Breast Cancer Now Forum

sorry, I meant to say 1.5 cm long ... View more

I’m on Abemaciclib, and haven’t had problems swallowing, as they are soft, not rigid like Paracetamol caplets. They’re also smaller and thinner. About 1.5 cm wide and 1.3 cm in diameter ... View more

Hi Pussy and Kay   I’m new to the secondary breast cancer forum so haven’t quite got the hang of it yet, and I do apologise as I have now read all your posts, but when I first replied I just thought it was someone who wanted to know if anyone is on Abimaciclib. I do hope that you can still keep going and keep strong for as long as possible despite treatments not always working. The name I have registered as is Monarch 3 as that is the name of the drug trial I’m on. I do wish you well.   Lots of love from Jane xx ... View more

Hi   just noticed your post. I’m on Abimaciclib with letrazole as part of the Monarch 3 drug trial. Started in March 2015 and so far have no further progression of the cancer in bones, which was already showing extensive spread before I started treatment. All is well, although I had to reduce my dose to 2 tablets twice a day, which is better for me, as I found the side effects too troublesome. I noticed that some of the posts in relation to Pablociclib actually showed that the bone cancer had reduced or disappeared in some places. Mine has just stayed stable. I remain on the trial until the treatment stops working. The research results look good. I’ve been told it’s the latest breakthrough in the treatment of secondary breast cancer.   Have you started it yet? I’m 61    Best wishes xx ... View more

Hi I was diagnosed in March 2015. What a shock after living with pelvic pain for years, and then having to hand in my notice at work due to extreme fatigue. Despite numerous doctors visits and being told I had to live with the pain, and there was nothing wrong with me. I am now on Letrozole as part of the Monarch 3 trial, and on injections for the bone cancer, which is extensive. I’ve reduced my trial drug to 2 tablets twice a day which has been better for me in terms of managing the side effects. Would be good to hear from anyone. My cancer has not spread any further so far since starting treatment. Best wishes to everyone in the group. xx ... View more