Breast Cancer Care Forum

Hello 🙂 I had my #12 weekly paclitaxel last week. It was very doable. I had some fatigue day 3 mostly but the other SE were mild. I m here if you have questions. And also have for you. Im about to start Fec x 4 but every 2 weeks. My onc told me that if I have many SE we can do it weekly.. but I doubt the effectiveness that way so I ll see. I read that you had FEC what should i expect? ... View more

Hi Lynnq so nice to hearing from you. I'm doing  weekly 12 taxol  (tommorow is my 9th) and afterwards 4 FEC treatments. then tests and then radiation treatment (since I've had possitive nodes) I have also upset stomach and constipation/diarrea problems from time to time (I also have problem with some hemorroid bleeding but I've managed it with a cream given by my onc) So if i understood correctly your TM markers are stable for now and waiting and see...hope they eventually come down and I'm waiting for your news My onc team have indeed counselors but I think they cant understand me, because they havent been to where I am now.. I 'm also usually say I'm fine, but lately dont even do that....hope I'll get my spirit back again... ... View more

Hello to all. I'm having my 9 taxol on Friday. I have fatigue mostly and a lot of depression (but this is not from chemo i believe). The last days as I wrote before I feel that I cant even think properly because of my bad thoughts....Even my onc called me to cheer me up but nothing works. I believe it was triggered when he mentioned that I'll have tests again when chemo ends. He told though that is 6 months check and is protocol and typical but I'm still lost at my thoughts... Lynnq I'm waiting for your good news and Mojhan how are you? ... View more

Hello again to all, Today I have a not so good day. Mostly my pchycology is bad. Thinking all that we are going through and hoping they are are for the best...but there are times that my thoughts turn dark... Lynnq your onc was right anyways he will know when its time to have the TM tests..and they will actually mean something. I have a lot of fatique and I'm a little restless. Constipation a little bit and I ve done my paclixatel 6th weekly dose on Friday. 12 more to go and then 4 FEC... I'm a little discouraged today...sorry ... View more

Lynnq how was your appointment? How is everyone doing l m a day after my 6th taxol treatment- so far fatigue constipation and not much of an appetite ... View more

Lynnq, as far as I know ajuvant chemo is given post surgery both for ductal and lobular primary cancer (especialy when the size of tumor is more than 2 cm or you have possitive nodes). Thats my case. I wasnt given the option NOT to have chemo since I had 7 nodes positive. I believe When you have secondaries I believe is a completely other treament anyways. Recently researches I ve read they say that the treatment is the same but lobular tends to have different pattern of mets or is found when is very big. I really dont know but is good to have faith at your medical team and to ask all that questions.   ... View more

Lobular cancer hmmm I asked my onc about the chemo response and I believe there is still a reason that treating it about the same with idc.Hope I m not doing chemo "for nothing" I was diagnosed last January had 1.5cm lobular and 7 nodes of 17.the onc said I m 2A and I m now on weekly Taxol and then FEC. Though a lady I met said we are almost the same and doing taxol with carboplatine and then FEC - so I m thinking about questioning my onc (we have the same) why was I don't have carbo- not that I want to ... View more

Hello to all- last Friday had my 4th taxol treatment of 12- I was quite tired the days 2-3 - in fact I slept a lot and had a very bad mood. As my onc told me that at the end of treatment I have to do tests again. I m afraid a lot 😕 Lynnq why do you have your CM tests while on treatment? I think somewhere I read that they maybe high when on chemo:/ but I m not a doctor - hope everything turns out ok. My tumor was lobular too- we will never find it if there were my nodes and a tiny area of ductal type ... View more

Today I m completely down... yesterday I had the injunction for white cells boost and I feel like a have the flu:/ and my mood is also awful- ... View more

Here I am again. I had my 3rd taxol on Tuesday- so far today (day 3) was the most difficult day- fatigue mostly and my hair is falling a lot. Maybe tomorrow or at weekend I have it saved- I ve also changed the chemo day from weekly Tuesday to Friday. So I can keep up as far as I can with work. The other thing is that my onc said that after my 12 taxol I m programmed and for 4 Cycles of FEC 😕 5 months of chemo that is ... View more

Lynnq I think the whole situation we are dealing is making us a little irritable. My husband also is there for me for chosing a wig and keeps telling conforting things. But there is always that times that your feeling alone... cant help it. Tried yesterday to get in touch with an organization for women with breast cancer here in Greece so I can talk to a physiologist and other women with the same issues... they also have a "staying beautiful through chemo" class which maybe will attend. Well it is times that I want to be very active and times that I won't move from my couch... Tomorrow I m having my 3# taxol and cant sleep... ... View more

Bellas mum since I was diagnosed by fine needle biopsy l hadn't have so much pain. My mri was also showed near the tumor another area of concern but I was already scheduled for mastectomy so they didn't do another biopsy- during the surgery they had a so called "quick biopsy " to get clear margins and they found that area was LCIS so the proceeded with the mastectomy. My tumor was also incasive lobular with a little ductal characters (mixed adenocarcinoma) I hope you ll have good results ... View more

As for the scan, didn't you had scans before surgery? I had breast mri, bone scan and CT of liver lungs kindey uterus ovaries etc and brain- if you didn't maybe you have to do it before starting chemo ... View more

I was full of anxiety before the results but the moment I knew what I was dealing with I calmed down. With your onc you are going to have your plan set. Probably chemo first and then radiotherapy and hormone tablets maybe I had also invasive lobular bc 1,5 cm and 7 out of 17 nodes positive- had a mastectomy too and node clearance and now I m in weekly dose of taxol for 12 weeks - tomorrow I m having #3- wishes for the best and bellasmum was right - write all your questions before the appointment ... View more

Hello to all- I have started chemo on weekly taxol (paclitaxel) and so far I ve had 2 infusions. I was told that I ll have 12 taxol treatments and doctor also said something for 4 more with something else but I don't remembering it- I will ask him again. So far except for fatigue and pain (bones and muscles) on day 2-3 and constipation I dont have any se - but I guess its pretty soon. Lynnq, my husband is exactly the same. I believe it's their defensive way of managing difficulties- or at least I d like to believe that.. I am and I was always a person that I didn't complain Or I didn't want to cause trouble and do everything my way and my own... so its hard for him to take on my care... hang on. Hoping you are doing fine. I started to write a journal- helps me to "bring things out" and not keep them inside like i used to... On Tuesday I m having my 3rd round of taxol and trying to be calm... (I have chosen already a wig) ... View more

I understand your anxiety - all the waiting is awful....wishing you the best ... View more

Thank you Sue. You are right people don't know what to say.. I feel quite lucky I have found this forum because I feel you real close to me even though we are miles-countries away ... View more

Thank you Sue - its so nice to talk to someone who understands- today I was at work and I felt that everybody said "everything is gonna be fine " but no one looked me in the eyes... ... View more

Thank you SueC 🙂 Today I had my second taxol treatment. And then gone to work so far all is fine I asked my onc for my ear and he said that every little problem we had before chemo gets somehow "enlarged " with treatment- he suggested a little more cortisone. I also said him that I have little pain at my lower back and he said probably from the shot for the increase of the blood cells ... View more