Breast Cancer Now Forum

Re: hats, I've got this one: https://www.amazon.co.uk/LILYSILK-Womens-Sleeing-Bonnet-Mulberry/dp/B012ER5I6M/ref=sr_1_7?ie=UTF8&qid=1545384011&sr=8-7&keywords=silk+bonnet%C2%A0. It's great - really comfortable, warm etc. ... View more

Hi all, For those of us coping with hair loss - my sister bought me a silk cap to wear in bed: https://www.amazon.co.uk/LILYSILK-Womens-Sleeing-Bonnet-Mulberry/dp/B012ER5I6M/ref=sr_1_7?ie=UTF8&qid=1545384011&sr=8-7&keywords=silk+bonnet  It's brilliant! Very comfortable, keeps my head warm (I am cold capping but have still lost lots) and keeps hair from shedding all over pillow, bedding, dressing gown etc. I've taken to wearing it round the house during the day too. Hope everyone has the best Christmas possible, given our circumstances... ... View more

Sals, I've been working on and off - I had two days off for the chemo, but since then have been working from home (3 days) and going in to the office (2 days). Luckily my work have been brilliant and are letting me decide what I am capable of. I've been much more tired than usual, so have only been doing 4ish hours in the office - I'm hoping to build that up a bit over the next 10 days or so until my next chemo. I find that if I don't demand too much of myself it's much better all round! Doing this amount of work has definitely been good for my mental health. But, as with everything, I think it's going to massively vary from person to person, so, if your work are sympathetic, you need to find a system that works for you, whatever that is. Good luck! ... View more

Hi all, Day five after first FEC here, feeling much more rubbish today... have felt fine until now, but today I feel nauseous and have a tight head and am feeling generally low. I called the helpline and had a chat - they said an emotional dip after finishing the steroids (which I did lunchtime yesterday) is v common, so that makes perfect sense. Has anyone else experienced this? I've taken paracetamol for head and arm pain (had PICC line cleaned yesterday as well) - seems to be helping. Sals - my diagnosis and treatment is v similar to yours, only I'm HER2- so no herceptin here.  Interesting to hear that injections don't hurt if you do them in the evening - I'm doing mine in the evening just because it's more convenient, but I haven't experienced any bone/muscular pain so far either. All makes sense now! Disturbed sleep is vv annoying and I don't know if it's due to anxiety or medication.... anyone got any tips??? or a magic wand??? GOOD LUCK EVERYONE AND HAVE A GOOD WEEKEND! Helen ... View more

Sals - 🤢 was how I felt last night. Much better today (see above) and the injection was pleasantly easy to do. ... View more

Hi everyone, Great to read all your news, seems like we're doing pretty well so far...fingers crossed! I'm feeling surprisingly well today - didn't sleep much (thanks to the steroids I think), but I haven't felt nauseous (eating little and often seems to be key, as well as taking the antisickness meds) and my headache has gone. I have developed very rosy cheeks though! Not sure what that's about... I administered my first filgrastim injection this evening - it was much easier than I'd anticipated! Managed to walk to the shops this morning and take the dog for a walk this afternoon, so energy levels are also pretty good. I'm not taking anything for granted, but at least I've had a very positive start. I'll keep you posted, and wish everyone all the best. ... View more

Hi, had my first session of FEC-T today, all went ok. My arm hurts a bit as I had the PICC line fitted and then had the chemo immediately afterwards, so it feels like I've been punched repeatedly! I had the cold cap - a bit painful for the first 10 minutes, but fine after that - except for feeling very cold - I wore lots of layers and had my partner's ski jacket over my legs, but actually it was a lovely cup of tea that finally made me feel a bit warmer. I'm now feeling a bit nauseous and have a slight headache but probably better than expected.  Good luck everyone! ... View more

I'm starting on Monday, I've got my 'chemo chat' at the hospital tomorrow. Good luck everyone, I think it'll be really helpful to swap experiences. ... View more