Breast Cancer Care Forum

It's been going on since I joined last year and I reported them at that point.  I would have thought these would be obvious to moderators and site management as they must show as a regular post to be listed in first place.  Someone within the web site should be taking ownership to monitor and deal with these.  Who knows what virus etc some of these links may create and since some people are interested in supplements etc they may well not realise they are scam.   ... View more

mine was always at the hospital, breast care nurses did it, never hurt because whole area was numb, I had my mastectomy and lymph node clearance in October and still numb! Hopefully you get some relief. ... View more

I had mine drained several times and it delayed chrome by a week.  I chose to rest my arm completely for a week as I wondered if moving it so much was disrupting internal healing thereby creating pockets for fluid to gather.  Next drain only 50ml, big step from usual 150 to 300 so chemo began and no drain since.  I can't advise you on stopping exercises though as my decision may not be appropriate for you.  Good luck regardless. ... View more

I've just had cycle 4, now on tax and part.  I get tiny dots of stubble come back but within 3 week cycles they disappear.  I've got a really dark circle of stubble on one area which stands out like a bruise lol.  No idea why!  I've lost half my eyebrows and my lashes are tiny.  Not worth trying to use mascara.  I had the nice bonus of losing top lip hair and couple annoying hairs on chin 😉.  Leg hair feels like a days growth.  Under arms smooth.  Have almost a Hollywood "elsewhere " 😂.  I've read taxanes hair loss can be long term but I chose not to wear anything on my head so adjusted to that but it's personal to everyone.  The looks can be annoying but not my issue.  I have a few funny t shirts I wear to give people a laugh.  One says cancer not cooties (cooties in Scotland is head lice).   Hope this helps, being bald was always in the mix as was being flat one side.  Neither bother me, I'm alive today and that's enough. ... View more

I'll have a look at sites recommended. Big concern would be treatment being delayed due to bloods not being at high enough level. Glad it works well for you. ... View more

I'm starting chemo on 28th. I've read various pieces of research for and against fasting. Did you find that your white cells, platelets etc were slower to rise having fasted? Also did bloods show any effect from liver drug metabolism as vitamin stores may be a lot lower? I know ketotic cells pathways to utilise nutrients can affect cell renewal so get why it could help chemo potentially work. There's yet another research but results not available yet. It's a minefield! ... View more

Hi So my cancer is grade 3, Her2 and oestrogen positive, 3 lymph nodes had it too, opted for mastectomy. Now awaiting chemo etc. The way I look at it is we all wake up in the morning and we all hope to climb into bed at night. I could just as easily get hit by a bus while reading the leaflet on chemo from my latest appt. I think with cancer it does suddenly make you think of your mortality but you never knew and never will know exactly when you were going to go anyway even before you had it so really what's changed. You woke up today so today was amazing ☺ We all have black moments even if we strive to think positive. I might have a moment but just say out loud ...right f### off Bob as I refuse to let it suck my day away. Bob is my BOOB without O for ONCOLOGY lol. That was name I gave my lump at the start and even though technically Bob has indeed left due to my mastectomy 😂 I still shout at him to do one. ... View more

I had my mastectomy and node clearance on 19th October and quickly got a seroma. Now been drained 5 times. Frustrating but thankfully painless to have it drained as area totally numb. Day at a time x ... View more

I'm in same head space a lot of the time. Think the endless waiting times don't help either. It's hard to adapt to this "new normal". I believe you may also grieve in a way for your life before this. I'm getting back to going out and about because the endorphins will hopefully kick in and help. Be kind to yourself because who would feel like dancing in the street naked after a cancer diagnosis! ... View more

I know that feeling, I was tempted to draw a scary face where my boob was and try it out at Halloween 😂 ... View more

Update, mastectomy and lymph node clearance went well, 3 weeks later still healing and seroma drained 4 times. Now got full story of it, so it's grade 3, was 23mm, stage 2, 3 lymph nodes, Her2 positive and oestrogen positive. Don't think I can think positive any more. It's feels like basically waiting for it to spread. It's been untreated by chemicals for almost 10 weeks now and it's another three at least before I may be starting. I feel my future slipping away rapidly. I examined myself religiously but only found it when I had a strange sensation reaching out when lying down. My gp only felt it when I was lying down too. It hurt so much to see my daughters in distress when we finally told them after I'd had the op. My husband is exhausted and I feel so helpless. He needs to work for another two years until our mortgage is finished but I would get more comfort with sharing time with him. I'm sorry to bring anyone down reading this. I've read about stress increasing oestregen levels, food that mimics oestrogen, food than can interfere with treatment being effective because of the similarity in chemicals to those the chemo is trying to target and the same holds for the Her2. I'm stressed and not sleeping so even more oestrogen to make the cancer cells grow. I'm overwhelmed. ... View more

Hi. I've just posted my first post too. I had pains in back, ribs and leg. Totally agree waiting is never ending. I had gp confirm lump start September and have just had bone scans etc. Convinced myself it was in my bones and chest but it wasn't. Think now it was muscle tension and stress related. Never thought I'd smile at being told they would do a mastectomy lol. Bring it on, this warrior is waiting. ... View more