Hi, I was on Tamoxifen for 14 months. Things were okay at first, but the past six months have been severe joint pain and leg cramps at night. I feel like 150 years old. It hurts to get in and out of my car. It hurts to turn over in bed. It hurts to get out of bed. it hurts to get up from the toliet. As an avid yoga student for 15 years, I feel like this drug has robbed me of my passion for yoga and feeling like a normal human being. I have extreme hot flashes and also vaginal discharge and no sex drive. No fun. I stopped Tamoxifen on January 2, 2018 cold turkey. I have not informed my primary care doctor nor my oncologist. Why? Well, they both do not agree with me stopping this drug. I was stage 1 estrogen postiive and had double mastectomy, tram flap surgery, no chemo and no radiation. I was healthy and happy until cancer treatment. Tamoxifen is a game changer. It made my skin creppy and my hair is thinning. I thought of dating, but my God, I can barely move around let alone think of moving on in life. So yeah, I would like anyone who can chime in who can relate to my story. I am vegan since summer 2017. No more coffee, no alcohol, no alcohol, no sugar. Sounds boring right? Well, I am trying to be so healthy, but feeling so crappy. 😞 Look forward to any feedback. Cheers, Starrywaves
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