Breast Cancer Now Forum

Right, can't find a general reply button so I'll just say ladies, it's been delightful, good luck for all of you. However oversaw this "upgrade" needs shooting as it's unusable, and I'm pretty tech savvy as my son is a website designer. I'll not be back ... View more

Jesus, the forum looks like someone vomited trifle all over it. Not a good look at all. ... View more

First of all do not assume she will be I'll. She may not. No foods tasted bad to me. I ate as normal all the way though. I lost no fingernails. I wasn't sick or even felt sick once. I cold capped so I kept mist of my hair but this isn't for everyone. I just felt a bit fatigued, especially during the really hot weather so lots of fairly early night, pre 9pm, we're had. Apart from that life went on as normal. I went to work, I did the house work, I did gardening, went shopping, washed up, walked the dog. If you assume she will be I'll and treat her like an invalid it may become a self fulfilling prophecy. I'm sure I was as unaffected as I was because I assumed from the off I'd not really be ill (I'm never ill). ... View more

I had silver nitrate put on a wounder after my 2nd surgery because it would heal properly. The surgeon did it. ... View more

I had ops Jan and April 2018, chemo June to October 18 and am only just now having radiotherapy (started 7/1). 1st time I had cancer I had op 13/1 and radiotherapy started mI'd April so a three month gap there also. (The cancer I had then didn't come back, I was lucky and got a completely new and different sort). 2 months doesn't seem that long to me especially as you have to be completed healed before they do it and some people take longer than others. ... View more

I waited longer. Sent on a two week wait in March 2016 as my breast tissue where I'd had a lumpectomy and radiotherapy in 2006 suddenly changed and felt different. Scanned and told it was just old scar tissue, though no explanation as to why it felt different all of a sudden, and sent on my way. Fast for to October 2017 and routine mammogram showed a massive area of something but this wasn't acted on until I was called in again in December for the mammogram I'd already had. Needles to say I kicked off and after much to ing and front I was diagnosed with grade 2 lobular cancer on 17 January 2017. Referred on to Guys so I could have reconstruction and my initial consultation with them was cancelled twice and I finally got seen on the 3rd attempt. By this time the cancer had moved into the skin of the breast so I was unable to have any sort of reconstruction. I had my first surgery on 28/2 when I was shoved on a urology ward as they had no bed for me on the breast ward despite me querying several times that I'd need to being in the day before as an insulin dependant diabetic. Only the day before at the pre op (which I had to keep chasing up as I'd had no contact) did they decide I was right but too late for a bed to be found in the right place. I also had to have a follow up surgery in April for nodes which were involved. Only just before surgery did I find out they were also going to shave the chest muscle to get clearer margins. No one had bothered to mention it to me beforehand. To be honest I've found so many errors and things done wrong I have zero faith in the treatmentand now question every single thing I'm told. I must be a nightmare patient now but I wasn't always. Maybe if I was at the start I'd have been sorted out years earlier but when you're told by a professional there's nothing there you believe them. I didn't the second time when scanned again and told the best looked clear on the scan and so did the nodes. 12 days after I got my diagnosis and the cancer they removed was 11.5 cms. To be hon ... View more

Hi Sandra, I also had a large lobular cancer which was also in 6/11 nodes. I've had mastectomy, re-excision for margins with ANC, chemo and am now finally having radiotherapy . I've been told I'm at fairly high risk of recurrence so they're throwing everything at it. I don't know the figures for improved chances offhand but I know they're pretty good with all the added treatments. If you're offered chemo I'd do it, cos it probably won't be as bad as you fear. I had pretty much no side effects and worked all the way through. ... View more

Bum, my post from earlier got lost. I did say the dress is a must to give those at the back something nice to look at 🙂 Re the prosthesis fitting and bras we have nothing at my hospital. One BCN working out of a room not much bigger than a cupboard measuring herself and dishing out from the limited stock she has. No free bra or even anything to try. After my surgeries I've been left with a concave chest so nothing to hold a bra down which is why everything rides up. I also have loads of scarring and lumps and bumps near my arm pit so anything not really low cut at the sides rubs and hurts. If I'd have known then how affected I'd be I'd have told them not to do that surgery and taken my chances with chemo and radiotherapy killing the cancer in the nodes. ... View more

Hi, First time I had no effects of radiotherapy bar very slight pinkness (I've had far worse sunburn). This time I've done 9 of 15 and I have nothing at all. I don't go bralesss because I'm working full time and just popping out for treatment . Cream wise I used acqueous cream first time, this time I'm using some garner moistriker that my skin seems to like purely because I have loads in the house. ... View more

I'm so fussy though ShI. I can't find anything. I've lookied on the Nicola Jane website and don't really like the look of much at all and those I do look too high cut right where I have extensive scarring. I do have a knitted knocker but everything rides up and moves and I'm forever having to adjust my underwear. In good news though I've won another competition, this time on FB for a nice poreclaim dinner service. That's 2 things in just over a week. ... View more

Hi Daisy, I'm the same as Evie, I don't need deodorant on the ANC side. Just as well cos when I do put it on I'm still so numb I can't tell if I'm missing or not. It's such a relief when the drains are out isn't it? After the ANC I've found that if I don't do the exercises on a daily basis it stiffens up pretty quickly. I have full range of movement and got that back quickly but the numbness hasn't improved and I've been told it probably won't . ... View more

Hi, I'm on letrozole (only since October) and the ones I have at the minute are Teva. I don't remember what the first lot were but pretty sure they weren't the same. Got 1st lot from hospital and 2nd from local pharmacy. I've not noticed any difference at all. The only side effect I had was hair thinning but that seems to have petered out. This probably is no help whatsoever but just my experience so far. ... View more

Hi Reddi. I have my first Zometa infusion on 7th February. A lady I ran into on train that I met at guys said to take paracetamol before it because you can get shivery fluey symptoms after and paracetamol helps with that. She said she was wiped out for a day or two after her first one cos no-one told her so shed not taken anything beforehand. My local hospital have finally got in the prosthesis that's been ordered for me because nothing they had in stock was suitable. Got an appointment for that 31/1 so looks like I'll finally (fingers crossed ) get my falsie nearly a year after my mastectomy. All I have to do now is manage to find a bra that I can actually wear it in that's not cut too high or lacy or the wrong material that I can't wear. I had to throw out all my bras from before and now only have the stretchy cropped top types which are unsuitable for the prosthesis because of the weight. ... View more

Yeah I had 2 blokes today too. First time its not been at least one woman. Mind you, I'm so used to getting my tits, or lack thereof on the left, out for anyone ot doesn't bother me now. The itchy nose always seem to get as I'm holding the position bothers me more. ... View more

I had to see the oncologist in the breast clinic several times during chemo. They just want to check you're ok and managing any side effects. ... View more

Oh that's good then.Fingers crossed it gets better soon. ... View more

Wahini, By now I hope you've seen your GP and everything is ok. I think clots can move but if you catch them early it's fine. I just had 5 months of daily anticoagulant injections. ... View more

Wahini, if you can't straighten your arm without pain go to A&E . I don't mean to frighten you but that exactly what alerted me to the blood clots in my arm after chemo number 3. Best to be safe than so rry. ... View more

I finished chemo in October and started the letrozole a week or so later. I having radiotherapy now so started it before, not after. ... View more

Strange, my recent cancer was lobular and I still didn't have an MRI. ... View more