Breast Cancer Care Forum

Tanya not sure I can anything that Shi, Jo and Leanne haven’t said. Sending huge hugs to you and praying for you both. I’ve not been on forum for a while but will now keep on here- please post. Keep going on your rads- nearly there. Xx ... View more

Jude I am hoping that your side effects have been better this cycle. It is so exciting to know you have finished too- what a journey! What is next for you? i had a great hols - just what we all needed. I came home without the dark nails 😀 🎉 I'm now wearing a pink colour- my nails are yellow with lots of ridges- my thumb nail you can trace my 2 surgeries and each chemo cycle- but I kept them all 😀 . i had an appt with radiologist consultant this week- he was happy that treatment had gone according to plan and my skin hadn't broken down. So now referred back to oncologist for next 10 years. I've now started the dreaded Tamoxifen- I have a few hot flushes each day and 1 at 4ish in the morning- this seems to be pretty goons. They do appear to be triggered by sugar- if I have a biscuit or a piece of cake- should help the diet 😂 .   It does seem odd without all the appt but a good odd. I'm taking things slowly until Christmas and trying to sort the house- Hubble has been fab and we had a cleaner for 6 months- just the chins rooms and the play room to go- left the worst til last! Trying to keep the walking going and building up- aim by Christmas is 10km 3 times a week- think it's very doable.   take care Jem xx ... View more

Sally I'm sorry they don't appear to be able to help with your arm and numbness. I still have a large area on my back that is numb but slowly is changing. wow sounds like you will rattle with all these mess! What is the trail looking at? I'm just on tamoxifen- hot flushes not too bad- seems to appear when I eat anything sweet or feeling cross with the children, youngster 2 fighting a lot at the mo 😫 Glad your feet are improving- some of these se seem to linger. take care Jem xx ... View more

Hi Sally and Feenix Sally I hope your feet are improving. Feenix - heard anything about your fitting? Physically I'm doing much better, it was a good day 10 days ago when I took off the blue nail varnish- after 6 months. Nails have survived intact which is amazing, they are yellow and bumpy so replaced with pale pink for now.  Sally understand re eyebrows and eyelashes - coming back here but hurry please.  My hair on head is think and growing quickly, pleased I cold capped as growth is better- however I've gone from blonde to dark with grey 😥 . I'm still have an ugly red square from rads but it is improving slowly. Fatigue much better. Emotionally was doing really well but then today happened- just feel rubbish. I think it was bound to happen at some point.  Hopefully tomorrow will be better. Have radiologist consultant tomorrow - think he will hand me back to oncologist. keep going with the complaint  Sally. take care Jem x ... View more

Hi Sally and Feenix Sally I hope your feet are improving. Feenix - heard anything about your fitting? Physically I'm doing much better, it was a good day 10 days ago when I took off the blue nail varnish- after 6 months. Nails have survived intact which is amazing, they are yellow and bumpy so replaced with pale pink for now.  Sally understand re eyebrows and eyelashes - coming back here but hurry please.  My hair on head is think and growing quickly, pleased I cold capped as growth is better- however I've gone from blonde to dark with grey 😥 . I'm still have an ugly red square from rads but it is improving slowly. Fatigue much better. Emotionally was doing really well but then today happened- just feel rubbish. I think it was bound to happen at some point.  Hopefully tomorrow will be better. Have radiologist consultant tomorrow - think he will hand me back to oncologist. keep going with the comp,ain't Sally. take care Jem x ... View more

Hi Jude read your blog today - as always well written. You are doing amazingly 1 more to go 🎉 🎉 . Hope today has been a good day. jem xx ... View more

Sally 🎉 🎉 🛎 🛎 I’m hopeful that your last chemo was as planned today- you’ve done it- what a marathon you’ve had and se have been kind to you 😊 . Are you planning on celebrating? What is next for you? If I remember you had radiotherapy before. Is it hormone tablets?? Today is the first day that I’m beginning to feel ‘normal’ - whatever that is! I’m very red from rads and still fatigued but ok. Feenix where are you off to in January? Somewhere lovely I hope. Take care Jem xx ... View more

Ellen I’ve just sent you a private message. Look forward to hearing from you. Love Jem x ... View more

Hi Kip congratulations on finishing chemo - it's a great feeling to have finished but then we are left with these horrid lingering side effects. How good is it taste and enjoy food once more 😀 i finished 6 weeks ago and then had radiotherapy (finished this on Friday), so today is my first week day without treatments/worries of op or wondering which se are going to appear today for 8 months - a strange but great day. like you I have suffered from terrible achy legs - climbing stairs is still hard work, I'm ok walking on the flat, also suffer with restless legs. My oncologist 6 weeks ago said this was a normal side effect.  Sorry you're suffering too but It is good to know I'm not the only one.  After speaking to the physio at the 'moving on course'  she recommended that I ask for a phyio assessment, to ensure I was helping my recovery rather than hindering it. Going to email my oncologist today. I'll pop onto the June thread and let you know any outcomes and ways forward. Is that you finished with active treatment? have a good day. Jem xx ... View more

Hi ladieS, have been r adding your posts but sorry not replied sooner. jude- so pleased that you are home, hoping you are resting. Docetaxol is rather horrid but apparently very effective. I feel for you with the shooting bone pain- I was like an old lady too. Ask your onc what they recommend re pain relief. I had coedine for the last one, I was very very spaced out but without the pain- all a balancing act. Hope you were treated well in Casea NHS. When are you scheduled for your next chemo?   Rosie Posie - hoping you are getting some of the warmer weather this weekend. A few days this week has been really warm here on the south coast -22 degrees and sunny. Yesterday was windy and really autumnal- a challenge with Audrey- needed to adjust to be tighter fitting!!   yorkshire Tyke - pleased Tamoxifen se are being kind to you. I start in 2 weeks. Was so encouraged reading your post, thank you-  you tend to hear the horrid stories.   Lisa hope all is well. Walking is really good for us, join the rambling group-hopefully you will really enjoy,  if you don't like it you don't have to go again.    Yesterday i I finished active treatment 🛎 🛎 🎉 🎉 after 8 months. It has been hard, really really hard at times, I've hated putting my family through this. But we've done it and have come out the other side. I know the next phase is hard but I need to keep focussed on moving on. I've started the BCC moving on course- would recommend a look. The first week was not great but 2nd was really helpful- I need to have a bag of tools to help me move forward from all this - I need to carefully select the most helpful tools to add and ditch the others. I now have a week to get ready to go on hols- off to Portugal 😀 . Due to the fatigue from radiotherapy I think it's going to take me all week to pack 😥 . I'm usually someone with lots of energy and would normally fit in packing for us all around a hundred other things- not at the mo- it seems to take me ages to do anything. Good news on travel insurance- we gave an annual family policy. Hubble rang yesterday to inform them of diagnosis and that all active treatment completed-no extra charge 😀 😀 enjoy the weekend xx   ... View more

Hi Feenix and Sally 1 more to go Sally 😀 . How are you feeling? Are you still travelling across London to work each day? Hope your cold is going quickly.  Feenix- your posts are sounding so positive 😀 . Sorry to hear cording not great- keep going with those exercises. yesterday marked the end of active treatment 😀 🛎 🛎 🎉 🎉 . 8 months since diagnosis. Rads have been ok but the fatigue! I think it's a bit cumulative after chemo but finding it hard- I'm ok in the mornings,by lunchtime I need a couple of hours rest/sleep, then by 7 become a couch 🥔 . I've got a couple of weeks without anything then start tamoxifen- not looking forward to all the se but need it so will just have to get on with it. Off on holiday in a week- at this rate it will take me a week to pack for us all. The good news- we have annual travel insurance as a family- Hubble rang to inform them of diagnosis and all active treatment finished- no extra charge 😀 😀 😀 . Hope you both have a fab weekend. x ... View more

Hi lovely ladies jude- how are the injections going? I just had 1 after each T. The mis of T and injections can cause bone pain- start pain killers before or as soon as it starts. You are doing so amazingly well - keep going 1 day at a time. rosie Posie - autumn sunshine is lovely - amazing day here with temp of 22! Yorkshire Tyke - sorry you have found it difficult when others are diagnosed- take time for yourself as it bring back all sorts of emotions. Tiger72 - how are you doing? Billie - welcome to our little forum thread. Hope your results were good. hope I haven't forgotten anybody. im now 2 weeks into 3 weeks of radiotherapy. It is very different to chemo. Most of the side effects of chemo have now gone 😀 - my sore leg muscles still remain but are getting better. The pain in my fingers is going. 😀 I still have all my nails- keep them covered Jude and moisturise the nail bed frequently - esp on T. I am very very fatigued at the mo, hightens about 2:45 each day- just as I pick up children and embark on fully time Mummy mode- so far have made dinner in a morning and put in fridge/slo cooker. Been busy planning daughters birthday weekend- I have tried to make it easier than other years but not sure how I'll keep going, then on Sunday family meal and cake/games here. Currently sat on sofa enjoying film with the children - what Friday evenings are for. enjoy your weekends xx ... View more

Hi Tropic_al Just sent you a message 😊 I’ve still got nail varnish on- nurse and I decided 6 weeks- no scientific reason! My nails are still there 😊 , the pain in my fingers is slowly going so I think it was nerve damage not nails. Einstein is a great description of my hair too.it’s not sure what colour to be- currently have white, grey, blonde and brown! One of my children has ‘golden ginger’ hair - they hoped it would come back the same as theirs- would have been lovely. Eye lashes just starting to grow back- oh I am looking forward to being able to wear mascara once more and look less like a chemo person 😊 . Take care xx ... View more

Hi Tiger, welcome to our little group, as Jude said sorry that you find yourself here. I hope recovery after mastectomy is going well, try and keep up with the exercises see- definitely worth keeping going. I remember thinking I don't look like I have/had cancer after my op. I really hope your results are good and you don't need chemo. However if they recommend then you have to go with it- we will be there cheering you on, as will others on this forum. let us know how your results go. Be kind to yourself in recovery from op. xx ... View more

Jude you sound like you are doing well on this cycle 😊 when does T start? I know you are prepared with finger nails- keep them moisturised, especially at the bottom. So far I’ve kept all mine 😊 . I’m now 3 weeks post chemo- it felt good yesterday not starting another cycle. I started radiotherapy on Monday - 15 sessions in all. It’s ok, different to chemo. But a Lisa Marie said tears must come at some point- mine arrived on Monday 😢 quite unexpected - just kept crying. Think there will be more. I just feel like I got off one horrid rollercoaster to move on to a different one. My hair is starting to come back - I was blond but now grey/white/blond/darker bits. I’ve always had fine hair but what is coming through is like fine baby hair- just hoping it won’t be curly too. Eyebrows & eyelashes - T was not good for them. Eyebrow pencil and waterproof eyeliner come everywhere with me. Lisa Marie how’ve you started back at work yet? If so hope going well. Agree with you re putting on your face, feeling like a fraud but albeit a happier one that only people who I’ve chosen to tell will ever know . So many people have commented on my new shorter hairstyle- even asking who cut it!! Thankfully I don’t need to lie as went to a salon and had it trimmed!! Rosie Posie hope you had a great time in the south of France Xx ... View more

Opos- course starts on Monday!! ... View more

Hi Sally, Feenix and Gill Sorry I’ve not been on for a while. Hope you are all good. Sally you’ve nearly finished chemo- keep going not long now and you’ll be ringing the bell 🛎 🛎 🎉 . My children organised (well started and I finished!) a party for family to celebrate the end of chemo - was good fun, the piñata took the brunt of our hate of cancer, chemo and se. Did you ever get a response from the hospital re your complaint? How’s your arm? Feenix how are your recovery going? Are your scars healing well? Hope you are keeping up the walking - I’m only managing 3km now- the mysclws in my legs are struggling post chemo, but each day improving. Gill are you still on the bike? I’m now day 3 of rads- the team are lovely & I see the same ones each day. Emotion of the last 7 months starting to catch up on me 😖 . Moving on course starts on My bday - really hoping this will be helpful. Love to you all xx ... View more

Hi Tanya how are rads going for you ? Do you finish this week? I’m day 3 of rads- going ok. I’ve sent you a message re Facebook - look in message box at top of this page. If you need me to resend just let me know. Hope you can join us soon xx ... View more

Hi Tropic_al how are you? Hope nails still behaving - I’ve still got the dark polish on. How’s you legs? Walked 3km today - I’m determined to push through to 5 a day but t my legs ache, I’ve sent you a message re the Facebook page- look at top of this page and click on message box. If you can’t gind just let me know. Hoping you can join us soon xx ... View more

Hi Sarah Have you finished rads or is it your last week. Hope all is continuing to go well. I’m doing ok- 3 down. The treatment is in a very small place and I same people treat me each day. I’m quite emotional but I think everything has caught up with me. Just taking 1 day at a time. I’ve sent you a private message re Facebook page- let me know if you need me to resend - look in your message box at top of page- hope you can join us soon xx ... View more