Breast Cancer Now Forum

Hi Ladies   I have been off to have my colonoscopy due to bleeding from the rear end .... Delighted to say that it was all clear !! No nasties lurking.  What a relief.  I can see that we are all finding the T really tough.  I hope that this time around I am a little better prepared and handle it better... It floored me for 10 days last time.  Just keep thinking that there's just 2 left.  A huge well done to everyone who's been in hotel NHS.  It's tough but we can all do this.  ... View more

Hi Tbird, I think you are right about your treatment. Can you discuss your worries with your oncologist? Or a nurse specialist? I was similarly worried that I wasn't getting enough of the drugs and asked my nurse... She smiled and said that it was a common concern, but that everyone is different and their bodies react differently, therefore it's the oncologist's job to strike the correct balance. I wish I only had one more to go! Well done for getting so far. Xxx ... View more

Hi Tbird, yes I've had my chemo cut down to 80 percent because it was making me neutropenic. The onc said the idea was to cure me, not kill me! I think I'm right in saying that the Docetaxel is quite harsh on theiver, so it figures that if your enzymes are climbing then they need to stop it for a while to give it a chance to recover. You are doing a great job, and so is your body... Its a case of striking the right balance as we are all so different. Hang in there and don't worry. X ... View more

Hi holeinone, I have had my first T last Tuesday... Let's just say its not going so well! Horrible bone pain that won't respond to any pain killers, oral thrush and can't taste a thing, can't sleep, rash all over my scalp, and I look like Darth Vader without his helmet on!!! Oh yes, plus bleeding from the rear, so now I have to have a Colonocopy just to add insult to injury : ( Not impressed!!! Any tips anyone? Apologies for the self indulgent rant, but it made me feel better for a moment. Xxx ... View more

Hi all, dropped off the radar for a while there! Been coping with Christmas and all that entails. Hubby has been very good at coping but increasingly grumpy. I do my best but sometimes I just can't. Anyway, Happy New year to everyone. Here's to a better new year... Good health and happiness to you all. Don't worry about starting new regimes, we've all done it before. We are the half way girls and each passing day is closer to the end of treatment. We can do it!!!!! ... View more

Hi Lou, I'm an ex nurse and I used to do it all the time. It doesn't hurt at all. Tigerlilli xxx ... View more

Thank you Lou43 and holeinone for your support... It really means a lot. The sparkly pants are on again and there big S on my chest is back in place. I'm thinking that the odd wobble is just b part of the whole package. I'm still finding things to laugh at, so that's a good sign... Like my wig sliding about because I'm so bald now my head's gone slippery! Wig grippers ordered : ) Massively hairy legs though, I'm going for the shire horse look ; ) ... View more

Hi all, I have been wobbling a bit too. I have felt so positive because I know I am doing the very best thing I can to improve my chances of survival. I have made sure that I look as normal as possible for my husband and daughter to be around. Amazingly it's them who are having a go at me! Expecting me to do what I normally do. Neither of them want to see me without a wig. I am so upset as I am trying so hard. Maybe too hard. This is my second breast cancer and its now a triple negative. I am always a positive person and love my family, but this is hard to cope with. Sorry for the wobble. Just can't stop crying at the moment. Xxx ... View more

Hi Pidgeon, I am glad that thought helped... I find that if I feel worse, I think that the chemo is really working hard and that it will pass. I will be having one more Fec then going onto the T for 3. Not sure what to expect with the change over, but we can do it! Chemo warriors together. Stay well. Tigerlilli xxx ... View more

Attagirl holeinone! You can do it! It's a roller coaster, but that's another day ticked off. I'm just hoping my temp isn't creeping up : / Trying to will it down below 37! Fingers crossed. Just settling down for another night of Christmas shopping online at 4.00am. Well there's got to be some advantages. xxx ... View more

Oh dear!!!!! : ) ... View more

Thanks Sals, I will definitely be doing that every day from now on. How's your leg? Anyone having problems with bloating and wind? It's quite revolting. Seems to be a gale blowing most of the time!!!! Really antisocial : / ... View more

Wow! How frightening for you! Thank goodness you contacted your nurse when you did... I'm so pleased you are getting sorted now. How is everyone else coping with every blinking cold on the planet buzzing around? I have practically become a hermit. But my whole family seem to have one bug or another! Any tips? X ... View more

Hi Holeinone, thanks for your tip about the chewy mints, I will definitely try that. I am sorry to read that you passed out and have been suffering so much. I totally understand, don't feel bad. We are all coping the best we can with a tough situation. I just try to remember that the chemo is my friend, trying to cure me and that each day is one day closer to the end of treatment. I'd like to offer you a virtual hug and say you're not alone my friend. Xxx ... View more

Hi Tbird, my chemo was reduced by 20 percent this time too. I'm actually more nauseous this time but hoping to avoid the hospital and neutropenia again. Here's hoping ; \ ... View more

Hi all, it seems we're all pretty much in the same boat (albeit a bit sea sick)! Day 5 post FEC#2. More nausea this time. Had constipation and then the opposite. Taste buds are nuts... Still trying to find some flavour and all fluids seem slimey at the moment. I went for the shave last week as my hair was falling out all over the place... In my food etc. Its a relief actually. I am looking on the bright side. We are v almost at the half way mark ladies! Hang in there. Xxx ... View more

Hi Kate day, you are amazing and strong. I too can't show my daughter anything other than a brave face. Let's stick together... We've got this! One down 5 to go!!! ... View more

Thank you for your reply. What a horrible time you've had! I hope you are OK now. I've decided to brave the shave on Monday. It's driving me potty moulting everywhere! I have my wig at the ready so I'll be rocking the Donald Trump look ; ) I have moved to the November thread as suggested. Good luck. X ... View more

Hi Milo, I too have triple negative. Had my surgery first and am just about to have cycle two next week. I hope I don't end up in hospital again! Hang in there my friend. You are not alone. We are in this together. I just keep putting one foot in front of the other. ... View more