Breast Cancer Care Forum

Hi Reddi Pleased you’re doing ok. Spending time with OH is a given but do hope family settled a bit more back home. Enjoy your walking holiday. Good luck with work and losing weight. It is hard...I’ve got at least 5kgs to get off. Maybe I should stop having treats 😂  hugs xx ... View more

Hi Ladies I’m amazed I remembered my log in details as it feels like I haven’t been on here for months. Looks as though we are all getting on with everyday things as it’s quiet on here now...which is a good thing. I’ve had a little look around the site, mainly on the surgical side as that was my forte last year. Reading the new posts reminds me of last year.... I might take a look back on this thread just for old times sake. I just realised that I have had a one year anniversary.... had my last surgery in August 2018.    Hugs to all  xx   ... View more

Morning Kip I do hope that gremlin has been given the boot by now. They do pop up now and then don’t they....wish they wouldn’t but every once in a while something niggles the back of the mind then it’s suddenly full blown and out of control. I like the quote...very apt. I’ve not been on here for a while but I like to think everyone is getting on with the everyday things. Im conscious of the fact there are also those who are continuously joining the site, at the beginning and after diagnosis, having treatment, decisions to make etc. I was out gardening yesterday making the most of the weather and getting a bit of exercise. Looks as though it’s going to be another good day. sending hugs positive vibes xx   ... View more

That’s brill Kip. You’ll enjoy your Saturday bike-athon.... steady away. xx   ... View more

Hi Kip  I tend not to relate to last year toooooo much apart from time of diagnosis, start of letrozole and last surgery ... 😂 . So next month I’m a year from end of treatment (which was all surgery). Know what you mean  .... anniversaries rule ok.  I’ve also had time to think about things this year, digest implications more, let things creep into my thoughts and I’ve let them niggle on as I wasn’t on top of my coping ‘strategies’ ... I wasn’t exercising as much, stopped crocheting, not gardening as much, just not really interested in anything, going through the motions etc etc. So today I’ve got my plan, and myself, in hand. Been out gardening to start with .. need to be productive, and I’ve done my exercises and a bit of yoga. It’s great that you get out walking with the ladies and that you’re able to talk about stuff and be educating them at the same time. You’re right about having a break away from BC related stuff at times...rebalance.  I have to say I do feel more like the old me. I guess ups and downs are part of the recovery.  Well, the weather is still good so I should get back out and do a bit more gardening then I won’t feel so bad about watching some tennis. How’s the biking going ? xx   ... View more

 Ages since I’ve been on here. Hope everyone is doing good. Ive been struggling a bit lately ... have found this year more hard going than last and even my OH is saying he’s worried about me. After a leaky eyed session on his shoulder saying what was worrying me,  I looked at psychology notes from the Moving Forward course last year and recognise that my threat system is active resulting in anxiety/low mood. Recognised myself and could link in with ‘behaviours’. I need to get back on track ... get better with exercise, plan activities to embrace holistic approach etc ... get my positivity back. It’s surprising how these things gradually creep up but it was my time to dip. I should get back to my norm so when something triggers the what ifs I can look at it for a short time and put it back in the box ... or just let the thought go by and let it go as I used to do. I feel better just by acting on this. I’ve also started to take my Letrozole on an evening which I’m hoping may help with tiredness. It seems to have helped ... this is pre my light bulb moment of today. Sending positive vibes to myself and everyone on here. How are you all doing? hugs xx ... View more

Pleased you’re doing well Linda .... and back to work. Great you’re planning holidays and short breaks too. Hope your chemo group gets a meet-up organised ... Jem must be in your group. Plenty of time to get things arranged.  Xx ... View more

Hi Kip ... yes ..I’ve hooped now and then but no where near 10 mins. I tend to do a little and my aim is often. I’ve found the yoga dvds and book so I have no excuse not to do some ... well I don’t have a yoga mat !! 10lbs weight loss is good. I might have lost a pound recently but I did make scones and rock buns over the weekend 😈..... probably put it on. weather pleasant here but expecting rain hope everyone is having a good day xx ... View more

Jane .. what lovely words and you certainly say how it was/is.  Pleased to hear your zest for life is back.  Never say never ... Linda ... pleased all is well and looks good. Hope your trigger thumb doesn’t get worse but good you’re going to be seeing a hand specialist. Hope the red meat and greens help your bloods. It is weird when you get to the top of the mountain as a Jane so aptly puts it.    Lovely  warm day today, walked a bit but I’ve still not got the yoga video out.... my mantra is I must do better ... maybe I should start writing lines to remind myself to get motivated 🤔😂   ... View more

Hi Reddi ... lovely to hear from you. Gosh you must be exhausted...you’ve been so busy but good you’re getting things sorted for your mum. ... and a good distraction as you say. Sounds quite involved arranging and rearranging things over there regarding care.  What an interesting experience at JFK airport though ... something different !!! Everything crossed for your USS when you get back. Sorry to hear your joints are acting up big time. Some women take chondroiton and glucosamine which you can buy over the counter. Im on letrozole. My joints were cranky before but they, and muscles, do get worse at times but not as bad as you sound ... but I’d already gone through menopause so perhaps not as acute affect going on AI.  Hope you get some relief soon and they settle. It is said the affect of AI does getter better with time. hugs xx ... View more

Capsule wardrobe sounds interesting Kip. ... View more

Kip ... love the thought of the waiters in Costa being ‘educated’. It’s good to meet up with others and you’ll certainly be more insightful now about other c’s ... all the same worry though. Clothes wise for events .... I’ve got two Indian tops I bought for wedding in Kolkata so using one for day time ceremonies and one for night....I don’t do frocks. Weddings in India are so relaxed..not sure about US. Anyway we will be relaxed !! Lot of palarva though for sitting around for most of the day ... hope I don’t nod off. I’ve been wondering if I might be fatigued in the afternoon but then recover enough to get round to the shops !!! OH would be ok catching up with old friends .... it’s an idea 🤔😈 ... View more

Kip ..... one good thing about bra is it sits nicely again chest wall and can’t see the ‘gap’ when bending over 😳 I haven’t done much crocheting as you can see.... Off to Washington .. invited to wedding .. son of OH’s old friend. Touristy things more interesting 😂 I’m hoping to keep packing to a minimum. Have two long ceremonies during the day then night time black tie ‘do’ .... I’m thinking outside the box re clothes to keep to a minimum .... fusion comes to mind.🤔 Linda ... so pleased the bruising has improved. You’ll be pleased to see the results tomorrow. Sorry to hear about OH’s car. Mine cost a bit to get through last MOT although it is over 16years old !!! We’ve been looking at cars since last year, test driving was a great distractor. We only decided recently about which car to get and have been looking at getting a good price... however we have now decided to look at electric so need to research and test drive... again. EV’s need to come down in price although I’d only be looking at secondhand. Hope you’re all having a good day. Hows Reddy doing? xx   ... View more

Hi ladies...hope all is well. Hope you’re doing ok Linda and bruising is improving. Ive been wearing the Amoena bra I got recently. Definitely not as comfy as my Boudicca bra and my foob doesn’t really fit well. The cup shape doesn’t suit now I’ve had it on for a couple of days but it’s ok for day to day around the doors. I found an amoena  softie which suits the bra...I now remember I didn’t use it often as the shape wasn’t really me... too ‘full’ ... more Boudicca than my Boudicca bra.... maybe more Madonna..ish 😂 My Boudicca bra is from woman zone, as is the foob so they go together. The Asda bras are still in use and very suited to using a KK. I just wish they did them without lace...more smooth. Im still on the lookout. As my knitting prowess wasn’t up to scratch I’ve sent off for a spare KK. I’m on trying crocheting one but it may be a while before it’s finished !!!! Starting to get sorted as away for a week next month. I’m so used to travelling with hand luggage that I’m finding it a pain having to take checked in luggage 😳 Xx   ... View more

Good news Jane. Pleased you are through your symmetry op Linda.... will look much better when bruising settles. Wishing you an uneventful recovery. Xx ... View more

Kip and Gill .... see you have your stars.... both well deserved.  Gill .... long time no speak.... how are you doing? You’ll have had your yearly checkup? How’s OH? I’m doing ok. Hard to believe sometimes it’s over a year since everything kicked off and came on here and met you all. The April surgery thread isn’t active anymore but I do believe we are all doing ‘ok’ from there.  Linda Corinne is in contact with Jem so have sent an hello through her and I’ve made contact with Sally on another site.  Had a lovely meet up in Birmingham recently with Kip et al. Keep in touch. Jay ...great news getting mammogram results   Lovely and sunny ...need a good walk today plus got a list of jobs to do. I’ve actually done my bc exercises first thing....have been finding my left scapula area/shoulder/neck/upper arm is a bit sore/aches especially when I wake up but sure it’s muscular as that area was sore when stretching doing yoga some weeks ago...think that set it off + been very lazy about doing exercises. And my posture is rubbish. Good side was sore too but that settled quicker. I must be better at exercising. Swimming would be good but still not got any gear !!!   Have a good day xx ... View more

Hi Paulus It’s all about swings and roundabouts isn’t it. We can accept or refuse any treatments...it’s all up to us and what we are happy with. Like you I’m on Letrozole and I know I have mild osteopenia from last years dexa scan. I crunch the calcichew/vit d tablets daily, eat/drink  dairy and walk in the hope I may keep off the biphoshonates.... my dentist says we will deal with that if it comes to it. There’s always a decision to make somewhere along the line although we would like to avoid them... I certainly would.I’m due to see my onc in September so I will be doing research into biphosphonates, again, before then just so I can ask questions if he mentions having them. I really need to know what the teams policy is anyway before I have my dexa scan next year ... be prepared and all that. There’s an optimal length of time to have them if I remember and that minimises the risk of major side effect. Lots of info on the NHS site.  Might you consider having biphosphonates or having a trial of them?   Onto other things...I’m still awaiting a copy of my last clinic appt letter... it’s probably lost in the hospital post room. Looks like I’ll have to phone sec again at the end of the week. Ive been picking up the hoop again Kip...back not so bad now. Slight weight loss but got to confess I ate chocolate today ... couldn’t resist. Still no biscuits though. Forgot to ask...will you have some training re. Comm champ .... an away day would be good.   hope you are all enjoying the good weather xx   ... View more

Good news Linda. I would have expected they would review your previous mammogram if diagnosed within 3 years of having it. I mentioned my previous mammogram as I had it 8 months prior although I can’t remember getting a definitive answer about comparison...was told it would be looked at though and got the impression it would be at MDT meeting.   Weather rubbish again today. xx ... View more

Fingers crossed for your mammogram results Jane and Linda. 3D mammogram sounds interesting ...is the equipment different?.... less squishing would be good. Ive just remembered to request a copy of my last clinic appointment letter and I’m hoping it may have written confirmation about my mammogram results in it as we are told verbally on the day.  Xx   ... View more

Pleased you got your results letter Kip. I’ve done a bit of hooping, some walking and wiifit when the weather has been rubbish. I doubt my weight will be budging even an ounce as I had a yen for ice cream over the weekend .... not good. Hope your run went well yesterday Michelle. Hope everyone had a good weekend.  xx ... View more