Breast Cancer Now Forum

Hi Teresa Nail or lack of sounds sore!! I haven't lost nails they are all discoloured, some blacker than others but just really weak. Does it look like a new nail is growing? If it looks clean and healthy I would just leave to air. If it's a bit manky then maybe ask your pharmacist for advice, they may have a dressing you could use or failing that practice nurse. How are you in general? Have you finished chemo now? Take care hope the new nail grows back super quick!! X ... View more

Hi Chrissy night sweats are awful aren't they? I am 4 weeks post last chemo and still having. My only tip is to keep a wet facecloth next to bed and when I wake up with one put on head or back of neck -helps to a degree... it's the insomnia they bring rich is also challenging!! Chemo the gift that keeps on giving 😂 Anyone suffer with fluid retention? Really struggling with that at mo. ... View more

Hi all Side effects definitely get worse the further along you go don't they? Sorry to hear people are suffering with sore nails and breathlessness. I have been a bit quiet as have really struggled with SE s this cycle. I am so pleased to say that I have finished chemo and hope I never have to do that again!! Had 4cycles of TC and the fourth T completely wiped me out.. I too have been breathless on movement, sometimes just whilst sitting so bad last week was referred into hospital with a suspected PE. Thankfully scans were clear and they have just said it takes time for chemo effects to wear off. I have such terrible fluid retention in ankles legs and arms weirdly!! Anyone else suffer with that? Anyone got any miracle cures? Have been getting gel nails done fortnightly to protect nails but sadly mine have mostly gone black and have dark ridges in some. Must focus on the positive though and I still have some hair at front and sides. Nails are still attached and I am upright and head is off pillow! Am hoping radiotherapy is kinder to me ! Thinking of you all hope everyone has a Good week and all side effects ease up. It is such a challenging time but we are doing so well. Take care ... View more

Hi everyone Sorry have been very quiet on here for past 4 weeks been really struggling with side effects and feeling really down. It's nice to know I m not alone and am sorry everyone seems to be struggling a bit. I'm now due my 4th TC on Weds and have only really felt well since weekend. Although have terrible swollen legs and fluid retention am really breathless and feel 99 yrs old as I reach top of stairs!! Easter holidays were tricky with my children think they are over mummy being unwell! It' goes on for so long doesn't it? Was diagnosed in Dec and I think they want things back to normal as do I! Welcome Annie I too am a nurse and have 3 children 13,11 and 7. Cuddles great news about tumour reduction. Great to know chemo is working. I too would love to run away to the hills. Weeburd aveeno cream is fab isn't it. Constipation is just the worse. I used senna this cycle which helped a lot. Think it's the ondansetron which is so constipating not forgetting the rest of poison they are giving us! Chrissy glad to hear your on the list for counselling and reiki sounds lovely. Did you get that through your BCN? Macneech and Bibi I too will join your drippy gang drippy eyes drippy nose and sometimes a drippy bladder another gorgeous side effect! Good luck Bibi with your counselling hope you find it helpful. Miss Green hope your arm is feeling better now. So unfair to have more injections on top of everything else. Take care everyone let's hope the sun helps lift everyone's mood.. ... View more

Hi all I know what you mean Teresa about rattling with all this medication, never taken so many pills! And these awful injections I HATE them!! Hope you feel better second time around. Macneech am on same day/cycle as you although on TC not FEC and I too can only manage 5 mins upright before having to lay back down. So tedious can't believe I used to run 3x 5 km a week a few months ago can barely get up stairs at the mo.. I am having loads of headaches too not sure if SE of cold cap or treatment?? Think I need to drink more but just don't seem to be able to. Weeburd I do hope your BCN rang you back with plan re PIC. Must be so frustrating for you. Jujubee thanks for hair advice. Appreciate it. And cuddles hope your having a better day today and that you ve managed to rest. Take care everyone xx ... View more

Hi Is this page still running? Can t see a recent post? Would be great to talk to other younger women with breast cancer. Thanks Kitty ... View more

Hi everyone The hair thing is a real issue isn't it? Such s huge part of us. IWould rather another round of surgery than lose my hair. I completely admire everyone who has shaved their heads. Miss Green you look great not sure i would suit it. I am Day 5 2nd TC and am using cold cap (used both times) have lost handfuls and handfuls of hair have a sort of thin bald spot on crown of head ( now in competition with hubby! 😉 ) But am still desperate for cold cap to work. My hair is so thin now but still have quite a bit so with an attractive comb over option am going to stick with it until more bald patches either arrive or it all completely falls out. Am sure I ll know wether worked by day 19! So I would still advocate the cold cap and think for me at mo it sort of working. Take care everyone xx ... View more

Morning all. Thanks for the advice re hair. I am now Day 19 on TC and used the cold cap but yesterday my hair started coming out. I think they said you can lose up to 50% of your hair so am hoping cold cap still works and some of my hair will be saved. Put my wig on yesterday to get used to it a bit and also for my children to see me looking different just in case I wake up tomorrow without hair!! My little girl is struggling with the hair loss as am I. It's amazing how you do start to feel better isn't it and side effects stop but then it all starts again in a few days and am dreading those awful injections. Weebird hope you are feeling better. Sounds like a scary night. Flora I hope your chemo drugs get sorted must be so frustrating. LadyH how is your hair doing? Has cold cap worked for you? Will you use again this week? Have a lovely Sunday, take care everyone. ... View more

Hi first time in making contact. Really useful reading everyones different experiences. I am day 14 on first cycle of chemo and am only now starting to feel better. Had to inject filgastrim for 7 days which I had horrific side effects from. It s all just pretty pants really isnt it? My question is when did people first notice their hair falling out? I am desperate to save mine. Used the cold cap for the first cycle which was pretty hellish but really want to save my hair. Just wondering when i ll know if its worked or not? Have got a wig but really dont want to have to wear.   Wishing everyone all the very best for their treatment and recovery Stay well and warm Kitty ... View more