67419members
354online
355070posts
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for
- Home
- :
- About Bibi
Bibi
Member
since
22-01-2018
167
Posts
19
Hugs
19-06-2020
04:14
1 Hug
Thanks for your reply- I am waiting for an appointment at the breast clinic to find out more. I was just interested in whether this was a common/ rare occurrence . Thanks again x
... View more
17-06-2020
10:35
Morning - I’m just curious to know if others have suffered from mastitis after treatment? I had a WLE and ANC , chemo and radiation in 2018 and this year have had 2 episodes of mastitis in the same breast. It’s hard not to think it’s connected somehow - even if it’s just left my breast tissue more susceptible to infection - but at 62 I thought I was well past getting mastitis. Just interested to hear if this has happened to others - it never lets you go cancer does it?
... View more
26-04-2020
03:46
1 Hug
So good to hear you are positive Jac - and glad you has your op and got sorted. I will raise a glass to our wonderful NHS too and to wish you a speedy recovery . Take care xx Bibi
... View more
26-04-2020
03:43
1 Hug
Laura hi again - look under the ‘going through breast cancer treatment ‘ section and there is a group for younger women - hopefully you can connect with someone through there All the best Bibi
... View more
26-04-2020
03:39
2 Hugs
Hi Laura sorry you are going through this at such a young age - I’m sure it would help to talk to people who have been through similar at the same age - I’m a lot older so have a similar experience physically but would probably affect you and me psychologically and emotionally in different ways. Keep up with the exercises is my advice - it will help tremendously and once the drain is out it will be much more comfortable. if you look on the menu I believe there is a ‘Someone like me’ section that you can post on to look for people who have been through similar- or just start a new thread appealing for people your age to talk to. Take care and I wish you a swift recovery xxx
... View more
10-04-2020
04:39
Hi - glad you had your op I had the drain in for about 5 days -2 weeks does seem a long time to still have it in . Hopefully it will settle and you can start getting back to moving normally - it’s quite a weird and uncomfortable thing to have isn’t it ? Take care Bibi
... View more
25-03-2020
08:58
So so sorry that you have to wait - so awful. if you look on the Hormone Therapy thread you will see threads and info re Tamoxifen. I am on Letrozole as I am post menopausal- Tamoxifen usually given to pre menopausal women . They are drugs to reduce oestrogen which reduce oestrogen +ve cancers growing. So I guess they are trying to stop your cancer growing any more using the Tamoxifen. So awful to have this happen - I hope they are able to get you in as soon as possible - did they give any time scale? Take good care of yourself - I want to say try not to worry too much but I know I would be so just be kind to yourself and stay safe from the virus xxx Sending hugs xx
... View more
24-03-2020
04:56
1 Hug
oh really - that’s a shame for them to cancel your Herceptin. Yes I’m also on the 12 weeks and it is to do with when I finished Herceptin. Enjoy the sun xxx
... View more
24-03-2020
08:35
Thanks Jill- I mean I am following strict social distancing anyway but would miss my daily walk so hoping for some clarification later today from my onc. Thank you Bibi x
... View more
23-03-2020
11:01
1 Hug
I finished Herceptin last June and am now just on Letrozole and I received the text and am also shocked - didn’t think Letrozole compromised immunity. Be interested to know if anyone else got text if on Letrozole Bibi
... View more
23-03-2020
09:02
Hi Bungula Sending you hugs - a tough time to be coping with BC and Covid 19. I had the same op August 2018 - was just in overnight and that was because it was an afternoon op. They try to get you out of hospitals quickly these days. Recovery from op was not too long - just having the chest drain was the only thing to cope with really - the op scars settled down and healed quickly. Take care of yourself and I hope it all goes smoothly for you - good luck x Bibi
... View more
19-03-2020
03:50
Hi - I have also just been offered this treatment - wondering if anyone has started it and can give any feedback? Thanks Bibi
... View more
02-06-2019
07:08
Evening - I know I can probably find this info from hospital but feeling rubbish and just wondering if anyone can help. I’m due to have last Herceptin injection at start of next week 🎉 🎉 but for the first time since starting treatment (Feb 2018) I have come down with a terrible sore throat and hacking cough. I mean fingers crossed it will clear up over the week but if it doesn’t will I still be able to have my injection? I’ve tried googling but can’t find anything. Thanks
... View more
09-04-2019
11:13
Hi Cyclingsoo - sounds like you do amazingly well with your exercise - good luck with your training for your long bike ride. I am trying to find my level still - I can walk for longer now but I find if I walk a long way one day I need to rest for a few days. I’ll get there ⛰ ⛰ I hope - just frustratingly slow at the moment. I carry a light rucksack and get hubby to carry more lol. Hoping once I finish Herceptin (3 to go) it will help with my energy levels as well - it makes me v tired for a few days after I’ve had it so maybe it has a longer effect as well. It’s all a learning curve .
... View more
11-03-2019
04:50
MHaz how is your rib pain - I had radiotherapy last October but have started with the same kind of pain this last week - interested to hear anything to help. Thanks Bibi
... View more
06-03-2019
09:32
Hi All, - I have had Dr Reddy’s, Accord and Crescent and haven’t noticed any difference in side effects between them . I asked doc if I could have more than 1 months supply at a time - just a pain having to get them every month, he gave me a repeat for 2 months at a time - better than 1. Have had the first lot - will see how it goes.
... View more
28-02-2019
08:46
Just caught up with all your comments about how you are doing - my first chemo was 1st Feb 2018 - it feels like it’s been a long year! Still having Herceptin injections- weirdly they fall on exactly the same dates as my chemo sessions last year - due to finish in June and feel like that will be a final letting go- well apart from the Letrozole but hey ho. I’m lucky I’m retired so don’t have to face the work issues - your boss sounds horrible Chrissy - hope you manage to sort out your days. Flora hope you recover from your further surgery issues quickly. Also have curly locks - I used the cold cap so didn’t lose all my hair - wasn’t expecting the chemo curl but I’ve got it - hair now really thick again but definitely wavy. Trying to get fit and doing lots of exercise - have aches and pains from the drugs but loving life and glad I’m here. Hugs to you all and glad I had your support last year xxxx
... View more
26-02-2019
10:09
Hi Jay yes I had chemo (FEC then Docetaxol, Herceptin and Pertuzamub) I’m still having Herceptin injections - got 4 more to go. You are right it’s probably a combination of all of it - It’s hard to pin down which drug causes which side effect. Just trying to reach a new normal that allows me to do my favourite activities.
... View more
26-02-2019
02:29
1 Hug
Hi everyone- I was wondering if anyone who has been on Letrozole a few years may be able to answer my question- I’ve been on it about 6 months now. Letrozole is known for causing bone and joint ache- I have a bit of stiffness in my feet mostly in the mornings and then in my hips if I sit still for too long. Keep busy and doing loads of things to help and recover stamina- going to gym, swimming , cycling, walking , classes - it’s going well I am feeling stronger and can do more in classes each week. So my problem is actually if I walk too much - I don’t get too tired but after 6 miles my hips hurt so much it’s hard to keep going- trying not to walk further than that but my friends can’t plan a route and I’ve done a couple of longer ones and really struggled. OK here’s the question - do you think I’ve reached a limit and that’s going to be it for me - 6 miles? Do you think keeping exercise will help to let me go further? Such a pain - want to be able to walk mountains but can’t see it this year - which I don’t mind as long as there is hope for next year maybe. Honestly these drugs keeping you alive 😂
... View more
01-12-2018
09:44
I’m just trying to get to grips with travel insurance after completing my treatment ( apart from the Herceptin injections) A couple of companies I’ve tried won’t give me any 🤷🏻 ♀️ ( Insure with and couldn’t get any quotes off Compare the Market) at the moment we have an annual policy with our bank who will continue it with an exemption for BC. I suppose I am unsure whether this is enough - my worry is if I was on holiday and I had anything heart related or bone related they would say it was related to BC through the drugs ( Herceptin and Letrozole, and I have discovered after dexa scan I am borderline osteopenia) and I wouldn’t be covered. Also if we had to cut holiday short because of anything BC related would they cover my OH or not? We are off to Bruges for a few days and I’m hoping my travel insurance with bank and EHIC card will be enough - any thoughts? Any recommendations for a good company if I decide to go outside EU later in year? Thanks
... View more
