Hi pili pala and everyone...sounds like we’ve had a similar experience, WLE, rads and now I’m on infusions for 3 years....reading everyones comments is really helpful...nice to know you’re not the only one living in fear and dreading that every little niggle and pain is bad news....still learning to cope with that. I think sleep is a great healer and if you can sort that out then it gives you the strength to cope with everything else. I had lots of stomach problems too this time last year and wasn’t sleeping well either, after a massive weight loss had lots of tests done but nothing conclusive was found, but was taking all kinds of meds for stomach and trying out food-elimination etc..... in the middle of all these tests got the BC dx...it just floored me! Doctor suggested Mirtazapine to help sleep which I resisted....Did a lot of googling, read reviews and fixated on the negative ones (!) and didn’t take it for 4 weeks, worrying about the side effects. At yet another blood test appointment I was in pieces, crying, shaky, nauseous, exhausted....a lovely nurse said “ take half a tablet, take it on a Monday so if you have a bad reaction you can call us, no point starting on a weekend when we’re closed! If you don’t like it stop it....but prepare yourself and treat sleep like a job!” So prepped my son to get up early to sort the dog, had a bath, milky drink, lavender oil, half a tablet and woke up 10 hours later! Felt a little woozy during the day but only for a couple of weeks. Saw gastroenterologist to follow up tests but stomach had settled down by then. He said the stomach is like the body’s real brain, it reacts to everything especially anxiety..... I still do have problems, mostly around appointments, tests etc then it calms down again. I’m still on half a tablet at night and sleep is so much better. It’s a vicious cycle I’m afraid and the more you worry the more stress your stomach will react to.....I know it’s not for everyone and believe me I resisted but the Mirtazapine really helped the stomach problems and all the anxiety that went with it, just makes it a bit easier to cope with everything. I hope you’ve had some positive results back from all your tests and you start to feel better soon. xx
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