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Dolly78
Member
since
03-03-2018
14
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07-04-2018
08:26
I know exactly how you feel Emac I feel the same about my two children... It’s just not fair. I was really, really worried that my ct scan would show it had spread as I have multiple lymph node involvement but thankfully it was clear. I can remember saying to the breast nurse before I had the scan that I just want to be given a chance to beat this for my boys and see them grow up. Keep positive there is a good chance yours will be clear xxx
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04-04-2018
09:06
Hi emac, I can just imagine how you are feeling right now. I am in a similar situation but with an 7 year old and a toddler. My cancer is lobular, estrogen positive with lymph node involvement. I haven’t actually been told the grade and stage but it’s pretty obvious it’s at 3 as it’s multifocal and extensive in my boob and in my nodes. I’ve had a CT and bone scan, which thankfully both come back clear. I had my first dose of chemotherapy last Monday. I can honestly say it wasn’t as bad as I thought it would be. Don’t get me wrong I felt crap for the first few days then a little less crap for the next couple of days but today I’m on day 10 and I feel pretty much normal. I was really worried how I’d cope with my toddler but with help from family and my husband the first week we got through it. I mainly felt like I had a massive hangover for the first two days then gradually felt better. The thing that I found the hardest was the steriods! They made me feel really agitated and my emotions where all over the place while I was on them. But I guess at least I’ll know to expect now. I am still struggling with it all and have good and bad days.. Last night I accidentally watched something on tv about breast cancer and then I felt awful for the rest of evening and all morning. This evening I’m feeling more positive again and have booked in to get my hair all chopped off Friday in preparation for the hair loss. Overall as time is going on I do feel better than I did now I’ve started treatment and a plan is in place. Sending you massive healing hugs xxx
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23-03-2018
10:59
23-03-2018
07:34
That’s great you’ve been able to work so far Katflo, how bad did you feel after the chemo? I start chemo Monday and having a massive wobble today! Just so bloody gutted about it all...I had my picc line fitted yesterday and I think that made it that little bit more real xx
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21-03-2018
08:47
Hi Lisa just wanted to say I know exactly how you feel. I have recently been diagnosed with invasive lobular cancer with lymph node involvement. I start chemo on Monday, then a mastectomy, then radiotherapy and hormone treatment. Sending Hugs xxx
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21-03-2018
08:39
I’ve just read your story Mai and it’s really given me hope. Thank you for sharing xx I will look up the chemo threads, I am starting chemotherapy on Monday xx
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21-03-2018
08:30
Thanks Katflo xx it really does suck. I keep thinking I should be just worrying about things like why my 16 month old keeps throwing his food on the floor and if my 7 year olds homework is done! Not bloody cancer!! Yes I’m having chemotherapy first before surgery. They think I am a good candidate for this because of my age, the type of cancer I have, and the fact that they already know it’s in the nodes under my arm. The breast cancer nurse said to me that they want to go in hard and over do it if necessary rather than not. Hope you’re doing ok xxx
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20-03-2018
07:22
Hi Katflo Just wanted to say Hi, I know it probably doesn’t help much but just wanted to let you know that I feel exactly the same. I’m newly diagnosed and about to start chemo. Im 39 with a 7 and 1 year old and really scared about the future too. Sending big hugs xxx
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19-03-2018
03:12
Thank you for your kind reply Ann, I really appreciate it xx
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16-03-2018
08:37
Hi, hope you're all doing ok xx Thankfully my CT scan was clear and just showed up in the breast and local lymph nodes. After seeing the surgeon it was decided I'll be having chemotherapy first before surgery. He said this was because of my age, the type of cancer I have and because the lymph nodes are involved. Has anyone else had this? I am going to be starting fec t in a few weeks. Really worried about how my body will cope and how bad the side effects will be. Also I'm having a bone scan on Tuesday which the breast nurse has told me not to worry too much about as my ct was clear but I'm still worried! Do anyone know if it's the procedure to have a bone scan and a ct together? Xx
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04-03-2018
09:12
Thank you for all your replies it really does help to hear from you all xx I'm finding at the moment Im varying between feeling positive and thinking I'm going to beat this to oh no I've had it! I don't help myself by goggling either, I know I shouldn't but when the doctors mention something I don't understand I googled it before I've reach the car park! Obviously my main worry this week revolves around my CT scan. Just hoping and praying it hasn't already spread and I've got a shot at this. It's all just so crap 😞 xxx
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03-03-2018
11:03
Thats exactly how I feel Emmalou! like I am a walking time-bomb waiting to blow up at any given moment! I am so exhausted with worry I feel like I'm making myself feel ill! Thank you for your message it really helps to know Im not alone. Sending you healing hugs back and lots of positive thoughts xxx
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03-03-2018
10:53
Hi Fairy dust, thanks for your message. I know what you mean about not daring to hope for positive news, every time ive been to the hospital I've had a bit more bad news given to me. I am petrified of going back again next week! I have been reading lots of older posts on here and do find it helps. Does multi focal mean lots of areas? I just feel so overwhelmed by it all. Hope all goes well on Monday for you xxx
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03-03-2018
10:21
1 Hug
Hi there, This is my first post on the site I have just been diagnosed and I'm really struggling. Wondering if anyone is in a similar situation to me or has been in the past and can share any experiences or just to say hi to help me feel less alone. This is my story so far... I am 39 years old and I found a marble sized lump under my armpit at the end of jan, I was diagnosed yesterday with invasive lobular cancer. I had already been told I had breast cancer a few weeks prior to this when I received the results from the biopsied axillary node. They could tell me it contained breast cancer cells but nothing else until they found the actual cancer. During this appointment I had a mammogram which was clear and an ultra sound which showed only showed up a small 5mm lump. A biopsy was taken and an MRI was arranged. Yesterday brought more worry... the small lump had come back as invasive lobular but the mri had also highlighted other areas in the breast which looked suspicious. I had another ultrasound and with 3 different doctors coming in to look at the scan. To be honest I think the snow and amount of cancelled appointments had a part to play in this but never the less they all had a look. They all seemed to be really unsure but agreed they could see something so took several other biopsies to make sure they got the area covered. The doctor explained than because of these extra findings I would probably have a mastectomy rather than a lumpectomy but they had to show than the cancer was in other places first to justify this. I realise that this would now take what they originally thought was a grade 2 to a grade 3 but at the moment I am just so worried that it has already spread beyond this. Because of the snow and that the hospital was so quiet the breast nurse managed to arrange a CT for me yesterday while i was there. So now I am just waiting again.. The doctor also did say the the CT can bring up lots of red herrings which turn out to be nothing so now I'm not sure I will get a true answer or not even with the result?? So what I know is that i have invasive lobluar cancer, definitely with lymph node involvement and most probably in other areas in the breast which I know can be a factor with lobular. Is anyone in a similar position or has been in the past? I am just so scared and worried there will be nothing they can do. I really can not believe how my life has turned on its head in just a few short weeks! I do actually feel a bit better after writing all this all down...although that could also be the wine! Thank you to anyone for reading this xx
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