thanks Jill! that was my first post on any forums too. i did want to add that I haven't been comfortable using a petro chemical product but at the same time wanted to follow what I was told was best by the radiation unit. I saw (here) that someone else used a variety of creams that sounded good. I have seen a recipe today for a salve with beeswax which I'm guessing gives the salve a thickness/body that might work well - replicate the particular qualities of the parrafin ointment in moisturising and sealing moisture in? Here is the link if anyone is interested: https://www.theinspiredlittlepot.com.au/body/super-salve-one-salve-for-everything/ Lots of other great recipes too.
... View more
Hi all, I'm in Australia and wondering about the totally different advice - except for the last lady - about wet and dry. Here I was told that it is very important to keep it moist. I had 20 sessions of raditiation and skin started to blister during the last week. The nurses at the radiation clinic started off treating the burn and when i finished a nurse visited me every day - we have a fantastic not for profit service here where nurses come to your home (for anyone not just cansurvivors) and they have continued the same treatment. Which is - I have my shower before they come and then I soak the burn area in a solution of 1 litre boiling water and 1 teaspoon of salt (made earlier in the day and cooled) using large cleaning cloths (straight from the packet), soaking them in the water and then laying them over the burn area and leaving for 15 - 20 minutes - rewetting them if they get a bit dry. Used disposable gloves to protect from infextion. Then the nurse applies a thick layer of parrafin ointment (dermeze - I buy a tub of it from pharmacy) to the whole area and I get them to go over the edge onto the good skin too because I can always feel it pulling on these edges. they then put these squares of netting/gauze that are saturated in a thick parrafin ointment (called Jelonet in Australia) on the burn and then use non-stick pad dressings over the top of the whole area (including under the arm). We then try various methods to tape the dressing so it doesn't slip around (even tho the jelonet is very soft it still feels like its scraping if it moves around - the best method so far has been using a flexible tape that is called AsGuard flex or Fiso Fix ? and try to put it on skin that hasn't been treated. To start with I also used a type of compression bandage over the padding, around the chest under the breast (only one in my case!) and then over the shoulder (I have an additional pad running vertically from collar bone down over the top of the other pad and this gives me extra protection esp for seat belts etc). This made me feel really secure. I stopped using the bandage once the burn on my thinner skin (under collar bone) had started to heal as this was the worst part esp with rubbing. Until this week I was wearing this the 24 hours until the nurse's next visit. Over the top of that we would put a little light stretchy top made from - wait for it! - incontinence pants. :) The nurses at radiation unit showed me that trick - you just have to cut a couple of extra holes. very soft and helps hold it all together. I really feel for all those women who had been told to keep it dry - just having a shower before the nurses visit, which had the effect of removing the ointment, it was instantly painful and would stay painful until the ointment was applied. I was told that the radiation would continue to act for up to two weeks after the last treatment (in other words, the burn continues to develop) and it was quite miraculous how when that two weeks passed my burn suddenly started to get better. The ointment is very messy though and you need to wear old t-shirts etc because it does stain. Another idea is to ask for a referral to the burns unit of your hospital so you can get the best advice. good luck to all of you.
... View more