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Becs99
Member
since
09-04-2018
31
Posts
2
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31-01-2019
04:32
Hi, I have been having issues now since April last year, I posted at the time and was helped a lot from people on here. I have had needle aspiration 3 times and surgery since then, to drain fluid off. I have been told it was one benign condition, then I was told it was mastitits (i have no children but do know it is possible to still get this). I am still under the care of the breast care team, and am waiting for my next appointment. In the last few weeks, my left breast has swollen a lot, I am in immense pain and it has been incredibly itchy. I went to the GP yesterday to see if I could get some stronger pain killers, as I am not able to sleep because of the pain. She was really good but said she thinks there is more going on, even before examining me she said she could see the difference in the size of my breasts just from looking through my clothes and when she did examine me said it feels heavy. She said she is going to see if she can get me a 2nd opinion if possible and has arranged urgent blood tests. My question is, would the helpline talk to me even though I do not have a deifinitve answer as to what it is? This has been going on so long, and it is really getting me down now that I would just like to talk to somoene. Thanks Becs
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17-07-2018
12:18
2 Hugs
So after what feels like a lifetime I have finally had a diagnoses - Zuska's disease! Having never heard of it before I thought I'd share what I know. Zuska’s disease is rare but painful breast disorder which can often cause concern for possible breast cancer. However, Zuska’s breast disease is not related to cancer at all, but it is still a serious condition. Also known as “lactiferous fistula“, or Zuska-Atkins disease, it is a rare and recurrent disorder characterized by draining abscesses around the nipple. Zuska’s breast disease can also lead to nipple retraction. Though it is a rare breast disease, many workers in the field believe that it occurs much more frequently than reported. Unforutantely my surgery 2 months ago has been unsuccessfull and I am now due for more surgery, which after last time I'm not looking forward to, but I am so glad to have finally got a diagnosis.
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21-06-2018
07:17
To be honest what happened with the gp seems a lifetime ago with everything that has happened since. Yes I agree I don’t think he should have said it but I am just thankful and grateful that it could of been worse. Set for more surgery in 3 weeks which hopefully will be the end of it all x
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12-06-2018
08:19
So the final, and defitive, answer is it is definitely not cancer which is great news! The relief is amazing. They still don’t know what is causing the lumps or the build up of fluid as every test is coming back as negative. The consultant still doesn’t have answers which is frustrating, and has said I will need more surgery. His exact words were “you will be seeing a lot more of me”. Thank you guys so much for all the messages and kind words it really means the world to me. Looks like it’s not over yet, however I realise it could be a lot worse and I am exceptionally thankful xx
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04-06-2018
06:10
Apologise for the incredibly late reply, things haven’t been to good. Unfortunately I had complications during surgery, I aspirated during the surgery and had to have help breathing and developed pneumonia so had to be admitted. I woke up to find I had 3 incisions, 2 where fluid built up and 1 where they had taken a lump. I’ve been pretty poorly since I’ve been home so just wanted my bed! I get my results on Wednesday so fingers crossed they get to the bottom of what is going on as I am feeling incredibly fed up 😢
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21-05-2018
09:11
Thanks Charys, ha my mum always said I like to be different 😉 How long was your recovery? Wondering how quickly I could get back to work? I have been told they are hoping it will be a day case but to take an overnight bag just in case, but I'm assuming they say that to everyone x
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21-05-2018
08:50
Apologies I have been offline for a few days, my partner surprised me with a weekend away to take our minds off it all. I had my pre op on Friday morning and due in to hosital tomorrow morning. They are going to do a lumpectomy, there is also a build up of fluid in front of the lump, which is still showing up as no infection so they are going to drain that, but also keep a drain in at the same time.
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16-05-2018
11:40
Biospy results were inconclusive, I am going in for surgery next Tuesday.
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15-05-2018
06:09
Thanks Jo, I’m feel strangely calm about it all, I’m genuinely going with the expectation of a benign condition as my thoughts are if there was anything worse then they would of picked it up the first time. But then who knows! My appointment is at 9:15 so at least I don’t have to wait all day, I will let you know xx
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15-05-2018
05:55
Well results day tomorrow, fingers crossed I get some definitive answers x
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10-05-2018
07:45
Finding the wait till next Wednesday when I get the biopsy results really difficult now, feel like I’m currently on a never ending rollercoaster :( Do you think if they had found anything sinister they would have rang me by now? Sorry just feeling extremely fed up with it all now!
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02-05-2018
09:09
Thank you xx I feel awful for posting so frequently as there are all of of you going through far worse than what I am. Just want answers now x
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02-05-2018
08:39
So I feel I have taken 1 step forward and 10 steps back :( I saw the consultant today who said he was so surprised that it wasn’t an infection, he doesn’t know what it is. He sent me for another ultrasound and said he would see me in 2 weeks. I have had a core biopsy and they have taken samples from the lump and normal breast tissue. So another 2 week wait.
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01-05-2018
07:17
Yes they told me when I was there last Sunday that it was an abscess. In fact after my mammogram the consultantant said everything was fine, hel’ll send me for an ultrasound but it will be a cyst and he wouldn’t need to see me again. He did see me after and was shocked that it wasn’t a cyst. Anyway the hospital have rang and they want to see me 10:30 tomorrow. It was the nurse that rang, I did ask should I be worried and she “we don’t think so”. I honestly have no idea what is going on.
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30-04-2018
08:31
Just a shame it’s not until the 16th so another 2 week wait!
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30-04-2018
08:22
The hospital said once they had tested what they had taken out I would receive the antibiotics within a week. Been trying to get in touch with the hospital since Thursday, it’s only because the gp rang me that I now know it’s not an infection. I just don’t know what to do now.
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30-04-2018
07:20
Hi Helena, Thank you for the words, I was going to reply with once I’ve got over all the emotions I will speak to practice in regards to the gp, however I am now back at square one. Having not received any antibiotics and being in pain and the lump returning, I have been trying to get in touch with the hospital for the last few days with no luck. Randomly the gp rang me today to see how I was doing, explained the situation, he logged in to the hospital records and it states it’s not an abscess and I don’t have an infection. He said he would rig the hospital to see what is going on, I have also had a letter for another appointment. So who knows what is going on!
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22-04-2018
05:04
No pain at all, they were so shocked at the outcome, kept saying I must be made of steel! I felt a bit like an animal in a zoo, more and more people kept coming in to the room as they couldn't believe what they were seeing. They are sending what they have taken out to pathology to make sure I get the right antibiotics, and I have to go back in a few weeks as they couldn't get it all out. I think I will be having a word with the gp, but for tonight I'm going to enjoy, hopefully, a full nights sleep! Thank you so much for the support it really has been appreciated x
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22-04-2018
03:03
Well the gp was WRONG!! I haven’t got cancer! I’ve got a massive infection that has caused the biggest abscess they have ever seen. They can’t believe I haven’t been climbing the walls in pain, they have taken out as much as they can for now, need to wait for test results on what they have taken out for the right prescription and then they want to see me again in a few weeks x
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20-04-2018
11:51
Thanks Charys, I am actually feeling fairly calm about the whole situation right now, not sure why though! I know I may not get all the answers on Sunday, but if I go and get told it's nothing to worry about then great news, if it is something to be concerned about then at least the process has started. Although ask me tomorrow how I am it may be a different story!! x
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