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Lauren2011
Member
since
04-11-2017
14
Posts
9
Hugs
01-10-2020
05:31
1 Hug
Hi ever so sorry it’s been a long time! I haven’t be able to access my email account. How are you all? My mum and I are ok at the moment she’s just starting some chemo tablets because the cancer has started spreading to some more bones but we are staying positive:) xx
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12-12-2019
11:26
Hi how is everyone it’s been a while since I wrote anything on here. It’s been a long rollercoaster but fingers crossed things are going well this end at the minute! I hope to hear back from you all soon x
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23-04-2018
12:40
Bonariensis that's brilliant you haven't had to have any chemo as of yet I hope it stays that way for you too! I've read some horrible stories how awful chemo can really be, my mum was just very lucky in this case.. have you had any other side effects on this medication my mum has recently been hallucinating nothing has changed apart from this medication she has just started so we are beginning to think it could be that, will speak to onc when we meet again. Nicky08 your very very lucky to have no pain what my mum would do to have no pain! Hopefully one day she may be pain free who knows.. she's beginning to feel like this is life now. Also could I ask how often you have scans and see your onc? I see they often change things around to keep cancer under control I think it's amazing how they can keep it controlled for so long! Love hearing all your success stories and how well everybody is doing hope to hear from all of you and more speak soon xx
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23-04-2018
07:50
Thanks for your reply, happy to hear you was stable for so long on these tablets how are you now? Chemo went fine first couple was hard but after that she carried on as normal wouldn't know she was having chemo half the time! She's still on 100mg of tramadol now and oncologist asked if she can reduce it but sometimes even the 100mg don't take pains away so she's not very keen on reducing at the minute.. how's your pain vary from day to day? We notice that her pain spreads about a lot one day it's one side next it's the other we need to speak to oncologist about this is this normal? Last appointment mum had to go on her own as it clashed with collecting children from school and she tends to not ask much when she's alone. Also very looking forward to our holiday away feel abit guilty leaving mum but she's assured me she will be fine! Well things must be improving when she come to live with me around 6 months ago she couldn't do much for herself at all now she's fully mobile and we even manage a short trip around the shops!! Feeling very positive ☺️ Hope to hear back from you soon take care xx
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22-04-2018
06:52
Hi just checking in as it's been some time since I last did! How is everyone doing? Hope you all are enjoying the lovely weather 🙂 mums doing a lot better these days she's finished her chemo and now on medication ( aromasin ) anyone had these before? She has a scan on 4th may pet scan.. be her first one since she started her chemo do they normally only scan before and after chemo? I thought they would of done it half way through! We are very scared to go back for results but we are feeling positive too 🙂 now mums feeling better I'm actually getting away going Tenerife on Wednesday these past 6 months have been so hard for me so I need the time to relax and try forget everything that's going on! Anyway enough from me I hope to hear back from you all soon xx
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09-12-2017
03:25
2 Hugs
Hi so infections is the norm for cancer and chemo then, she hasn't had an op they said they couldn't operate as it's to far advanced! And when she had cancer last time and had her op it was the opposite side. She is still in hospital yesterday had another x ray and she multiple fractures on her ribs but again this is the wrong side no swelling etc she isn't getting much pain that side we are convinced they have looked at the x ray wrong and the fractures are actually on the side where all swelling is! Kate21.. Sorry to hear you was first diagnosed at stage 4 when was this? How have you been since your diagnosis I'm all new to this so trying to get my head around it all 😕 xx
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08-12-2017
09:49
2 Hugs
Thanks for your comments. Just an update really it's Day 11 since mums chemo and she's been in hospital last 2 days she become very unwell the other night violently sick just a general feeling of unwell we took her in anyway to be on safe side and she has an infection so been on antibiotics since via a drip and now blood transfusion today!! Anyone else had this? Also lately I have been noticing the side where breast cancer is her side ribs and that side of her back is so swollen.. is this due to chemo or cancer ? She also has a lump on her chest just under collar bone right in centre and you can see it without looking closely. She brushes it off though when mentioned I don't think she wants to admit how bad it really is! Is this normal ? I'm constantly worrying I feel as if it's actually making me ill myself watching her get worse day in day out I can't live my life as soon as I smile I think about her and how much pain she's in and scared etc.. she has her chemo every 3 weeks 250ml and injection into her arm for bones Every 4 weeks heard you say people are having this weekly now? Is this a good chemo my mum as been put on? I've heard so many different stories.. some good some bad but tbh most as been bad reviews to this drug! Hope everyone is feeling well today on this very cold morning 🙂 xx
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28-11-2017
08:10
1 Hug
What new treatment have you started? Good luck I hope it works out for you! And thankyou I will contact them to see where are closest one is. How are you feeling? My mum had her first treatment yesterday she had docetaxel and a bone strengthener not sure what it is called, anyone had this? Had good outcomes? She's feeling very flushly this morning not sure if it's normal.. I have a cold trying my best to stay away I don't want her catching it 😕 your all warriors going through this watching my mum daily the struggle is awful but also very brave!! Good luck and hoping everyone well x
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21-11-2017
08:50
Thankyou! So Thursday she has the line put in he Arm and Monday she has he First treatment along with her bone strengthener fingers crossed she starts feeling better soon as her pain meds have been upped as it's getting a lot stronger! How are you doing Moijan?
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13-11-2017
06:38
1 Hug
Hi hope your all doing well, Mum seen oncologist today and they are going to start her on chemo in 2 weeks as long as she's fit and healthy enough for it! Hopefully this is where things start looking up I hope thanks for all your support you've been great x
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08-11-2017
02:44
It went well today not as bad as she expected! Finally got our oncology app for Monday!! Finally after all this waiting. And I'm sorry to hear your diagnosis dragoncarine how are you feeling in yourself now ? Are you getting many symptoms? Did the breast cancer come back in the same breast or the other? We was so uneducated we believed 5 years after being given all clear we was at same risk of getting breast cancer as everyone else ! She still regularly checked her breasts though but it's not a lump even now she has no lump just all her ribs are swollen you can definitely see where the cancer as spread on them rib bones!
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08-11-2017
08:20
Thankyou all for reading and replying, she as been in hospital for last few days so I have been super busy with kids and up and down the hospital! Well she has her bone marrow biopsy today she's so scared she has heard it's very painful. Still no appointments to see oncologist pain relief is getting stronger now because pain is getting worse.. I hope your all well? How long has it been since you all got diagnosed with this awful disease? also I will remove my email thankyou all I'm new to this xx
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04-11-2017
11:20
1 Hug
In June 2017 my mum had been feeling very unless for some time but couldn't pin point what was wrong with her she was also getting some back ache so she went to her GP which he told her it's muscular pain she went away thinking it would get better. But it started getting worse so in august she went back again and they said we will do some bloods and a x ray just to see if anything comes up anyway bloods come back high calcium and x ray on chest area come back full of small lytic lesions everywhere they could see so they referred her to the breast clinic because my mum had breast cancer previously 10 years before they did biopsys scans etc which showed she had breast cancer but this time it's in the over breast the one she had in before is clear.. she has these cancer spots all over her ribs collar bone shoulders spine and hips but no major organs as of yet! Calcium levels are making her very sick and week she's lost so much weight as she can't eat and on very strong pain meds she's in and out of hosp trying to get calcium levels down too! She is feeling very down and she can't stop thinking she hasn't got long left we haven't even seen a oncologist yet it's been 3 weeks since they finally referred her but heard nothing as of yet! She as been referred to someone else too to check her bloods for cancer now they also want to do bone marrow biopsy is this rountie? Or is there something they aren't telling us? How long did it take you all to see oncologist? And once you did how long until you started treatment and what treatment did they put you on? How long has it been since your diagnosis and how well are you all doing we want to speak to people in same situation life is so cruel to do this to people! My mum is moving in with me as she can't take care of herself anymore she struggles with the most littlest things now picking the kettle up with water in it hurts her. Is there a good possibility she is going to be here for some time or do we need to prepare ourselves for the worst if anyone can relate and wants to talk direct please email me email removed thanks for reading xx
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04-11-2017
11:12
1 Hug
In June 2017 my mum had been feeling very unless for some time but couldn't pin point what was wrong with her she was also getting some back ache so she went to her GP which he told her it's muscular pain she went away thinking it would get better. But it started getting worse so in august she went back again and they said we will do some bloods and a x ray just to see if anything comes up anyway bloods come back high calcium and x ray on chest area come back full of small lytic lesions everywhere they could see so they referred her to the breast clinic because my mum had breast cancer previously 10 years before they did biopsys scans etc which showed she had breast cancer but this time it's in the over breast the one she had in before is clear.. she has these cancer spots all over her ribs collar bone shoulders spine and hips but no major organs as of yet! Calcium levels are making her very sick and week she's lost so much weight as she can't eat and on very strong pain meds she's in and out of hosp trying to get calcium levels down too! She is feeling very down and she can't stop thinking she hasn't got long left we haven't even seen a oncologist yet it's been 3 weeks since they finally referred her but heard nothing as of yet! She as been referred to someone else too to check her bloods for cancer now they also want to do bone marrow biopsy is this rountie? Or is there something they aren't telling us? How long did it take you all to see oncologist? And once you did how long until you started treatment and what treatment did they put you on? How long has it been since your diagnosis and how well are you all doing we want to speak to people in same situation life is so cruel to do this to people! My mum is moving in with me as she can't take care of herself anymore she struggles with the most littlest things now picking the kettle up with water in it hurts her. Is there a good possibility she is going to be here for some time or do we need to prepare ourselves for the worst if anyone can relate and wants to talk direct please email me email address removed thanks for reading xx
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