Breast Cancer Care Forum

Hi Louise,   Sounds like you you are doing all the right things already seeing your GP and surgeon but just wondering if it’s worth you phoning your breast care nurse so she can advise what should and shouldn’t be happening.  I had my surgery in December 2017 and it’s a tough op to recover from so try not to stress too much 15 days isn’t long. I had an uplift last week on the other side and wow I think I wiped the original mastectomy and recon op out of my head as to say I’m a little sore is an understatement.    Take care     ... View more

Happy Christmas Shi, fel and paloma hope you are having a lovely day xx ... View more

Happy Christmas Shi, fel and paloma hope you are having a lovely day xx ... View more

Brilliant news about Mai7 Shi and Ali you already know I think you are superwoman 😄 ... View more

It was very special Shi and we all appreciate the support you have offered throughout you are amazing xx  ... View more

Such a lovely day meeting some very special ladies, as Aliand said it was just like meeting old friends I don't think we stopped for breath having a good old gossip.   Fel can't wait to meet you and the other ladies that couldn't make it in the New Year xx ... View more

Hi Kati612   Not quite got the same symptoms but I started Tamoxifen in May and until this month the only real side effect was very frequent hot flushes however this month I've started with a prickly nerve like pain that starts in my finger tips then travels up my arms to my head and down my body - its really really weird, I asked the nurses on here and the tingly feeling can be a side effect of Tamoxifen. I also realised after asking I've got a different brand this month so not sure if thats something to do with it.    May be worth asking the nurses on here??     ... View more

Amy - great news about your heart and glad you enjoyed chessington.    Shi - Starfire is on our WhatsApp group and looking fab   im gutted I’ve just had my reconstruction clinic appointment cancelled - the hospital has 2 consultants off sick 😞 so cant be helped but they don’t have a clue when it’ll be rescheduled, though I completely understand I’ll be way down the list now as quite rightly they will be dealing with more urgent surgery first. I’d just got my head in the zone for the appointment if that makes sense.    Ive just asked to be referred for acupuncture for the hot flushes which seem to be getting worse so got to be worth a try.    First counselling session on Thursday as well - arrrgggh  ... View more

Fantastic news Michelle so so pleased to hear it worked so well.   Amy I know huge difference between my foot and my boob!!!  ... View more

Hahaha 😂😂😂 meant to say foob not foot ... View more

I’ve just done the school run without my hair on - still not comfortable with it though. Mishy I’m not even sure what the rules are in my trust expect I’ll get to know that next week as well. I did have an mx and there is a huge difference between my real boob and my foot. As you say though we are still here so won’t complain too much I just hate putting a swimsuit on and I have always loved swimming - I need support on my real boob so none of the post op swimsuits suit either. ... View more

I really want te reduction on the other side but my surgeon was reluctant to give me the recon because of my Pakinsons so I may have to live with being wonky - I'm not giving up easily though.  ... View more

Hi Shi - I’m good- hope you are well. I’ve been a bit quiet as been on my hols and only got back yesterday. Back to reality now and the hospital appointments start again for me this month as I have an appointment with my surgeon, hoping to discuss whether I can have a reduction on the other side.   i have gone over 2 weeks without wearing a wig now but as soon as I’m back in this country started wearing it again - I know daft, but it was ok so far away from home. My hair has gone really really curly and looks thicker.     ... View more

Happy birthday Jencat :)   Michelle - great news about you tumour shrinking.   Can't see my grey growing out either and no way can i wait 6 months to dye it.  ... View more

Fel - how you doing?? its gone soooo quiet on here    I now have a covering of hair though its a horrible grey mousy colou. Went out for the first tie to the dentist without my wig - hated it as I felt so exposed - think I'll be in wigs for quite some time yet,     ... View more

Thinking I shouldn’t have asked and just gone away without worrying about it 🙂 ... View more

Thanks Yorkshire Tyke - I’ve now had three different opinions on what should be done - 1. Stop a month before each flight over 6 hours (my breast care nurse) 2. Take anticoagulant jabs for flights (this was from an Onc) and 3. my GP rang this morning to say they don’t recommend any action unless there is a history of blood clots carry on as normal they will not prescribe the anticoagulant . I am just waiting on my actual oncologist to call me back with what could be different advice again - I really can’t believe this is so complicated 😐      ... View more

Thanks Shi xx     Another opinion on the flying front from my GP who has checked with Haemotology and now they are saying just continue with the Tamoxifen and nothing else is required for long haul flights unless there is a family history of blood clots, they are not able to offer an anticoagulant. So I’ve now had 3 different opinions, stop the tamoxifen for at least a month before the flight, take anticoagulant jabs and just carry on as normal 😲😲😲😲   ... View more

And how do we sign up xx ... View more

Shi sounds like a great idea - what date is it??   Fel glad your making the most of the weather sitting out in the garden, Wish my garden wasn't a building site this year - the first real summer in ages :)   ... View more