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Bubbler
Member
since
26-01-2018
20
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7
Hugs
14-02-2019
10:12
Back again. I've just noticed my last input was June last year. I'm happy to say all us good in my world. However, I'm getting ready for a trip to spain with my mum and 3 sisters (yippee). Then the hard bit happened. I'm trying to organise my holiday insurance, a big step. Struggled a bit with filling in the online forms, but chuffed with myself as I was almost finished. Screen pops up OOPS our sight has gone down, come back later. Major wobble. I thought I had got through this. But I've spent the last 12 hours, if not actually in tears, on the verge. A big kick in the teeth (which I have no doubt I'll recover from), but wow. I wasn't expecting that. ..Does anyone have advise on getting the best insurance deal without going through a million Web sites? A little reminder of what I (we all) have been through, not pleasant, but onwards and upwards.
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05-07-2018
09:14
1 Hug
Wow, looks like this topic has opened up a can of worms. I have osteopenia and onc advised vitamin c and d supplement. Doc put me straight on Adcal immediately . She recommended one which I only have take once per day. Why should you have to fight for this drug, after being advised by Onc, that it is necessary? The pains I get are very debilitating. I am a relatively fit 62 year old. Until my cancer last year, I was cycling 20k, walking 5k/day plus Hill walking weekly. I now do spin classes twice/week, still walk and cycle when I can. But to see me get out of a chair, you would think I was 90. After being advised to do weight bearing exercise, I thought I was doing the right thing?? I don't think this sciatica, and I'm not overly concerned about cancer spreading. But extremely frustrated with the constant pain. I avoid painkillers whenever possible. Cant stand the constipation and other side effects. Doc suggest the sore joints and tiredness which I also experience may be due to Letrozole. Sometime I think I'm caught in a spiral....but refuse to give in or go down. I think it's about managing expectations and remaining positive. Might try the acupuncture though. Has anyone tried reiki and , or, massage. Could this be an answer? BUBBLER xxx
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04-07-2018
01:24
Hi ladies. Just caught up on this thread. I too have bother with pain in my leg. Mostly at night time, when a sharp pain, quite often wakes me. The pain starts on the outside of my thigh, but the sharp pain shoots right down my leg (ouch). I also have terrible pain when getting up from sitting down and it can take a few minutes before I manage to walk properly. I thought this was all related to Letrozole? I am keeping active, but find it difficult at times to work through the sore joints and tiredness. Can anyone give me a bit of hope, that this will all improve with time? Or do I just bite the bullet and get on with it?
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13-06-2018
09:51
Hi ladies. Just noticed it's been 2 months since I've been on here. Which means Im not overly fretting about every ache and pain anymore (although its never far from my mind) .Reading back from my original post, can I just say, that 'time really does heal' There's not a day goes by now, when I don't think about my experience with Cancer. But also, not a day goes by when I don't think how lucky I am.Loads to celebrate and look forward to.. Recent news about Onkytype test raised my spirits, as I was in the grey area. I'm now more reassured that I chose not to have chemo. . Things that previously worried or upset, just go over my shoulder. I'm much more calm and relaxed about things. Although I still have my moments. I cried some quiet tears today, listening to my granddaughter, playing in a school music recital. Bubbler by name, Bubbler by nature. The joy of hearing her, and the thought of what might have been, we're a bit too much. But I I managed to regain control, and enjoyed my day. I'm looking for the positives in everything and everyday, and think this is what is helping me cope. Onwards and upwards. Good luck to all of you lovely ladies . Where there's life, there's hope. Grab it with both hands, and don't look back. Xxx
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08-05-2018
07:56
Thank Dell welly. You are so right. I hear you and am being vigilant, getting on with life and trying not to think of the negatives. At the moment it's all positives (apart from the fatigue and sore joints) but hey ho. I'm moving on and starting to enjoy life again. Thanks to you ladies and a onderful OH and supportive family.. que sera sera and all that stuff.
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08-05-2018
07:49
1 Hug
Cheers. Me too. It's so good to have a place to spill the beans and let go. I've come to the conclusion that my life will never be completely worry free, after this experience, but I'm learning to live with it and manage each day as it comes. I've actually had days where I haven't thought about bc . And these are becoming the normal. Yippee. Only 9 months from diagnosis and 5 since the end of treatment. Every little pain and niggle, triggers alarm bells. But it getting easier to work out what's going on . I. e. Do I go into meltdown or do I take a calm considering approach to the issue. And all of the lovely ladies here are a fantastic port in this storm. Their reassurance, kindness and support have been invaluable. Keep up the great work ladies and thanks again.
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08-05-2018
03:34
Hi JCJ.Just noticed your post review damaged boobs. A couple of weeks ago I was in the same boat (and rapidly sinking, as I thought ...here we go again). Anyway to cut a long story short ish. I started to wake at night with a pain in the boob. It was a bit sharp and I was convinced another lump had appeared. After speaking with my nurse, an appointment was arranged with doctor. She assured me it was "normal", but to put my mind at rest an ultrasound was arranged. All clear. Yippee. Meantime as I realised the pain was worse at night, I decided to wear a bra to bed. Excellent. No more pain. I've since bought a sleep bra. A bit of a passion killer, but hey ho, life isn't quite the same in that departmention anyway. Worry over for the time being, but After 6 months, I'm realising, that it's never too far away. Grabbing each day as it comes and living life to the full. Oops, did I say I would keep this shortish? All the best.
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15-04-2018
01:28
Thanks Kate. I love all the positive feedback I get from everyone. I've visited The Haven for counselling and reflexology and cannot praise them enough. Thanks for your input too, although living near Glasgow, it may be a bit to far to travel. Honestly with everything I hear from the forum, I'm already feeling better.it's just the space for me to let off a bit of frustration, fear, etc. . I took up Helenas advice this morning. Shook myself up, took a bus then a 3k walk to my allotment, where I spent 1 hour, actually enjoying myself and smiling. The fresh air works wonders, I think I'm resigned to accepting that some days are better than others, and already, the better days outnumber the not so good days. And going on advice from all , I'm back to feeling positive again. Thanks everyone for listening and encouraging me on. Love to all
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15-04-2018
08:51
Thanks Helena. You're right. I had a few counselling sessions and although I felt it helped I'm not sure that any more would. I'm actually finding this site much more helpful and informative. Couldn't sleep last night and ploughed through various threads. And so many people are just confirming how I feel and their stories of hope and inspiration are so uplifting. I feel so lucky, because my story is so much less traumatic than some of the other ladies and I realise that I am still in the early days (6 months post surgery .). I have so many positives in my life and I'll try to focus on them. I've been walking daily and exercises 2/3 times per week. And now tha the weather is improving, I will get into my garden and allotment . On the whole I know I'm doing well, but as everyone says, there are times when the gremlins get inside your head and mush it it up. Thank you all for your advice and positivity. Onwards and upwards. Xx
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15-04-2018
01:54
Thank you all so much for reassuring me, that I'm not going mad. I submitted a post earlier, then found this thread. On the whole I feel I am doing well, but every now and then, like a bolt from the blue, I turn into a bit of a jelly. Latest incident was after a visit to my BC CLINIC, with a concern over a pain under my arm. The doctor reassured me that this was normal and nothing to worry about, but for further reassurance is sending me for a scan. I got home a had a major breakdown. Worry and relief, .! Mentally exhausting. !I can see from the other posts, that all of this is 'normal", but that doesn't make things easier. I'll try to put on my sensible head and get on with life, knowing that my mad head may resurface at unexpected moments. The worse times are before/after hospital visits. My OH has decided/agreed that it may be easier on me if he comes alongside with me. He's such a star.Soldiering on and always trying to look on the bright side. Thanks ladies, you are all stars.
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14-04-2018
05:00
Thanks Helena. I just knew one of the "lovely ladies " would respond and give me the encouragement I need at this time. I genuinely believe that the cancer has gone, I'm on the road to recovery but can't control when my mind works overtime and I start, replaying the last 6 months in my mind and jumping forward to what ifs and maybes. I think the hardest part of all of this is the emotional part. I've coped with the physical side , but still struggling with the emotions. I'm not sure how to control this. Thanks again for your kind words and thoughts. Bubbler
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14-04-2018
11:51
Hi ladies. Thank goodness for this forum. I have a wonderful, understanding and supportive husband and family, but there are times when only you ladies can help and understand properly. All is well with me, recoverring from a lumpectomy and removal of 2 lymph nodes ( nothing in comparison to some of the stories I've been reading), but the worry and anxiety is there, lurching under the surface. Recently, I experienced some pain in the vicinity of my scar (axila). After a few weeks of convincing myself it was nothing, then worrying, maybe it was something, I called my BCN. She arange an appointment to see the doctor, who was wonderful. Agreed it was nothing, but to reassure me she has arranged for an ultrasound scan. All good so far, but when I left the hospital, I went into a total melt down. I live 10 mins from the hospital, but by the time I got home, I was inconsolable. Everything just came flooding back (6 months post op ). I don't know where it came from. I am moving on with life, and as close to being "back to normal", as I think I'll ever be. The emotions just flooded over me. I'm writing this the morning afterwards, and although I'm still a bit wobbly, I realise that this could be the way of things for some time, I just hope to be better prepared for these feelings, and will take my husband with me to all future appointments, for support. It feels like a long road ahead, but, hopefully there are more good days than bad. Hang in there ladies. Your stronger than you think. Love to all
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02-04-2018
04:31
Hi, I'm not complaining, because really after reading all the post from you other lovely ladies, I feel SO LUCKY. I'm interested in the pain thing, related to Letrozone. Prior to my cancer diagnosis I had some pain in my hands. I now have it in my right hip and move like a 90 year old. I'm relatively fit (walking daily, 2 spin classes and 2 body balance classes -all at a low level I hasten to add). My hands are becoming increasingly sore too. Can anyone advise if stopping Letrozole has had any noticeable improvement in the pain.
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16-02-2018
02:10
Hi ladies. I finished my radiotherapy on 11th Dec. I thought I would never get 'back to normal'. I joined a gym and started doing body balance classes (2 or 3/week). Never done this before, but it's wonderfull. And made such a difference to me and my attitude. Was a bit reluctant to go out for a while, but by booking into classes, I find it easier. I've also started a spin fit class ( for mature movers). It's only 30 mins, for over 50s (I'm 62) and I love it. I take the day as it comes and I still feel very tired at time, but console myself with 'well at least you are doing something". I can be tired doing nothing, so I'm pleased if I have done something in the day. My husband and I have started taking dance lessons for the first time ever. There is nothing good about cancer, but it has made me realise that life is for the living and to make the best of what I have. I have my down times, but These are outweighed by the positives in my life. Live, love, laugh and grab life with both hands. Xxx
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27-01-2018
03:45
1 Hug
Absolutely fantastic link. I think someone just got right inside of my head and read read my thoughts, fears and aspirations. This has helped so much. I feel like I'm doing all of the right things, and progressing (2 steps forward 1 step back at times). I completely get others thinking you've done with cancer, but I don't feel that. I'm sure it's changed me, and hopefully for the better. Onwards and upwards.
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27-01-2018
03:07
Hi, I can empathise with you on this one. I finished radiotherapy on 11th December. Only found my lump on 7th September, so it has all been a bit of a roller coaster ( as we all know). I've gone from ( to paraphrase) Strong and Stable ( pre cancer) to Weak and Wobbly. I don't think think I've shed so many tears (hence bubbler nickname), but I've also come to realise just what/who are important in life.) . Every day when I wake up I think, you did it, you beat the b*****d, now do something today, and don't sit around worrying. I'm finding a new normal. Coffee with the girls, walks and trips to the cinema with my OH. More time for the grandchildren . Planning wee trips and days out. Mindfulness is good too. I understand how you feel about people saying how brave you are, and how well you're doing. And yes, I take myself away to a quiet place (hillside, beach) and scream or cry. Then I tell myself how lucky I am and start again. Hopefully we'll both find ourselves who ever that is, now. I don't expect to be the same person I was before all of this, as there have been so many new experiences I have lived through. Wishing you all the best. Xx
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27-01-2018
02:45
1 Hug
Hi ladies. Just joined and already finding out stuff which is reassuring for me. I feel incredibly lucky as everything has gone to plan. Lump found sept 17. Op September 17. Radiotherapy finished Dec 17 and now restarting my life. However, Just recently I have had pains just under my arm (where 2 non cancerous lymph nodes were removed). My BC NURSE assures me all is well, but I feel more assured reading "real stories". My other "worry", is the fatigue. When does this stop? Mostly I feel good, and have even started a gentle spin class and body balance class. But there are times I just suddenly, have to stop everything. I can easily sleep for 10 hours a night, as well as the occasional nap during the day. Is this normal? Also Bravissimo is excellent for bra fitting and choice. Just bought 2 new bras yesterday, and feel much better and more comfortable already.
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26-01-2018
10:33
3 Hugs
Hi ladies. I've just found this site and can only say how delighted I am to have done so. You are all so inspirational. I have just finished my treatment ( lumpectomy, radiotherapy and letrozole), what a combination. But I feel a bit lost at times . I'm on my way to a " reassurance" visit to my BC Nurse. But will definatly be back on site soon. Keep up the great work ladies. This is all so reassuring too. Main upside is the love and care from my OH. Whowever knew love could be so strong. Mainly feeling positive, but there are moments when I wonder what Hit me 4 months ago. NHS staff are fantastic supportive, caring. Couldnt ask for more from them.
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