Breast Cancer Now Forum

Hey, kip I can feel your pain mate, I know how difficult is to stay calm and relax in hospital, but as a gamer, I prefer to keep my console with me in my room I know it's sound so weird but that's what I want to do instead of listing music and lying in a bed whole day I prefer logging to  Ubisoft Store coupons  and playing game which is helping to keep you distracted from the hospital atmosphere and keep you motivated. ... View more

Hi - I’ve been ok on tamoxifen which is good. Hope you are doing ok. Mel x ... View more

Hi Cat Really enjoying the walks!  I have been in our local shop but am avoiding the supermarkets for as long as I can Stay safe Jude x   ... View more

Hello you lovely lot!  So good to hear from you all.  Gaby, I hope you're enjoying Italy. I'm sorry your husband is low - it does have a way of catching up with you when you least expect it. I think the best way forward is to talk to him and keep talking to him. I found that helped with Eve and Stuart. It must be so difficult for our loved ones. Lisa - that's fab news re your wig. I bet you're rocking your hair now. Mine is wavy and darker. I kinda like it, altho I have no control over it! I hope your house move went well. I think it's perfectly normal to have fears re aches and pains. I'm just the same!  Aley - I'm not surprised you walked out of the talk. I'm sorry you had to endure misdiagnosis and all that terrible stress you must have gone through. What are you thinking about re work then? New career or volunteering or something else entirely? I'm currently in Tenerife. I have another glorious 12 days here and I'm loving it. We're in the middle of no where, up a mountain and the drive up to the house is scary as hell. It's beautiful tho and we have an indoor pool that I'm using to it's full advantage! It just feels nice being warm, sat in the shade and thinking about what a roller-coaster ride this last year has been. It's so good to see Eve and Stu having fun in the pool and us all just relaxing with no appointments to go to.  I'm still having Herceptin til end of Dec and they started me on 6 monthly infusions of Zometa (zoledronic acid).  The Younger Women Together conference I went to was amazing and really changed my outlook for the better. I'm definitely coping better with everything. I even had secured a volunteer role with Breast Cancer Care as a Moving Forward course volunteer. I start my induction/training next month in Sheffield. I'm so excited to start it.  Right, I'd best try and sleep. It's so fecking warm. Least I can't tell if I'm having a hot flush anymore! 🤣 Lots of love to you all and I'll try really hard to be active on the site and keep in touch.  Love D xxxx ... View more

Hi Mel,   I forgot to update, I didn’t have more surgery in the end and am still on antibiotics, 5 weeks and counting. Slight improvement in skin redness but it’s just sooo slow it’s starting to get me down a bit.   What hormone therapy are are you having every 3 weeks? I’ve been told I need tamoxifen but that’s a daily tablet for years I think - am seriously considering turning it down having read up on it.   Got consultant appt tomorrow to see how she thinks it’s all going. Meant to be back at work on Monday but can’t see that happening!   Good luck with the RT I’m sure you’ll be fine, let us know how it goes   Kate x ... View more

HI Jem   I’ve got my last T on Tuesday so can’t wait to get through the next couple of weeks, I’m still very tired but just want to get it over & done with! surprisingly my nails have been ok, they have not stopped growing & although I have shellac on them every 3 weeks my nails look good underneath. Good luck with the tamoxifen - I’m hr- so I don’t need that but hope you cope ok - I’m 56 & have been through the menopause so I do understand but mine was over a couple of years - not thrown straight in like you! My house needs a mega spring clean but I’ll worry about that next year... I’m still walking most days but only 2-3km as my tiredness is catching up with me but am aiming to start jogging in the new year as I would like to be able to do a 5km race for life in the summer    Take it easy   Jude x ... View more

Oh no how miserable for you - hopefully you are feeling a bit better now though ? ... View more

Hi Kezza. Sorry for the late reply.  I had to wait for a referral to my local hospital, but have now spoken with the consultant and my decision is to have a bilateral mastectomy.  I do have to see a clinical psychologist on Tuesday first as apparently it’s to show that I have made the decision for the right reasons, then my op is planned for this Friday.  You are so right when you say that it does feel better to have a plan in place.  Best of luck for your operation x  ... View more