Hi everyone! I’m Gem, 34 and living in Chelmsford, Essex with my husband and beautiful 14 month old daughter. I was diagnosed back in October 2018 with DCIS after finding a grain of sand sized lump in one of my breast feeding boobs and realising it wasn’t mastitis 6 weeks on. I was so very fortunate to be diagnosed so early as after further biopsies and cloudy mammograms from the breast feeding they decided to do a mastectomy instead of lumpectomy and found invasion of the ducts had started. I don’t have a full family history available to deduce genetics but have been recommended to have a preventative mx on the other side this July. Reconstruction wise my body was unsuitable for tissue reconstruction so I fought hard to access a prepectoral implant reconstruction which wasn’t available in my area because I have a very active lifestyle and work life (which made pre-pec the best fit for me and my family). I have received outstanding NHS care so far and am looking forward to July when I will have my expander switched out for a permanent implant at the same time as having a mx/ straight to pre-pec implant reconstruction on the other side. Thrilled to be able to meet some wonderful ladies going through their own individual version of this challenging life journey! Can’t wait to meet you all xxx
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Hi EMAC, Just wanted to say 'hi' - I've also recently been diagnosed (6th April) but with a grade 3, Oestrogen & Progesterone positive (lymph node negative) cancer. I can't really offer any treatment 'pearls of wisdowm' - I've had a lumpectomy (5 days after diagnosis!) and am still waiting on test results (it's all i seem to do atm) to find out what treatment might be best for me. But I do have a 4 year old little boy. He's at preschool 3 days a week, and is due to start primary school in September. One of the first people I told was his pre-school, knowing I was going to need their help in all sorts of ways to ensure he has some sort of normal / familiar / stable / ... in his little life. And they have been amazing - offering far more support than I had thought about. I also sent them a link to "Mummy's Lump" - if you haven't been given a copy yet, ask your Macmillan nurse for it - so they knew what he was being told. I think, atm, the hardest part for my son is that I can't pick him up when he wants - I used to give him piggy backs, and carry him in a sling and all sorts, especially as my husband has a back problem and also can't do these things. Having had surgery, and he's seen the scars, I think he better understands why, and has become more gentle with me (on my 'bad side' at least!) 🙂 Only thing I can think to add is, remember "don't be afraid to ask": whether that's asking your doctors every question 10 times to help you understand what's happening or your family & friends for support with looking after your children / buying groceries / cooking meals / cleaning the house...
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