Absolutely Suzy ! I so agree with everything you have written. My breast cancer nurse once said to me, when I was wrestling with a decision right at the start of my treatment, that stats and opinions of medics are good, research very helpful, information gathering important, BUT a psychological 'comfort' about a decision on the part of the individual is most important. Sometimes you need to search your heart and head (and life experiences you mentioned) for what is right for you, and not feel pressure or guilt. Nobody wants to have regrets, or look back on something and think they did the wrong thing, but ultimately we are all individuals and are 'in charge' of our own bodies and know ourselves like nobody else can. Treatments and surgeries are a choice, they are a choice that I would hope everybody takes if they are relevant to them based on the advice of the professionals, but nobody has to. Nobody is right and nobody is wrong - everyone is just as you say - different. Hi Tili ! 😘
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Hi I am in the same position 2 lumpectomies and then mastectomy, invasive lobular, grade 2 none in lymphs. Jan 2016 First Letrozole which really effected joints and I was so low. Could hardly walk. Had a break been on Exemestane since last October, seemed easier at first was so pleased thought I could come, but then started in shoulders neck head hand and feet. Every morning can hardly walk, I 'm 65,( but a young one) she says laughing to herself I used to be !! Was also leaking, and crying all the time, life just seems very hard at the moment and I sailed through all my treatment. The thought of feeling like this for 5 years never mind 10 devastates me. Have been off for 3 weeks and do feel better still a bit achey but have joined the gym My Oncologist says if I was to exercise every day I could come off the tablets, it's such a frightening situation, quoted me an 83% chance if recurrabce with 4% more with the tablets have not tried Tamoxifan .as yet, what do you do it's such a risk, so worried. Best wishes to everyone with this disease thought I was doing well but really struggling, got good support but they just want to me say I'm fine .
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