Breast Cancer Care Forum

Hi Wahini   I’m doing okay thanks. I got one of those letters too. Not sure why as I finished chemo and rads last year. However I have lymphoedema and have seen the Oncology team recently. I’m quite happy to stay away from everyone. Scary times!    How are are you doing? Glad you have finished herceptin now. Stay safe and well xx ... View more

I was on Letrazole but now on Anastrazole. I was started on Zolendronic acid infusions during my chemo. I’m post menopausal but was told that this infusion would not only protect my bones from osteoporosis but also help prevent bony secondaries. I haven’t had a Dexa scan but was told this would be discussed when I stopped having the infusions in 3 years time.  ... View more

Hi Joemic    I went to my gp about this and she said as I was already on statins not to worry. However I haven’t had my cholesterol checked since 2014/15. Not very happy about her answer. Even the Oncologist wasn’t bothered.     ... View more

Click on envelope at right hand corner st the top. Click on write message icon Put in persons user name and away you go xx ... View more

I don’t know. They’ve changed the forum since I last pm’d. I have a look and let you know x ... View more

Hi Absolutely Annie.   how are you doing with the rads?    Yes I’m going to the meet up. If you’re going perhaps we could travel together. I can meet you at Euston. 😍 😍 ... View more

You need to be added to our chat group. I think it’s Jayne1966 who can do it. I don’t think I can but i’ll Have a look. PM Jayne as I think she will need your mobile number to do it. Enjoy the Birthday celebrations xxxx ... View more

Hi Daffydilly.    I think we’re all feeling pretty low. Apparently this is normal according to my Oncologist as she discharged me! 🤦‍ ♀️ . I’m having Zometa and am also overweight.  I started Zometa when I was having chemo. My regime was 6 weekly for 3 doses then 6 monthly for 3 years.    You can get flu like symptoms but I never noticed cos it was with my chemo. The one I have had since I don’t think I had any problems. They will probably want you to have a check up on your teeth. In rare cases it can cause a problem. My dentist was happy for me to have the infusions as I go to the dentist regularly and look after my teeth. I weighed up the pros and cons, and decided to go for it. I’m on Letrazole which can affected your bones, osteoporosis, so am happy to have some protection for my bones! I also have been told to take Vitamin D everyday for the next 3 years and then October to March every year.    It’s a constant reminder and the treatment seems to go on and on but I’m managing with it ...... today! Lol.   as for the weight, well I have lost some and have a long way to go. I have read about the overweight stuff and most of the time push it to the back.   You have come along way and are doing really well. The physical side of treatment has ended but the mental impact is still there. I find the counselling I’m having helps.  Remember you’re not alone you can rant to us. The WhatsApp is good and funny! And also is a great source of support. Can you talk to your breast cancer nurses. I did try someone like you which this charity offers. It was a great help in the beginning.    Blimey this was an essay! Sorry.  You’re going to be okay. Every week there’s something new about cancer and health! Very confusing. Get through this bit THEN think about weight loss. One step at a time xxxxxx ... View more

Hi MaryKamille    The end of all this is indeed as hard as the rest of it! I thought I could go to a conference but as the date got nearer realised that I was being a bit ambitious! I think it’s because we hope to be back to ‘normal ‘! Whatever that is.  Xxx ... View more

Hi Absolutely Annie.   Sorry you didn’t get the job. It’s difficult managing on so little money. I hope you can meet up with us all.    Rads is very tiring. I’m still suffering 😔 . Off to St Thomas’ tomorrow for my ticker xx ... View more

Absolutely Annie.    Good luck for for your interview tomorrow. Will be thinking of you. Fingers and paws crossed here.  Blooming GP practice for you. I think they need to be kicked into the touchline! Xx ... View more

Absolutely Annie. Hope it’s not too tiring s day for you. I had to leave my form with the nurses but they did it quickly. I’m lucky as my GP is lovely. Hope you get on okay today. xxx ... View more

Absolutely Annie    My MacMillan breast cancer nurse filled mine in and signed it. It’s disgusting that your GP refused to do it. I think I would put in a complaint but I can be a bolshi cow 😂 😂 .  ... View more

Hi MaryKamille and everyone else.   Hope you have had a good weekend. Next week is going to be hot and I’m going to hate!    I have just come back from my sister’s. The visit was okay but I get really tired but keep on going putting ‘a face’ on it!  In fact I almost enjoyed the weekend even with her bloody awful spare bed. No good on my poor aching and hurting joints from the Letrazole. And then she said something. That little throwaway remark and I have come away feeling hurt and upset. How do we cope with it? I don’t know but she has made a reasonable weekend not so nice.  Her husband has Parkinson’s and I can see he has deteriorated a bit. I know she has a lot to contend with but sometimes she is just not a nice person.  Don’t know about everyone else but I’m finding it a bit more difficult to cope with it all now chemo and rads are over.  Sorry rant over!  ... View more

Hi MaryKamille    Glad you have managed to have a break away. I have been looking but at the moment I can’t afford it. Might be able to go away end of September beginning of October. Have to see how the finances are.    I think we are all feeling a bit deflated after the end of chemo and rads. Now we have to get our heads around what our lives will be like now. Plus everyone (mostly) expects us to be back to normal, after all treatment has finished 🙄 . If only! I’m not being morbid or miserable but I feel that my life will never be the same again. FACT! Something life changing has happened to me and to all of us. Physically we need to heal but also mentally and I think that’s the bit that will take the longest.  Some of my family and friends get it but quite a few don’t.    I had to laugh the the other day. One of my friends said ‘I know someone who had breast cancer and she’s fine now’. Another one said ‘My friend had breast cancer. She died last year’. 🙄 😳 🙄 .    I’ve had about 3 Zolendronic acid infusions now and feel fine after them. I’m sure you will too. Glad the redness and soreness has died down. I don’t like not wearing a bra either. Off to my sister later. Something to look forward to ...... I hope. Not the most supportive of people. Xxx ... View more

TW142.   I’m having some counselling too. It does help to sort out the 💩 !  I had a mastectomy and have had a pocket put in one of my wired bras. Not worn it yet as still a bit sore from rads.  ... View more

Hi Badboob.   glad you’re finding the course beneficial. I’m booked onto one starting the 10th September. Hope it’s okay. Trying to keep on open mind about as I was soooo disappointed with my Look good feel better session I did! xxx ... View more

DiKat. That’s a shame your appointments are so late in the day. Mine were around 12.30 to about 13.30. Bang in the middle of the day but it meant the 50 minute journey wasn’t in rush hour or school run! Glad the first one was okay. Onedown ...... ... View more

Absolutely Annie. Glad the rads are going okay.  So pleased about the job interview. Got fingers, toes and paws crossed here. Xxxx   Dikat hope the rads go okay tomorrow xx ... View more

  Absolutely Annie    Brilliant! I found the daily trips a bit of a grind but it goes quickly. Slap that moisturiser on xx ... View more