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ice_cc
Member
since
01-07-2018
67
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15
Hugs
08-08-2018
03:44
Same here... to chemo or not to chemo, that is the question 😂 Fingers crossed for you! I find out at some point next week X
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08-08-2018
02:08
Hi ladies, Thanks for you responses! Still no sick note from either the GP or surgeon, although the breast cancer nurses said they'd chase one up for me. In the mean time I'll check out what I'm entitled to in terms of paid sick leave at work. Very tempted to just take time off straight through until the end of radiotherapy if I can do that. If it turns out I need chemo then I'll have to re-evaluate whether I can afford to be off for longer or not. Feeling much better after the company of friends over the past two days, but my partner had a bit of a wobble this morning when my dressings came off. He was pretty shaken up, then got grumpy about being late for work... I think he's struggling a lot though and I'm doing my best to support him (and myself). Caroline x
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08-08-2018
02:03
1 Hug
Hi Jill, Not too bad here thanks lovely! My dressings fell off after I showered this morning so I had a little moment of mild trauma over how the scars look, but feeling better already after some company and a cuppa. How's everyone else doing? Nice to have some cooler temperature finally! Caroline xx
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07-08-2018
10:54
1 Hug
Hi ladies, I'm approaching a week since my WLE and SNB and seem to be healing up ok now after suffering from a lot of bleeding for the first few days. I've got a decent range of motion back in my arm and the pain is generally minimal. I'm doing a bit of work from home here and there, and had considered maybe even going into the office this week, but I feel more emotionally drained than I thought I would and even cried this morning when a friend had to re-schedule coming to visit for a cuppa! I also cried on the phone yesterday when my GP said they couldn't give me a sick note and that my surgeon would have to do it (not sure why they didn't give me one when I asked for it in hospital). I'm usually much tougher than this, and feel like an idiot for not being able to pull myself together and get on with things, but all I can think about is getting the pathology results (hopefully next week) and finally finding out what my programme of treatment will be. I'm also waiting for an appointment to start ovarian stimulation and embryo freezing, which could come through any day now. It's all just a bit much. Is it weird to take a full 2 weeks off to recover at this stage? I'm desperate to get back into sport again, but my brain just isn't functioning properly to let me concentrate on work (I'm a lecturer and researcher). Caroline xx
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04-08-2018
08:54
Hi Maggie, Good news about the size and grade, fingers crossed the other is nothing to worry about 😊 Frustrating that surgery will take a bit longer but you'll get through it!! I'm feeling much better, if still a bit leaky 😂 Caroline xx
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03-08-2018
03:54
Went in and got the incision glued up this morning and an extra thick dressing put on. Only half saturated so far! 😬
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03-08-2018
07:27
1 Hug
Second dressing soaked. Ah well, back in this morning to see nurse! Haha. Must have runny blood 😂
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02-08-2018
04:50
I've never had surgery before this, but I bruise very easily. They put on a few steri strips to help close the wound more when I went back in today but the bleeding still isn't stopping. Hoping I'm light headed due to anaesthetic after effects rather than blood loss, haha
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02-08-2018
04:12
I've to go back in again in the morning if the bleeding hasn't stopped. They asked if I'd taken aspirin or drank alcohol before surgery (I hadn't!) so I guess this isn't "normal"...
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02-08-2018
03:15
1 Hug
Went and got the dressing changed an hour ago but they're wondering whether my blood isn't clotting properly as it's still bleeding (and has already half soaked the new dressing!). Fingers crossed it will stop soon; feeling a little woozy! I'll keep my fingers crossed for you Maggie! Let us know how it goes 🙂 Caroline xx
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02-08-2018
08:23
The ward was closed when I called last night so I guess I'll call the nurses at the breast cancer centre today to ask for advice. I don't think I can keep the dressing on for a week now it's saturated and leaking?
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02-08-2018
08:00
1 Hug
Hi Maggie (and everyone!) I had my op yesterday (wide local excision and two lymph nodes removed) and was let home in the evening. Everything went really smoothly in hospital. The radioactive injection to find lymph nodes was no worse than an insect sting, and general anaesthetic was awesome, I woke up away with the fairies and had my appetite back almost immediately. I am pretty sore though, particularly under my arm, so I'll be taking it very easy. Also, they didn't put in a drain and one of my dressings was soaked by the end of the night and started leaking (ewww!) so I guess I'll need to go get that changed today. All things considered though, it's really not worth worrying about the procedure. Spend energy recovering and eating chocolate instead! 🙂 Fingers crossed for clear nodes now... Caroline xx
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28-07-2018
07:34
2 Hugs
Hi Maggie, I hope your MRI goes well (the process is nothing to worry about, and I'll keep my fingers crossed that the results are as good as they can be!). I was referred to the fertitlity clinic the day after I found out I had cancer, and they plan to cram in a cycle of ovarian stimulation and embryo freezing after my op and before I start any other treatment. I think this threw me more than the cancer diagnosis to be honest... I'd never really thought about children but all of a sudden it seemed like an important thing to consider. It's a lot to take in and deal with on top of everything else. I really hope there will be an option for you if you want it xx I'm a little worried about the op, and more specifically the after effects. I do a lot of rock climbing and other exercise and I suspect this will put me out of action for quite a while 😞 Now just have to hope the lymph nodes are clear and the lump isn't bigger than the ultasound suggested. Hope you're managing to enjoy the summer anyway? 🙂 Caroline xx
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26-07-2018
07:57
1 Hug
Hi Maggie, I got a very similar diagnosis just a couple of weeks ago (stage 1 or 2, ER+, HER-) and will have a lumpectomy and sentinel lymph node biopsy on Wednesday. I'm 31 and the shock seems to be getting worse as the days go on, but now I'm really looking forward to getting the little bugger out of me!! When's your op? From what I've read in this forum and elsewhere there's really very little to worry about 🙂 Caroline xx
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23-07-2018
04:52
Got results today to say that the cancer is ER+. Hoping that's a good thing as they might opt for hormone treatment instead of chemo?? Desperate to just get on with treatment now and starting to worry that the lump has got bigger. On a positive note, I had a lovely lemon pastry today
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20-07-2018
03:46
Thanks for all the lovely, helpful responses ladies! It's been a whirlwind couple of days and my partner and I were given 24 hours to decide whether we wanted to freeze eggs/embryos or not (quite a lot to take in for someone who has really never thought about kids until now!). Currently looks like lumpectomy plus some lymph nodes on 1st August, followed by a cycle of IVF (freezing the embryo for future use), then radiotherapy, then chemo and/or hormone treatment, OR possibly chemo before radiotherapy, the doctors don't know yet if I'm ER positive or negative... argh! I'm struggling more with the impact on others than with how I feel myself at the moment, and my partner seems to be taking this much harder than me. I've also eaten way more cake than I should as a coping mechanism! I've had more letters in the post already for various appointments etc than I can shake a stick at, including a request to take part in some research, which is all just a bit much 4 days into my diagnosis! I'm not used to not being in control of things, and feel a bit like I'm on a really fast train than won't stop. Aside from all of that, I just want this thing out of my body now as I hate being able to feel it so easily! Caroline x
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18-07-2018
12:03
Hi everyone, I was diagnosed with stage 1 or 2 invasive ductal cancer yesterday after finding a lump a few weeks ago. The consultant was really surprised with the result given my age (31), and they've said they'll be treating it aggresively because I'm young. Surgery in two weeks followed by radiotherapy, and the doctors don't know yet whether chemo and/or hormone therapy will be needed... I've never been under general anaesthetic before and I'm a little worried about it. Any words of wisdom on how to prepare for this and for the radiotherapy? What should I expect realistically? Will I be able to work or need time off?? I've also been told I need to go to the fertility clinic... I've always been adamant that I don't want children, but all of a sudden the thought of fertility being an issue in the future seems scary. So much to take in. All a bit surreal at the moment, but so glad now that I regularly check myself! Caroline x
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17-07-2018
01:34
Got the results back this morning... grade 1 or 2 invasive ductal cancer I had prepared myself for the worse just in case, and very glad I did now. The consultant said the team were all very surprised by the result given my age and otherwise very good health; they were convinced it would be a fibroadenoma. Surgey in 2 weeks followed by radiotherapy then we'll have to see what other treatment might be needed. Time to get the boxing gloves on! I'll keep my fingers crossed for better news for you Julesy! xx
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10-07-2018
12:34
I'm in same position. I've just been given an appointment to get my biopsy results and wondering if an appointment is more likely to mean bad news than a letter... I suspect it's just good practise to provide/discuss results in person and it doesn't mean there's anything to worry about. They might have even just forgotten about your request to hear via letter by preference? As for taking your husband along with you, I was alone for my initial appointment and even the biopsy came as a shock. I wish my partner had been there then, so I'll be dragging him along to my appointment just in case! If it's good news then it'll be a nice excuse for a tea and cake date! Wishing you all the best and keeping my fingers crossed for you C x
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10-07-2018
11:56
I've just heard that I have an appointment to get my biopsy results early next week (I'm currently abroad which is massively frustrating). The receptionist told me a while back when I phoned to ask how I would get the results that they can come via letter or appointment... I really hope being called in doesn't mean bad news 😞
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