Breast Cancer Now Forum

Please, i have one more question. Do you know, why meta was not seen on normal lung RTG, but PET/CT show something on lungs? ... View more

Thank you soooo much bonareinsis!!!!! I tried look internet, but i didnt manage to find so great picture. ... View more

Thank you Nicki and Marmeid, we try it, sides effects is also muscle pain, but funny is that is only on one side(injection both sides) and roughly week after injection for 3 days. I def check it up with onc and let you know. Thank you all for replais, mean much and help much🍀🍀🍀 ... View more

As us like you go fitness and you pull your muscles. I will check it up with onc , but it is only one week after injections and it last cca 3 days and only on right side. Keft side is goid after injection. The pain always sort out 1 tablet of common painkillers, so hope thats not something bad, anyway i am curious ... View more

Nice evening all, May i ask someone please, Faslodex, 1 dose, 2 dose two weeks later and now monthly. Each time it was injected 250ml in bottom, and pain came always 5.6.7th day afterwods. And ONLY on right side, left is good. Any experience? ... View more

Lovely good evening, I wish you all clean scans, good fight, stay strong and positive in the upcoming 2019. Hugs🎉🎉🎉 ... View more

I need to deeply apologise, my message was for Silverlining, not Bonareis. Bonareus, so happy, you do well and all is stable! Thank you, that you have been here for us with all your support. May i kindly ask you, what you having for problems, insurence in UK ( i asume you are from Uk ) ?? ... View more

Silverlining, Even we ( mum and I ) are from czech republic, inbetween scans is not a really support. Mum has got me, who goes with her, does silly things make her smile and study internet to have at least some answers for her questions....bit sad, that the system as soon as they have not tax paid from you, they somehow quickly forget that you was here for the system for many years...make ne angry, system sucks😤😤😡🤯 ... View more

Bonareis, I am so sorry about your pain, i have read that is good to drink sage tee and also have it as a bath.i wish that pain goes away.Exemestane we have no experience, but it should be also gut stuff if that work for almost 3 years! 🐢🍀🐢🍀🐢🍀 ... View more

Silverlining, For us it was only something little elevation of tumor markers. If doctor dont watch them, mum would have metas without knowing till she receive pain. So happy, that doctor check up because that markers!!! Doctor found it out before pain or other clinical issues come out. ... View more

Butterfly, Maybe i wrote it confusing, she dx brest cancer T3N1MO ( chemo, operation, radiation ) 5 years clean on Alozex ( same like Tamoxifen, but for postmenopausal ) than tumor markers little elevate, doctor start to search, meta bones found 2 weeks ago, already put away from Alozex and instead Faslodex+zoledronat acid. She have also suspicious ( after PET/CT) one lymf in lungs so they make biopsy on that to see if from the primary it hasnt change ER,PR,HER2 or that is not another cancer f.e lungs, which has already spread. My mum was in bit of shock, but help her when we talk about it that i have some answers, and she had a big trust in her onco doctor ( she is great ). Its very hard to combine, mum, baby, problem and little things on daily bases, but you have to stay strong for your mum and baby and that little miracle who come on the world shoud keep your mum happy and positiv also. Living for grandchildren is the biggest motivation!!! ... View more

Funny face, I really have a respect towards all ladies, who going through this. You are so inspirating ( i think there was many tough times passing chemo ets , dealing with many others things ) and you was still able to be here for others! 13 years with lung meta only showas how strong your believes are and how strong is your wish to defeat it! That should ve the biggest motivation for all of us. Thank you so so much being on this forum even i wish you have never ever been here. ... View more

Hi Butterfly, I am in the same situation. But not after 10 years, to my mum it comeback in 5 years. The problem was, that nothing was suspicious, no pain, no other clinical problems, only CAE markers went from 2,3 slowly during 6 months into 2,8 ( which is still normal!!!l) and CA 15-3 went first from 28 to 35 to 51,9 and that was point when doctor become a red flag. My mum(doxirubicin,paclitaxel,ooeration,Alozex, now on Faslodex 500ml and zolendronat acid. ( my mum is 66 years ) With many many best wishes from czech republic ... View more

Thank you, The thing is i cannot nowhere found it, that someone with meta in vertebrae wear something like that. Alozex , is something for hormonal dependet tumors for postmenooausal women. It works pretty long but stop. ... View more

Thank you Funnyface, I have questions....did you was forced to wear kind of shell cos of yours metas in bones ? ( it holds also neck) ....and if Alozex stop working, will not bone metas elevation till the other start work? ... View more

Kate21 I wish you that all is good as that look like that all is good and stable. ( my english its not so good to explain well medical facts, but ask your doctor ) ... View more

Hi , so we do have meta insemination in bones. Alozex was taken away of my mum, she is now on zoledronat acid and 500mg Faslodex. She has no fracture, no pain.....please we become such s metal and plastic construction, its horrible to wear, have someone experience??? Mum doent want to wear it as she is uni proffesor (math/fyzik) and i cant take away the joy of working from her..... ... View more

Hi Kate 21 I am not a doctor, but it should mean that there is kind of infection in bones ( mostly having older women when bones does not work properly because body is not ptoducing what should ). By my opinion it should not have been any meta. But i am not sure after cancer diagnose if it can cause later meta ( as i know that meta like to be there whete is a weak point ....its easy for them to settle down there and grow ), regards from czech republik stay strong and well ... View more

Pippin and Funnyface, thx for nice welcome, just to add ( mum has axial nodes taken away, bit of hand lymfeden..bigger hand ) and she ist all that time covered dayli Alozex + Every second day Calcium. We are going for plan tmrrw, i will post it. I hope that all goes well. Being here for soo many years with meta it is the best kick of motivation and proove that life prognosis we should not study. 🐢🐢🐢 ... View more

I only hope that my english is good and you will apologize when i do some mistakes. Thank you very much With happy and trength hug Magick ... View more