Breast Cancer Care Forum

Hi Vaneysha I am having IV H & P. I have had 15 so far, 2 more to go. I had first 3 with Taxotere (chemo). My hair fell out with FEC but started to grow back with Taxotere and has continued to grow with H&P. My profile pic is my hair now. I finished chemo last April. I’ve found it really difficult to get conclusive side effects of h&p without chemo. I sometimes feel a little off, slightly woozy on the day I have it but fine the next day. I have had various aches & pains throughout but all fairly manageable. It’s so difficult to know if it’s left over chemo/surgery/radiotherapy stuff or the targeted treatment. It’s nothing like the scale of chemo though! Good luck with it xx ... View more

Hi everyone  I’m just about to have my 16th IV Herceptin&Pertuzumab. I’m having a total of 17 (first 3 were with Taxotere). I had my 3rd and believe final Muga scan last week and my results show my ejection fraction has remained fairly consistent 59%, 62% & 63%. I was just wondering if anyone knew if it can cause any future damage to the heart or have I hopefully got away with it 🤞 I do feel some breathlessness & tightness in my chest if I do anything like push my granddaughter in her buggy but don’t know if that’s down to my general fitness from all of this 💩 . I have suffered with general aches & what feel like bone pains throughout, particularly my femur and ribs. I had a bone scan a couple of weeks ago that showed a hotspot in my spine which hopefully is normal degeneration but about to have a CT to assess further. I’m hoping all these aches & pains will improve once I’ve finished treatment but I’m also anxious about having no drugs at all with being fully her2+ Very best wishes to all of you ladies xx ... View more

Thanks for replying Sarah There’s some pretty awesome suggestions there, really appreciate you taking the time 😊   We go on the 25th so can’t wait now. Just hope I’m less tired from rads by then (finished yesterday). Cheers, Di 😘 ... View more

Susie B and Rosina Thank you so much, some fab suggestions there xx ... View more

Hi Implausible  We like architecture, sculptures, art, nice food/bars to watch the world go by!  Hubby likes aeroplanes & sci-Fi. I like independent shops, daughter likes vintage.  Also like nature, pretty gardens, water etc. Most things between us really. Thank you 😊 really appreciate it x ... View more

Hi Marlyn The hycosan are the blue ones, just to put moisture back in the eyes so readily available. I’ve had 8 Herceptin now so 10 more to go. I have mine with Pertuzumab IV due to latest research saying it ups the odds, only very slightly I think. I’m different to you though because I’m completely Her2, tested neg for Oestrogen and Progesterone, and was stage 3. Fingers crossed 🤞 you get to finish after 9. At least that would be 1 less drug in your system xx ... View more

Good morning ladies  Thought I would pop by and say hi to you all. Good to see that most of you are doing well and sending hugs to those of you that are still going through it with treatment and medication side effects.  I’m just coming to the end of my Radiotherapy. Have 2 more left out of 20. Although it’s nowhere  near as bad, physically, as chemo I have been surprised by the effect it has had mentally. I think it’s a mixture of the travel, tiredness and being around other people in a far worse state. It’s been 9 months since diagnosis so also feels like a long hard slog! I just wanted to comment on your post re the Herceptin and sty’s Marilyn. I’ve never suffered with them before but have had a couple of small ones and I am on Herceptin so wonder if there is a link?? I do seem to suffer with my eyes now. I went to the opticians last week and she said they were very dry. She recommended that I use hycosan eyedrops indefinitely. Asked her if it was due to chemo and she said medication and hormonal changes are both factors so double whammy there then!! You may have noticed our Dec forum has gone a little quiet. We have set up a Facebook messenger group as we have been arranging our meet up so really excited about that 😁 Sarah, I hope you don’t mind me asking but me, hubby and kids age 17 & 15 are going to Bristol/Bath at the end of the month for a few days. Never been before so wondered if you have any recommendations for ‘must do’s’. Loved all your pics of the street art. Sending you all love and 🤗 🤗 🤗 xx ... View more

Hi Sar Good to hear you are all done and the skin is holding up. Won’t be long before you’re enjoying that swim. Yes I still have to do the breath hold. Think my heart is very close. Sending hugs 🤗 Good luck with the Herceptin (if my memory is correct and you are having Herceptin) xx ... View more

Hi Mel Just popped in to say glad your first session went well. The staff are all lovely aren’t they. Someone was ringing the bell when I had my first session so I was sat there in tears 😭 I have 3 more left after today. It’s a shame mine are later in the day, would have been lovely to say hi. Good luck, will be done before you know it xx ... View more

Congratulations to absolutelyannie and Sandra11 for reaching the finishing line with rads. I’ve been finding I want to crash around 4pm but I’m not actually having a nap as yet. I’ve had 15, just my 5 boosters to go now! Yes it is quite emotional. I’ve found it hard being around people who seem to be in a far worse state 😔 Good luck to you all 💕 ... View more

Daffydilly and Absolutelyannie if you Email Jayne1966 your telephone numbers she will be able to add you x ... View more

Not long now Mel. Good luck 🤗 ... View more

Hi Avalily  I was told to put cream on morning and evening as less likely to forget when dressing/undressing. My appointments are all teatime. Good luck 🤗 ... View more

Hey daffydilly sounds like you’re feeling a bit low. Can’t remember if we have already asked you but we have a WhatsApp group now where we are arranging a meet up and generally continue to support each other as well as on here. If you would like to join us email Jayne1966 and she will add you to the group. I’m sure someone will answer about the zometa shortly. It’s not something that’s been mentioned to me. I’m currently half way through rads. It seems never ending 🤗 🤗 🤗 ... View more

Congratulations to all of you that have now finished rads. Good luck with moving forward 🤗 I’m 11 down, 9 to go xx ... View more

MaryKamille  You are right, the tail end of this is just as hard to deal with if not more so. I think we are all finding this so please don’t think you are unusual. I have good and bad days and I’m surprised how much I am still affected physically by the chemo even though it’s over 3 months since finishing. Be gentle with yourself and know that we are all still around to support you. We will have another meet up next year so maybe you will feel ready then. Sending hugs 🤗 🤗 🤗 ... View more

Shame about the job absolutelyannie. Their loss ❤️ I’m keeping everything crossed that something better will come along soon. Will send you details of meet up 🤗 ... View more

Hi absolutelyannie and MaryKamille  We have planned a meet up in November and would be lovely to see you both there. Let me know if you are interested then can send you the details privately xx ... View more

Pleased you’ve had a break away Mel and managed to forget about things. Sounds like it’s really helped 🤗 🤗 🤗 ... View more

I ended up back at breast unit yesterday. I had an appointment because I’d been in touch with BCN 2 wks previously telling her I’d developed pain in my breast and underarm 7/8 weeks after surgery. I saw a different consultant who examined me and a scan revealed I had a cyst which was drained. Feel like it’s never ending 😔 Good Luck with the rads Mel xx ... View more