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Woodie67
Member
since
20-01-2018
17
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4
Hugs
17-05-2018
11:31
I was in & out as a Day case - no overnight stay at all! Right total mastectomy & full node clearance - was good to get in own bed that night and was given a number to ring if worried. The drains were very manageable & were both out in 5 days - the District Nurses visited daily from the day after to sort me out until they were ready to come out. Had a seroma which needed draining twice but again don’t worry that was painless. Pain relief was really good while on the ward and sent home with strong painkillers - important to keep up with them - better to prevent the pain than try & stop it once it starts. You’ll boss it don’t worry x
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16-05-2018
11:03
Hi Camilla9 - re the axillary clearance - my biggest piece of advice would be to do your exercises religiously post-op and keep up with the stretches after even if you don’t feel like it or it’s uncomfortable. I can still feel my muscles and tissue tightening up now if I miss for a few days through sheer laziness. I still have numbness and strange itching although it is numb, as if the nerves are doing their best to recover. I would say it has got a lot easier over the last 4-6 weeks. I won’t lie, think the axillary clearance was tougher than the mastectomy bit of my surgery in terms of recovery but I needed it and worth it to get rid of those pesky nodes! You’ll be fine I’m sure.
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16-05-2018
09:00
2 girls aged 23 & 26.. My Mum had ovarian Ca at age of 49 so I had prophylactic hysterectomy & ovaries out at 43 - she was subsequently tested for BRCA and found negative and a letter from 2006 said “this is reassuring for your daughter “ so I didn’t bother with the breasts other than mammos yearly - oh how I regret that now! My surgeon said I need the counselling & things have moved on since then in terms of predicting likelihood so hoping it will help inform my decision re other breast and also for my girls in the future. Back to T side effects - any advice for constant belching/wind?! Can’t seem to shake that off either?
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16-05-2018
08:12
Sorry no reconstruction- was told that would have to be delayed due to needing radiotherapy. I go for genetic counselling on Monday in Manchester - one of my questions will be do I need the left breast removing? I don’t trust mammograms - had a clear one in september 2017 & by end of December 2017 has invasive tumour which had spread to lymph nodes..
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16-05-2018
08:08
My surgeon offered me surgery first as my Breast tumour was so small (turned out to be just 7 mm and neither she or I could feel it) but shot straight to my armpit nodes which was the lump I felt - she was planning chemo first but when node biopsy came back positive said research showed no difference in outcome - felt good to me to “chop it out” - had surgery on 1st Feb & started chemo on 21st Feb. Been off work since my diagnosis - I work at the hospital, know the surgeon and she said my job was too stressful to works and she wanted me as stress free and healthy as possible to go the the treatment. Go to half pay in July and know my boss is desperate to get me back to work - thinking or taking leave in October and phased return in November. Having said that after doing unhealthy late night Dr Googling scaring myself about my prognosis I told him today I need to consider all my options!
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16-05-2018
07:33
Thanks for the replies made me feel better - it is when I’m walking upstairs & any hills that I really notice it - will mention again to my Onc next Tuesday before next dose but did last time & she just dismissed it really. Yes had my surgery on 1st Feb - mastectomy & axillary clearance - will do 3 weeks of rads in July to armpit, clavicle, chest wall & mammary node area then pray for the best and back to work at some point!
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16-05-2018
01:03
1 Hug
Hi - I’m a very latecomer to this thread. Diagnosed with TNBC right breast 7 mm but shot to my axillary nodes with 6/26 affected. I’m over half way through FEC-T having had my first Docetaxol 2 weeks ago, next one next Wednesday. Managed fairly well with FEC but the first T had very different SE and only just started coming round on Saturday. I’m still suffering from what I describe chest tightness/discomfort and increased breathlessness on the slightest effort and just wondering if anyone else has had the same? You start worrying and fearing the worst in the middle of the night..
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16-05-2018
12:18
1 Hug
Come on to the site for first time since I posted my very scared plea for help pre-surgery on this post on 29th January & so pleased to see all the positive messages of support - has really cheered me up after making the mistake of doing Dr Google on triple negative in the early hours last night and scaring myself again stupid convincing myself I’ll be dead in 2 years.. I had my mastectomy - small 7 mm tumour, Grade 2 but hit 6 of 26 axillary lymph nodes. I’m 2/3 way through FEC-T chemo & so far doable although must say my first Docetaxol was tough with longer lasting SE for me than FEC, penultimate one next week so building strength up for that & 3 weeks of rads planned for after my daughter’s wedding in July. My main dilemma in my mind is work & what to do - my surgeon insisted I go off sick in January as she knows the stress levels of my job in the NHS & wanted me to be as healthy & stress free as possible. Now as time goes on am questioning when I should go back and even IF I should go back to the same role or look to try & survive off a reduced early retirement pension given the high risk of recurrence within 3 years. Any advice as to how soon after all treatment ends is reasonable to go back to work - as I feel now I think mentally is going to be the challenge rather than physical?
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29-01-2018
07:22
Hi - am 50 and diagnosed triple negative on 22/1 & am going in for right mastectomy & axillary clearance in 2 days. I’m so scared - I only found out due to noticing swelling in armpit on Xmas eve - they found a 7 mm tumour in my right breast which wasn’t there on my mammogram in September, the surgeon still can’t feel it & nor can I! Two lymph nodes involved under my arm &MRI picked up one internal mammary node that looks positive. Having 18 wks chemo then radiotherapy too after the mastectomy. My arm has started aching now like the nodes are pressing on a nerve & Im panicking the surgeon won’t be able to clear them and it will spread like wildfire through me. Had a Preop Assessment today & I just broke down on the nurse. I’m really struggling to stay positive today.. any words of encouragement gratefully received..
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27-01-2018
10:42
Thanks both will get through my mastectomy on 1st Feb then when I see my Oncologist for first time let him/her know & hopefully they’ll plan round it. Wishing you both well xx
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27-01-2018
12:38
Can I ask how you are feeling? I think I will be at your stage the week of my daughter’s wedding on 18th July - not how I had anticipated it being mother of the bride at 50.. Are the chemo team able to work round important dates at all in your experience to let you live a bit of your life or is it rigid? X
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27-01-2018
08:02
Thanks Ali - got my plan now. They’re going for mastectomy & axillary clearance followed by 18 weeks chemo & then radiotherapy. It’s triple negative & MRI showed one positive internal mammary node too as well as 2 axillary nodes. Let the scary journey begin..
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23-01-2018
04:49
Hi Got my staging results yesterday - triple negative 7 mm tumour, 2 nodes in armpit and one internal mammary node seen on breast MRI all else clear. Had a normal mammogram in September. Having mastectomy and ANC on 1st Feb followed by 18 weeks chemo and 3 weeks radiotherapy. Feeling very down about it all today and the triple negative really scaring me - can anyone tell me how long the wait between surgery & chemo is? Still just feels like this evil tumour is running riot in my body & want to blast it with everything I can throw at it - I know another week isn’t a long time to wait but every day is dragging at the moment..
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21-01-2018
11:44
2 Hugs
Thank you Ali, so glad I posted in the early hours of yesterday when was feeling so lost & scared - can’t tell you how much better I feel for hearing from you both. How do they know the tumour has shrunk I can’t even feel the 7.5 mm tumour in my breast just the 2 lymph nodes in my armpit - do they repeat scans? Xx
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20-01-2018
09:05
Thank you Jo - will take your advice, gather myself up & try and make the most of the day - another step nearer to Monday & finding out what’s what x
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20-01-2018
07:13
Thanks Jo really helpful just to hear back from someone who’s been there - eyes leaking again now - they’re doing that a lot these last few days! X
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20-01-2018
05:41
Brand new to this. Noticed a swelling under my arm on Xmas Eve. Had core biopsy of 2 enlarged lymph nodes and 7mm nodule in right breast found on ultrasound and received diagnosis on 10/1. Surgeon said looks high grade. Had contrast CT & MRI last week and going for the results on Monday. Nurse called and said oestrogen receptor negative, awaiting HER results. Had a clear annual mammogram in September 2017 - this has come on so quick. Strong family history of breast and ovarian but my Mum actually tested negative for BRCA in 2006 hence didn’t pursue prophylactic mastectomy option - there’s something going on though with the genes somewhere.. The waiting is awful - every ache and twinge anywhere translates to a secondary in my brain and it feels like it’s just merrily growing away and spreading day by day. Just want to crack on with fighting it - think they are thinking chemo first which terrifies me leaving the tumour there as how do they know it will work? Any advice on how to deal with the waiting appreciated..
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