Hi Wolfee Hope your surgery went well x I too had full hysterectomy at age 31 ( I am now 38) and am not allowed on HRT due to my cancer type being TRIPLE NEGATIVE and also BRCA1 carrier. I have recently apporached my Gp to see if there is anything non hormonal I can take to ease the symptoms. I have been experinencing hot flushes ever since surgery and other less common things like fatigue and irritabiilty/moods. I had not realised the hot flushes were actually affecting my sleep pattern until visit to my GP basically telling him I was unable to live like this and now am on amitryptiline which does act as a mild sedative (actually an antidepressant medication but I am on a low dose). This for me was the biggest area affecting my mood that I had no idea of that i was not even sleeping properly through the night. i still sleep on and off but am much better now. The moods and temper as you described kind of creep up on you and is a gradual thing. I did not even realise my symptoms were that bad until my daughter brought it to my attention and our relationship began to be affected. Most people 'our age' can't really relate to our symptoms but at least now I something in commo with my mum who is in her 60's...Our symptoms will always be much worse and aggresive than those that gradually move into the menoupause because we were unnaturally forced into it prematurely so it's like our bodies go into shock. I suffer from weak bones, and now have osteoprosis so have back knee, back and hip pan occasionally. if i knew then what I knew now I would have delayed surgery but mine was prevetative ovarian cancer surgery as i had had breast cancer the year before and they couldn't be sure of what the lump on my ovaries was. turns out it was not cancerous however i know have cut my risk dramatically as there is no screening in the area i'm from so felt I had no choice at the time.
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Hi amazing lady, I'm not sure if you had made your final decision already but if you have, then maybe my response cpuld help someone else who maybe facing the same dilemma. I actually had bilateral mastectomy with immediate reconstruction 6 years ago now for triple negative stage 3 breast cancer. I then had both implants removed due to poor healing and the implant then leaking. i now wear two stick on prothesis' to match my skin. My options were not lumpectomy but either to remove one breast or both. Due to my BRCA1 gene I then had to have the two removed. What i can tell you is that radiotheraphy did leave a permanent darkened discolouration on my skin where the tumour was. I had radiotheraphy after my surgery. I was told by my surgeon that have radiotheraphy can affect the skin and cause healing complications and it did. At the time I had no implant and still got burnt so I dont believe the size plays much of a role in that information based on my experience. In was completely flat. I had to have both nipples removed and not put back on as therecan also be cancer cells in those too however there is a technique the surgeons can use after the main surgery to give an 'illusions' of nipples, almost like tatooting however i never had this done and of course the breast would still be smooth to touch.I guess leaving your nipple would be the same as standard breast surgery where they would remove and then re-attach but I thing there are risks of losing sensations (would need to ask your consultant I suppose). You did not mention your age and the reason i ask is because I was 30 at the time of diagnosis and surgery and my team were also very keen to give me brand new perky breasts and a great tummy tuck by using the stomach tissue and putting into my breasts. I think surgeons believe that younger women maybe more interested in overall final look of the body if that makes sense. Anway I declined the tummy tissue removal as the risks of matching the nerves together is an extremley skilled and risky surgery and saw first hand what happens when this goes wrong with another patient whilstin hospital. More importantly I believe they may be leaning towards the bilateral due to the fact that cancer cells maybe be hiding in the surrounding tissues with the lumpectomy and more chance of removing more tissue with bilateral or another reason could be by reducing the size of both breasts you will then have a more 'even appearance'. if you only remove tissue from one breast then naturally you need a prosthesis in your bra in order for both breasts to look the same size basically. So this would come down to personal preference and recovery times being longer and more risks of course. I see the challenge in deciding whether to go with the more straight forward operation or more lenghty one. Another thing to mention was that before my diagnosis i was 30FF cup! so like you my boobs were a strong part of my identitiy xx The main thing I can say to offer in encouragement is that no matter how your body looks you will always be you on the inside, although it maybe difficut to even imagine now. You WILL get used to your own body but it just takes time. I tell myself that not everybody has the privelage of experincing 2 different 'body types' in one lifetime. It is better to be here in good health and continue to create memories. I would be very direct and ask the surgeons what their actual reasons are for prefering the 2nd option as this may sound very sad but it does happen whereby their decisions maybe based on superficial things like appontment slot, surgeon availabity and so on (trust me it happens) so you need to be sure their decision is 100 percent and purely based on the treatment for YOU and no other reason. All the best and good luck xx Lilly
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