Hi I am in the same position 2 lumpectomies and then mastectomy, invasive lobular, grade 2 none in lymphs. Jan 2016 First Letrozole which really effected joints and I was so low. Could hardly walk. Had a break been on Exemestane since last October, seemed easier at first was so pleased thought I could come, but then started in shoulders neck head hand and feet. Every morning can hardly walk, I 'm 65,( but a young one) she says laughing to herself I used to be !! Was also leaking, and crying all the time, life just seems very hard at the moment and I sailed through all my treatment. The thought of feeling like this for 5 years never mind 10 devastates me. Have been off for 3 weeks and do feel better still a bit achey but have joined the gym My Oncologist says if I was to exercise every day I could come off the tablets, it's such a frightening situation, quoted me an 83% chance if recurrabce with 4% more with the tablets have not tried Tamoxifan .as yet, what do you do it's such a risk, so worried. Best wishes to everyone with this disease thought I was doing well but really struggling, got good support but they just want to me say I'm fine .
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