chemo is can knock things on the head pretty quickly Love xxx
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27-09-2018
05:04
Mine seemed to go on for a good nine months but gradually receded and went away after about a year
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05-04-2018
01:34
My surgery(masectomy) was on 19th June last year and my rads started mid August so it seems quite common to wait. Also when I got to my rads ( i had 15 sessions) some were altered so for example they were busy on the Friday so I had to come on the Saturday instead. This happened a few times and also the times were changed but the whole thing actuially only took a couple of days longer than it should have done
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05-04-2018
01:28
I sometimes get a pain in the treated area. It is nowhere as bad as before but it is a nuisance.It seems to be on a rib. Anyone else got the same?
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05-04-2018
01:23
My last chemo was May last year and my toe nails have only just stopped giving me pain. I filed mine with a wooden emery board as well as too brittle to cut. I have just started wearing proper trainers again. I found them too tight last year so I was wearing soft closed shoes. Last summer and autum I could only wear wide open toe sandals that I bought from a company called Cottontraders. They were little more than boards with straps on them but they did the trick.Any closed footwear was agony otherwise. I wore socks with them when I was outside to keep the nailbed clean . Otherwise indoors I kept them uncovered to try to get air on them. When travelling on public transport I was always on guard that someone might accidentally stand on my foot.
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27-10-2017
03:57
I found Senakot worked well. It is also a natural product. Constipation is such a problem with chemo that the nurse asked me what I would be taking even before the start of my treatment. During the last 3 chemos I was in agony every time I went to use my bowel and I just dreaded it but it all passed within a couple of months of the chemo ceasing .
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27-10-2017
03:50
1 Hug
I had Stage 3 BC and still made it through. Concentrate on the small comforts to ease the side effects. If you look at it like a journey when you will learn things along the way it helps. Stage 2 is not wonderful but it beats Stage 3 anyday. I had Chemo at the start and the breast surgery later but you see each case in cancer is different Good luck
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16-10-2017
04:34
I found the chemo made my toenails very brittle so I just filed them with a non-metal file as cutting seemed so tricky. . I did not want to put anything on the nails as they were falling out.....
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11-10-2017
12:43
2 Hugs
1. Get a blouse that opens at the front. You will have so many breast examinations that constantly pulling tops over your hair can become a pain. 2. A soft cotton bra that opens at the front if you must wear one. 3. Nail files (not metal) Your nails (hand and toes) can become brittle after chmo and cutting may be tricky so just filling down is easier 4. A small soft towel to pat yourself dry in the affected area/s after showering etc and also to put between your arm and side.It stops the arm rubbing especially if you have had surgery/rads. 5. If no towel available try sitting with the arm of the affected area over the back of a chair 6. A few old loose teeshirts preferably mens ones (borrowed or charity shops) You do not want your clothes rubbing on the affected area and also you do not want your creams getting on your good tops 7. A set of clothes just for visiting hospitals etc as these places can be full of germs these days. I put my in a black bag when I come home neatly folded for the next time 8. A gentle moisturizer for all over but especially the affected area . If you are have rads check with the radiotherapist. The skin can be very dry for a long time so I will be applying moisture for a year after the treatment ends 9. A small water bottle for hydrating while on the move/waiting for appointments 10. A mobile phone organiser with alerts so you can set alarms for all your appointments and also you medicines as ther can be alot to remember
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10-10-2017
01:03
I had Fect x 3 followed by Dox x3 . I found no difference in hair loss on either ie in my case my hair just got very thin especially on the top. But I used a cold cap so I kept c 50% of my hair. Otherwise Dox was much worse. Horrible All toenails lost, unable to eat, feeling sick, pain everywhere (till I ate icecream) pins and needles in feet. Yuck.
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