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KMG
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since
20-12-2018
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32
Hugs
17-12-2019
06:49
1 Hug
Hi Helly, Thanks for your reply. That is the brand that I have too so it’s encouraging hear you are not suffering side effects 2 weeks in. I seem to have most of the usual menopause symptoms already so hopefully they won’t get any worse 🤞 Good luck with your recovery x
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16-12-2019
06:51
Hi Evie, I wrote you a reply yesterday but now it’s disappeared?! Thanks for replying. I have a prosthesis but to wear it all day makes my foob sorer so I only use it now and then. Hopefully I’ll get to see my surgeon next time (in fact I will make sure I do). I don’t think he meant to come across as dismissive but it just took me aback a bit as my surgeon is completely the opposite. Will def give the tablets a go - unfortunately I think I have one of the ‘cheap’ brands but we’ll see x
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16-12-2019
06:44
Hi Wonky, Thanks for your reply. I am only fairly small busted too, I use a bra with a pocket for my prosthesis as I’m worried they would just fall out of a crop top. Also I need something with straps to hoick up the good one to somewhere near the level of the other one. I’ll have a bit of a play around (I have more bras than M&S these days!) I’m on day three of pills now and will keep it up and see how I go. Thanks Kate x
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14-12-2019
09:18
3 Hugs
Hi all, Wasn’t sure where to post this but is sort of surgery related so here goes. Had 2 excisions and then full left MX with immediate permanent implant recon in June this year. Got cellulitis infection so was in hospital on IV antibiotics for a week in July. Took weeks to recover and am now left with contracture. In September my lovely (female) surgeon told me I could have the implant replaced which was a big relief as it is painful, distorted, ugly and I basically hate it. Just had 3 month consult but saw her registrar and he was very dismissive and said it ‘wasn’t urgent’, put me on Tamoxifen and told me to come back again in Feb. I know it’s not urgent, but I still feel like I’ve been kicked in the teeth. He dismissed all my fears about taking Tamoxifen and said it was for ‘my own good’. I stress about what I wear every day as my chest looks unbalanced and I basically can’t get a bra that fits and is comfortable. My implant hurts and I have to use ibuprofen gel most days. I’ve put on 1.5 stone this year, ache like hell and have had to stop taking the mini pill as my DCIS was hormone receptive. Got blood test results last week that say I’m post menopausal, which explains that maybe and the hot flushes and feeling low since I stopped the pill. I just feel a bit lost - like when you first go back to work and everyone just assumes you’re suddenly ’ok’ again. Took my first Tamoxifen tonight. If it makes me feel any worse or any more dried up and old I’ll just stop. I joined a menopause support group on FB but that seems to be all about how great HRT is (which I obvs can’t have). Not sure why I’m posting this really, just feel a bit let down and like no-one understands and needed to write it down x
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18-08-2019
04:32
1 Hug
Good luck, I had 2 lumpectomies before but as my DCIS was so widespread I then needed the mastectomy. Luckily histology and lymph nodes were all clear so nothing else needed except maybe hormone therapy. Hopefully yours will go that way too. However one thing I’ve learned is that no two people ever have the exact same story. This has been my life since November and it seems very odd not having had any appointments for two weeks when since early June I’ve been back and forward at least twice a week! Let us know how you get on x
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18-08-2019
02:26
Syke - yes you need to keep an eye on the other side definitely. Don’t let them fob you off if you are worried. I’m worried about mine with no reason to be, just because it’s still there 😩 Glad your daughter is feeling better x
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18-08-2019
02:21
1 Hug
Hi Astra, I am a bit better every day now thanks. Infection all gone and boob settling down a bit at last, still sore where it’s stitched in but hoping that will calm down soon too. Got a girls weekend away in 5 weeks time so really looking forward to that. Are you having the same op? Good luck you will be fine I’m sure. Let us know how you get on. Kate x
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15-08-2019
12:54
Oh that’s good news, hopefully it won’t happen again (was it just the once?) Hope your little one is ok? I’m doing mostly ok now thanks, been off ABs for a week now, skin is settling down slowly and becoming softer and better colour again. Got this and next week off still to make sure it doesn’t flare up again so probably back to work after August BH. Will have to take it slowly I think, a few hours out of the house still has me exhausted 😩 No more mention of Tamoxifen so I’m keeping my head down on that one! Kx
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13-08-2019
08:29
Hi Syke82, How did you get on today with your other side appointment? All ok I hope x Kate x
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12-08-2019
08:10
Hi Smash, Thanks so so much for your reply - that puts my mind at rest. I always have to have something to worry about! I still need to practise with the insert as not convinced it’s doing the job just yet, but need to go and get measured and buy the right sized bra really now I’ve had my op x
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10-08-2019
07:25
Hi, bit random but a new ‘thing’ has just risen up in my brain to torment me and I’m hoping for some help. I had left mx with immediate silicone implant reconstruction on 3rd June. I am due to go away to Spain for our girls 50th weekend late September and am suddenly stressing about my implant. Do I need to tell airport security? Do I need some sort of letter to say what I’ve had done? I have just bought JL silicone cleavage enhancers to use to bolster up my real right breast as it looks a bit saggy now. Can I take/wear this on the flight? Do I need to put it through security in the clear bag? No idea what ml it is and only taking cabin baggage! Any advice gratefully received, probably just being silly but these days I just worry about everything 😱 Kate x
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31-07-2019
04:33
Hi Mel, I forgot to update, I didn’t have more surgery in the end and am still on antibiotics, 5 weeks and counting. Slight improvement in skin redness but it’s just sooo slow it’s starting to get me down a bit. What hormone therapy are are you having every 3 weeks? I’ve been told I need tamoxifen but that’s a daily tablet for years I think - am seriously considering turning it down having read up on it. Got consultant appt tomorrow to see how she thinks it’s all going. Meant to be back at work on Monday but can’t see that happening! Good luck with the RT I’m sure you’ll be fine, let us know how it goes Kate x
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27-07-2019
09:40
Here’s hoping it doesn’t mess with your nipple or implant Bernie 🤞 Have you checked out any radiotherapy threads I’m sure you’ll get help/reassurance/advice there x I’ve not been able to wear a ‘normal’ bra yet due to sore skin but yes I guess could try just hoiking up the droopy side. Mine don’t really fit me now as I’m smaller than I was. Don’t want to buy new ones until it’s all settled to ensure I get the right size. Still wearing the reco-bra, stretchy crop top ones or none at all just now. I don’t suppose anyone else would notice but I do!
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27-07-2019
09:20
Thanks Syke, I will have a look at the lifters, I’m a B cup too. The surgeon explained that as there is only a thin layer of skin over the implant with a blood supply it will take longer for the drugs to reach that area. If I had it the infection the other side then the blood supply in the breast tissue would take up the drugs too and it would flood the area quicker, makes sense I guess. She said I’m not out of the woods yet but she could see an improvement (not sure I can TBH - but maybe I’m looking too often!) Just hope I can keep more surgery off the cards for the near future if at all possible 🤞 Hope 13th goes ok and it’s nothing to worry about x
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24-07-2019
07:53
Oh Bernie, at least those cells will get zapped good and proper, and there is a lot they can do now if your implant is affected. RT will be done while you have the expander in I assume so could it be expanded more if it were to shrink any? We can compare notes/moan about Tamoxifen together for years to come! When (if) my new boob ever heals I think I’ll need (or at least would like) some tweaking to the other side as it’s quite droopy in comparison even in a bra which I think is quite noticeable. Fingers crossed for you - when does it start? x
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24-07-2019
04:29
I had a reprieve! Surgeon decided to give the antibiotics a bit longer. No real change in colour yet and a bit swollen again so had ultrasound yesterday but dr said no seroma to drain, so not sure what that is about or if I should be worried. Back to see surgeon tomorrow so hopefully will find out. I should just take a sleeping bag in really (this will be my 13th clinic visit since 3rd June!) Keep on at them for appt - 2 weeks seems while to wait for something like that? Hope it’s nothing to worry about x Bernie hope you got on ok with RT today x
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22-07-2019
01:13
Hi Jo, Great news, no surgery today! Consultant happy to give the latest ABs longer to work as we think redness is starting to improve and shrink very slightly and I’ve only been on them 3 full days so far. What a relief! I was a bit worried as my chest/armpit are a bit puffy and sore this morning but BCN is organising for an ultrasound appt for tomorrow to have it looked at and aspirated again. Hopefully just seroma which I’ve had to have drained a few times before so I’m not too concerned. Feel very lucky today - let’s hope it continues x
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21-07-2019
09:24
1 Hug
Oh gosh Syke yes definitely get that checked out and let us know how it goes x Unfortunately my skin is not much improved despite even more ABs since Thursday so I am nil by mouth from 7am tomorrow (Monday) in case my surgeon decides I need to have the implant site flushed out or even to have it removed for a while 😞 I feel fine and have no discomfort and not on any painkillers, but surgeon is concerned that cellulitis is not clearing. Dreading tomorrow as could end up right back where I was 7 weeks ago. I started a new thread yesterday (implant removal fears) to see if this had happened to anyone else and how it turned out x
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20-07-2019
04:37
Thanks - I hope that’s what she can do with mine and it will do the trick. Hope you feel better soon - If you need to sleep then do, your body needs rest to recover and heal. Will let you know how I get on x
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20-07-2019
01:03
Thank you I will. If I have to go any smaller I’ll be mortified as am not big chested anyway and I already think the new one is too small ☹️ Something else to ask about I guess. She also dropped the bombshell that they want me to go on tamoxifen which has never been mentioned before. Just sick of the whole thing. I had DCIS so it was all preventative anyway which just makes it worse x
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