Hello Blissie 🙂 I agree, this is a lovely friendly place to be when you're going through this process! I finally feel like I'm emerging back into the world again after my first trip down the chemo rabbit hole last Thursday! Have learnt a lot, and will do quite a few things differently next time. Have also spoken to my BC nurse at length and am going to meet with my oncologist re managing periods/treatment if we have another clash in the future - although we'd discussed it and checked that the different meds wouldn't affect how well the chemo would work, we should have thought more about the actual experience (I haemorrhage without meds, so not taking them wasn't an option). Currently being monitored for anaemia, and still feeling pretty wobbly at times. That being said, I don't think I've been too bad... no sickness, any queasiness sorted quickly with meds. I've found the utter fatigue - going to rest and waking up unrested - very strange. I've felt pretty stuck in my own head, and a little panicky at times, especially as the process was all so new and I had no sense of when it might end - hopefully familiarity will help with this in the future. I'm so sorry you're having a hard time Michelle... it's definitely not a reflection on you, as cancer and and chemo is a @#$%ing hard thing to deal with on any level. And I appreciate worrying about your partner... I do too, and our instinct is to help them but at this point we can't do very much more than try and express what we need. My BC nurse has been really helpful with this - she has been happy to have H with us for appointments and to spend time answering H's questions and concerns as much as mine (also laughing at H's terrible boob jokes, which she can only blame herself for) - do you have a nurse? Could they spend some time talking to your partner? Through this whole cancer carnival, I've found the Breast Cancer Care line really helpful - for practical info for me, but my dad has also had some really good support with general questions, understanding the process and some more emotional stuff I think (he says he "just had a natter" - not one for counselling or headdoctors!). I'd definitely recommend giving them a call 🙂 I have also been visiting my local Breast Cancer Haven (https://www.breastcancerhaven.org.uk), and am finding them a huge help and resource. They have recommended to me by my BCN, my oncologist and other patients, and offer complementary support. They're a little more airy-fairy than I'd normally choose, but they provide some really lovely, relaxing therapies and classes, plus info in an environment that's much softer and less clinical than a hospital. They provide a number of hours (12, I think) free support - so I've had a couple of massages and a nutritional session so far - but this includes up to 4 hours or support for a partner. Am currently persuading H it would be a good idea to use at least one, if only to check whether they are "too mung-beany" for her If there is a Haven near you, it is definitely worth looking in to. And last - in what I now realise has turned into an epic! - I second the suggestion for Suburban Turban! I have also found Pinterest really good for ideas on scarves, including from very simple guides for tying them to inspiration for some of the most stunning headwraps! I searched for "how to tie headscarf", but also "headwraps", "headscarves", "kerchiefs". And the other day I found myself asking a lady on the bus who had a really stylish wrap on how she had done it... we were both a bit shy at first, but she was happy to explain 🙂 Now, sun's out, bloosom's blowing and I need to go and vote!
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