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Moiramomap
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since
17-09-2018
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27-06-2019
07:57
No real information yet x I'm waiting for someone like me x I spoke with my local pharmacist. She was very helpful when I was hurting from the anastrazole x my breast care nurse said that they might shift me to a different brand of anastrazole but pharmacist said that that wouldn't be helpful as the binding agent is the only thing that is different x the drug is still the drug x I felt she gave me good info in order to go well informed to discuss with breast care nurse x I was able to say I didn't want a different brand of Anastrazole. I am also attending the chiropractor to establish if there is any other cause of the body stiffness x she is working on various areas to try and loosen things off and she recommended I didn't make any rash decision to stop hormone tablet until she'd worked on all the tightness in my body x I went into the menopause after chemotherapy for bowel cancer in 2002 and didn't suffer any body pain like this x so I'm looking at all my options first before I make a decision x I will take all the advice to my breast care nurse when I've gleaned it all x Just heard a bit on TV about CBD oil - wonder if anyone has tried that?
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23-06-2019
03:04
Thank you Evie-S for your hug which is most welcome x interesting you should speak about tamoxifen as yesterday I saw lots of posts about Tamoxifen and similar side effects and I am not sure whether I feel encouraged to try it x I am going to speak with some of the volunteers at Someone Like Me - I've found this hugely helpful at the early stages of diagnosis - and see if there's a glimmer of hope from their experiences x armed with that information I will again talk to my Breast Care Nurse and see what she might suggest. This is my first visit to the forum and already it has been so encouraging so thanks so much x I have taken it all on board x hugs right back at you x I hope otherwise you are getting stronger ❤️
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23-06-2019
12:03
Hi there and thank you so much for your reply to my post - it is pretty awful isn't it - the nurse I spoke to on the helpline said almost half the calls they get are about side effects of hormone tablet. I was reluctant to ask for a change but - yes - you are right - they both have produced the same side effects and I'm finding it extremely demotivating. I'm a go get em kind of girl - never put off till tomorrow and all that - but I'm neglecting the house and the garden and that's just not me. I'm too scared to just stop the hormone tablet - I def don't think it's the infusion of bisphosphonates - I don't seem to have had any reaction to it at all apart from first one after which I felt grotty. If you haven't tried the Someone Like Me service through Breast Cancer Care - I highly recommend it - that's my next port of call tomorrow to speak to other people who have gone through all this and maybe glean some more information/suggestions on how to deal with it - I only usually need pain killers at bedtime but like you it's after sitting and on waking in the morning that is worst. I hope you continue on the road to wellness and find something out there to help you - it definitely helps to know we aren't alone - all the very best for now and thanks again xxx
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22-06-2019
03:05
I had a left mastectomy in August 2018 followed by 3 FEC chemo cycles - I am currently receiving Herceptin 3 weekly (1 year) - bisphosphonate infusions (6 monthly for 3 years) and hormone tablet. I started on Anastrazole in January 2019 and fairly soon experienced pain in my shins, forearms, elbows - it didn't prevent me from doing anything but was fairly unpleasant. On contacting Breast Cancer Care helpling and speaking with volunteers from the Someone Like Me database - I was advised to give it at least three months to see if there was an improvement then contact my specialist nurse. I didn't find an improvement and was changed to Exemestane early April and was encouraged initially as the pain didn't seem so bad - but now find I am most uncomfortable - not so much while on the move but after sitting or when I waken in the morning - everything hurts - even the palms of my hands and soles of my feet. The radiographer who did a recent bone scan said it was likely to be the hormone tablet rather than the osteoporosis in L2/L3 and osteopenia overall. So here I am six months in and I'm thinking I don't think I can endure this for another 4 1/2 years but I'm afraid to just stop it. I understand the bisphosphonates can cause some joint/muscle pain but I recently had the second of these and the pain has always been there and hasn't got worse since the infusion. So - what to do - I'm finding it hard to motivate myself to do much - after sitting and first thing in the morning I am so stiff to get moving again - I feel as if my ankles have fused and it takes me a few minutes to get fully mobile. I am constantly aware of the various places it hurts most - I only need paracetamol usually at bedtime as I'm OK when moving - just worse after I've sat down for a bit. I am going to speak with Someone Like Me Again but wondered if anyone else out there is finding this body pain totally demotivating and whether anyone has any advice on what it would be best to do - thanks in anticipation
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