Breast Cancer Now Forum

Hello All,    Please could anyone tell me if they have triple negative breast cancer and have found CBD oil to be helpful not just for pain but for slowing the growth of tumours? Thank you   lisa ... View more

I am so sorry Chris to hear about your wife and saddened by the impact on you all x   I too have triple negative breast cancer that has metastasised to my skin and is spreading quite rapidly. Although I am now on Eribulin chemo, after 2 cycles I cannot yet see an improvement.   I looked up the work of professor Andy Tutt which looks hopeful though still early days. Have you thought about a second opinion to The Christie, Royal Marsden or Guy’s. Also molecular intelligence is a good way of understanding the makeup of the tumour and options for treatment or trials.   i have good days and bad days and although a bit older than your wife (55) am not ready to contemplate dying. If she would like to communicate/chat, I am very happy to do this.   Hoping and praying for some positive treatment and support       ... View more

Thank you so much x this is encouraging. I would love to hear more of your experience which I feel would give me some hope. How long was it before you saw a response to Eribulim. Do you do any manual lymphatic drainage for your arm? My hand is like a pudding at the moment but I don’t think there is anywhere for the fluid to go. I wear my sleeve all of the time, except bedtime.   thanks so so much xx ... View more

Hello    i have secondary TNBC in my skin and started Eribulim 5 weeks ago. I have just done 2 cycles. I notice no change. The lumps are springing up daily and I don’t have any real side effects.    Is it it too early to see a response? Does TNBC even respond to chemotherapy? I would love to hear from anyone who has a similar experience or has had a positive response to treatment. I also have lymphodema in my right arm, which is a big ‘inconvenience’ and I worry that I’ll soon have it in my left arm as the TNBC is now in the lymph under my left arm.   in spite of this I do look and feel incredibly well. We’ve just come home from a weekend in London and I walked and we packed a lot in, despite having day 8 chemo on Thursday.   Love and  best wishes fellow Eribulim and forum ladies. Xx ... View more