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Daisy200
Member
since
12-05-2018
38
Posts
8
Hugs
27-08-2018
11:41
I've got an appointment on September 20th to discuss this drug, I'm really in two minds about it. I was initially told my cancer was slightly E+ and my initial protocol was lumpectomy/radio/letro, This was from the biopsy. Post surgical analysis of the tumour I was told the E+ was so low it was being disregrded. Yay I said. No they said, this means you need chemo. Oh, i said. So I did the FECT followed by the radio and on my last session, just as I thought I was about to walk free, my onco mentioned the letro again. I did tell him he'd disregarded the E+ once and he agreed and said he wasn't going to insist, He has said that he'll look into risk/benefit of it for when we next meet. I don't want to, I think I've done enough.
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12-08-2018
03:48
Hiya, i just carried on with the gel nails I've always had and mine have hung on in there. On the advice of my onco I used much darker colours than I normally would in summer. He seemed to think that ladies that wore darker colours kept their nails better and thought it might be something to do with UV protection, although he did say he was only guessing. Worked for me though. xx
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06-08-2018
11:15
1 Hug
Hi Swimmer, I've just gone back to swimming after my treatment ended. My surgery was late December, so fully healed from that. I wasn't comfortable with the idea whilst on chemo, worried about infection with low immunity etc. Pretty much got in the pool after the end of radio as my skin was intact and I just felt the need to be doing something normal. It's been great xxx
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30-07-2018
01:06
I think it was +2, might have been +1, I'll get the old letters out and check xx
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29-07-2018
06:21
Hi Sunflower, I've been dairy free all my life (allergies) and still ended up with slightly E+ breast cancer. I've never done the soya milk thing either, so can't blame that.(Apparently high in plant oestrogen). We've been through enough without blaming ourselves on what we did/didn't do. Eat the cheese. And the icecream, and the cake. And drink All The Wine xxxxx
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29-07-2018
01:35
Hi everyone, just looking for thoughts, experiences and feelings about Anastrozole. My original diagnosis at biopsy was that my tumour was weakly Estrogen positive, but after removal and examination of the actual tumour, my oncologist decided that it was so weak he was going to disregard it. That changed the course of my treatment to include chemo (FECT) as the cells themselves were grade 3, although all the other signs were good. (No vascular invasion, no lymph node spread etc). So having done all the surgery, chemo, radio etc I was a bit shocked when he asked me to consider Anastrozole. He did stress that he wasn't going to push me as I was so weakly E+. I asked about side effects and was told about the fatigue (Yeah, great. I'm not already on my last legs after the last eight months), joint and muscle pain (Love it, bring it on) and the osteoporosis kick. That one actually does worry me a bit as I've been lifelong dairy intolerant so probably not in bone ace shape anyway. We've arranged to meet again at the end of September and he has said that he will do some finding out about the risk/benefit thing for such low E+. To tell the truth I'm just battle weary of the whole thing now and not sure if I can face another five years of a drug regime. I'd really appreciate your thoughts and feelings about your experiences and choices ladies. I feel so in limbo, it feels like the goal poasts have been shifted just as I was crossing the finish line. Sorry about the mixed sport metaphors, but that kind of sums it up. Love Daisy x
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16-07-2018
12:20
Hi, I'm no medic either, but I would have thought that if there was any significant risk, even a tiny weeny one, that it would have to be discussed before starting. Considering all the side effects and risks that are pointed out and discussed at length with every other aspect of treatment, I can't see how they would not with cold capping and brain cancer. My conversation with my onco was literally "I don't want to lose my hair" "Well let's try cold capping then" If there was a risk and it wasn't discussed with all the women that have ever done it, their legal bills would be astronomical by now and it would be something that woud also hit the media with a tidal wave of coverage. Mine was incredibly succesful, no noticible hair loss at all on FECT. If I could have cold capped my eyelashes, I'd have done that as well. Keeping everythng crossed for you that things turn out ok xxx
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08-07-2018
11:22
Hiya Willie,, it just so happens I'm doggy sitting for the next two weeks. We could meet up somewhere pretty like Elvaston Castle and walk the pooches xxx
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03-07-2018
05:42
Hi Willie, I've just finished FECT and I live in Derby too (well Draycott, just outside), if you want to meet up and chat about the chemo etc xxxx
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01-07-2018
03:31
Just finished my chemo and I was a very reluctant starter. If I could have dodged the chemo bullet I definitely would have. I wasn't doing it right up until the first day. The thing that changed my mind was my oncologist. On my first meeting with him he said to me that we had met before. 18 years ago I had kidney cancer which was treated surgically by the urologists and I lost my kidney. I had one onco appointment, which to be honest I'd forgotten about. I was told off for coming in by myself and then he told me I didn't need chemo or radio and he left me under the urologists. He'd remembered that (and put a sticker on my star chart for bringing someone with me to this appointment) and he reminded me of our conversation. Then he said to me that I knew he wasn't the kind of consultant that put people through chemo if they didn't need it and that this time I did. So for what it's worth and I realise this is just one experience, if they have said you don't need it then that's good enough for me. They definitely tell you if you do. It's a pretty **bleep**ty experience and takes a lot of getting over. I'm just glad mine is behind me now and I'm not sure I'd do it again under any circumstances. I cold capped succesfully btw, and I'd always say to someone to give it a go. Keeping your hair definitely helps you to put it behind you and move on xxxxxx
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01-07-2018
03:18
FEC-T and Paxman cold cap here too. Didn't lose any hair, well not that I could notice. Lost everything else including lashes and brows, so it was definitely the cap that kept it there. Give it a go, if it doesn't work you'll be no worse off and if it does you'll be glad you did it. Good luck on your journey xxxxx
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19-06-2018
12:29
A young friend of mine, who had breast cancer before I did when she was just 30, also had her embryos frozen. She had a double mastectomy with reconstruction and did the chemo. She's just announced on Facebook that she's 16 weeks pregnant after having her baby put back inside her. There is a light at the end of this dark tunnel ladies. xxxx
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16-06-2018
02:26
Mine came out in the last six weeks or so. Three weeks since last tax and I can feel my eyelashes are starting to come back but I can't really see them yet. I mascara'd until there was nothing left to bother with. I'm loving false eyelashes now, wear them all the time. Took a bit of getting the hang off, but there's some great youtube tutorials, mainly done by sixteen year olds, showing how best to apply them. My eyebrows were rubbish anyway, due to many decades of over plucking so I was pretty much painting them on before chemo.
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16-06-2018
02:17
1 Hug
Totally with you on wine hurting. You can feel it go all the way down. I persevered though 🙂
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16-06-2018
02:15
1 Hug
Definitly one of the worse tax side effects, but like everyone says it doesn't take long to get back to normal, it just feels like a bloody eternity. I basically lived on black coffee, ice cream and tangfastics. Not great as I'm dairy intolerant, until I discovered Ben and Jerry do dairy free, which is probably the reason I lost no weight. I decided after tax 2 that fruit was the answer, spent about £30 on every fruit available in Tesco then sat and watched it rot. Three weeks since my final tax and pretty much back to normal now, just the occassional hint of the dark times. I too sat and cried over wasted meals that tasted vile and couldn't be stomached. I still can't look bread in the face.
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05-06-2018
06:13
Hi, I've just finished my chemo and worked through pretty much all of it. I teach, but don't work Mondays so I'd have my treatment Thursday, take the Friday off and be pretty much ready to be back by Tuesday. The first four cycles this worked well (and the Easter holidays dropped right for me too). I did 3xFEC then 3xT, and I don't know if the T is harder or it just gets harder the more times you do it, but I found round 5 harder to bounce back from and did take some time off the following week. My final one fell just before half term, but I know that I would have needed that week off if it hadn't been holiday time. Listen to your body, we're all different and our jobs etc all take different things out of you xxxx
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05-06-2018
06:03
1 Hug
Hi, I kept my gel nails all the way through chemo. I didn't see the advice about darker colours until quite near the end, but my consultant said the same about ladies that keep polish or gel on seem to do better. He didn't really know why, although he suggested that having paid all that money out it might just be sheer bloody mindedness that keeps them on. (He is hilarious like that). I have cold capped and kept it, so very lucky there. I'm quite keen to get it coloured soon, so if anyone has any ideas how soon after chemo that can be done, I'd be interested to hear. Nearly two weeks since my last chemo, just starting to feel normal (ish). Don't start radio until June 21st, so feel a bit like I'm on holiday from treatment. Back to work tomorrow. I'm a teacher so looking forwards to chatting with my Y10/11 girls about the best false eyelashes and the best way to keep them on. Theirs always look amazing whereas I feel I've done well if I don't actually look like I've got hairy caterpillars on my eyelids.
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01-06-2018
11:08
Hi ladies, I'll be a June starter too. Already had my planning scan etc, but first time will be June 21st. Three weeks plus a week booost. Are you all/most/some doing this after chemo? I'm still reeling from the end of the FEC-T and so emotional. It's the gift that just keeps on giving isn't it? If I'm absolutely honest I just feel like giving up with it all, head in the sand and a new identity/NHS number so they stop wih the constant letters and appointments. I know it's irrational, but it's what I want.
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01-06-2018
10:53
Morning ladies, I finished FEC-T last week, if I can be of any help at all. Good luck to all those starting or on their journey xxxx
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