Breast Cancer Now Forum

Hi Jane , I do know how you feel I was diagnosed with breast cancer 1999 .Was in remission for 18 years .I was devastated to find out , it had returned 3 years ago. To be told it’s incurable, was so hard to take in , just thought well that’s it .Three years on am doing well ,so many new treatments out there .My oncologist says , it may not be curable , but definitely treatable .Hope this helps xx ... View more

Thanks for reply Nicky am on the low dose , apparently it has to increase next month .Am really dreading it .Am living on pears and ice cream.Let’s hope they improve soon x ... View more

Such fantastic news gives us all a lift xx ... View more

Hi Nicky thanks for reply, fingers crossed I can go on this treatment, just awaiting blood test results. Gosh rash sounded awful poor you , sounds like a plan us starting up thread . At hospital Thursday, so might know a bit more then xx ... View more

Hi Nicky am hoping to go on Alpelisib when it becomes available to me .They are just confirming I have PIK3CA. At the moment on Exemestane/Everolimus.How are you getting on with new drug , and how many months have u been taking it xx ... View more

Hi Lindyloo have just started treatment on exemestane and Everolimus , did it give promising results .Was on palbacilib for 2 years , which kept it stable for 2 years .Worried about side effects on these new drugs , but hopefully won’t be too bad .Many Thanks x ... View more

Hi Lucy yes your right there , am not going to look anymore ,maybe lol .Did you say you have started treatment now .Lets hope we don’t suffer with many side effects fingers crossed and the drugs do their job .Lets both stay strong and positive. We’ve got this xx ... View more

Hi Lucy I think we all tend to google things about cancer and treatments. I was told I may go on drugs exemestane and Everolimus,so looked them up straight away.Yikes wish I hadn’t , so if there are any ladies on this cocktail of drugs , can u tell me how you are doing .Am panicking just like u Lucy , why do we look these things up lol xx ... View more

Hi Lucy hopefully will start on some form of treatment next week .So sorry to hear you have skin mets .Will you need to change treatment, or carry with the same drugs x ... View more

Hi Lucy so kind wishing me good luck .Am back at hospital Monday , having a special blood test , as they believe I carry a faulty gene mutation.Have already been tested for braca gene , which was negative. Was hopeful to be offered a trial , but not this moment in time .They are going to discuss new treatment for me x ... View more

Hi Lucy thanks for reply will have to look up treatment you are on .Am speaking to oncologist Thursday, yes we must both stay positive, and your right it’s so dam rubbish this cancer .Will let u know how I get on x ... View more

Hi Ramade how are you , haven’t spoken in a while.Unfortunately mets have been found in both lungs and on chest wall .So hopefully will be starting another treatment, feel like I’m back to square 1 .Disappointing but that’s cancer for you , so feeling pretty down .x ... View more

Hi Lucy have just been diagnosed with lung mets .Have been on palbacilib for 2 years which kept my cancer under control. So it was a huge shock to hear cancer spread to lungs .Am not sure of next treatment, but will be having biospy scans etc , and then they will decide what’s best .Feel pretty down at moment x ... View more

Hi Sazzle Such great news so happy for you .Gives us all hope x ... View more

Morning ,yes it is secondary breast cancer .I believe it’s stage 4 grade 2 .I also have a large tumour at bottom of spine , it’s a scwannoma .Had a biopsy on that too , pain was excruciating. It’s also called a nerve sheath tumour .lets hope our scans go well x ... View more

Hi Madonna , Gosh same thing happened to me , they kept saying it was a trapped nerve , I was in so much pain knew it had to be something else .It took 6 months for it to be diagnosed.. They were reluctant to do biopsy , but they did manage it , yes in pain with my arm , plus hand and fingers .We are having same treatment, been on ibrance and letrozole for over 2 years now .Let me know how your scan goes , I am having mine Thursday. I Havnt come across many people, with our diagnosis .Will keep my fingers crossed for you , that scan goes well x ... View more

Hi Madonna , my cancer also returned in brachial plexus after 19 years .I did have a biopsy on mine , it can be quite a difficult procedure, but I wanted it done  ... View more

Hi Annie I will do , get new prescription in a couple of weeks .Hopefully pharmacy stocks that brand and can get it for me .If you saw me trying to get in and out of my car , it’s a sight to see, look and feel about 90 lol .Thanks so much for your help , hopefully side effects will improve  ... View more