Breast Cancer Care Forum

ErikaA  I used the cold cap, I didn’t loose hair until my  second dose of chemo, it was probably my biggest lose. I kept about 60/70% of my hair. I lost all round the edges but I kept my hair longer so it covered it.  It’s worth sticking it out, it takes longer but it made me still feel like me x  ... View more

Ocean, the fruit and juice looks lovely. I would love to tick into it all.  Have you requested to join the group chat, trying to work out who Ony and Perdita are ??  ... View more

My friends just posted 9 months hair growth   ... View more

Susie, I hope I’ve added the right Susie to the group 😂 😂 it looks like you in your photo 😘   lovely to to hear from you Seaside, sounds like you’ve been busy, boat should be ready for next March all being good, as long as hubby does my jobs around the house as well 😂 😂 😂 ... View more

Edinbird. Glad it all went well, I’m still at the trial appointment still waiting after 50mins to say I’m not doing it 🤪🤪🤪 ... View more

Susie, what’s your name on messenger I’ll try and find you  ... View more

Ocean and all this is the link to the messenger group I hope if I’ve done it right xx https://m.me/join/AbYfhjDB5YS9XKYs Lovely to hear from you, I know what you mean about the colour after rads, I only had 15, my skin peeled off after, so I’m back to matching colour again,    Well we’ve had an eventful weekend, hubby bought another boat   Boys and toys, apparently you can never have enough boats🤪🤪    Are of you ladies taking sleeping tablets?  It’s beginning to take its toll. I think everyone would like me to get a little more sleep and be a little less snappy.  I am defiantly coming off the aspirin trial, as couldn’t  deal With pain in my hands. That will be fun telling them tomorrow, I’ve also got oncology on Thursday so hoping I get dates for operations and things, I can live in hope.  I had a friend contact me this weekend, she has just been diagnosed with BC, and as we all know her world has just turned upside down. I’m glad I’m at this end now, not starting the journey.    Hope everyone has had a good weekend xxx     ... View more

Deano, lovely to hear from you, glad rads it going well, I’m so sorry about your news. This cancer is certainly an emotional roller coaster. Big hugs xx ... View more

I’m back from a very long sports award evening, but he got 2 awards for swimming and gymnastics so he’s happy.    Edinbird, I can sympathise with you about the nights, I have more bad nights than good, I feel the night sweats are worse the week after injections, not that they stop just not so many. I wake all hot and bothered then the hands hurt, but the time they’ve finished the hot sweats are back.    Susie glad the planning went well.  God luck tomorrow 🍀   daisy, it must be such a worry. Hopefully it will be sorted soon and you can rest up.    Do any of you ladies have numb fingers, I’m trying to work out if it’s my carpal tunnel, or treatment symptoms.    Sarah, I’m going to go back to study but not until next September as I need to do the placement hours and as I’ll have another op, next year it will mean more time off, so won’t get enough hours done?(  If that makes sense)  I’m not sure if your amazing or mad or a bit of both taking on the extra job. I do admire you for it.    Hope the rest of you ladies are doing okay xx love to you all xx ... View more

Hi ladies, I’m just about to go out to youngest awards evening, but had to share genetics just rang no BRAC genes found 🎉 🎉 just  s hit family luck, but I can live with that so kids don’t have to go through it, I check back later when I get home.  ... View more

Daisy, fab news about your mum.    Susie, having the PICC line out will be fab, having a shower without the plastic cover felt wonderful. I remember it well. Fingers cross all goes well for Friday xxx   ... View more

Nearly there Susie, the end is in sight. 💕 💕 💕 Rosina, glad your getting back into work life and you are going to be able to drop a day.    I had the trial appointment today, the oncologist want me to stop taking the nuproxen and use gel and paracetamol, I said I will try but can’t see it working. So may be stepping off the trial on Monday, didn’t help wasn’t keen on her attitude, book an appointment for Monday and didn’t ask if I could make it.  I then popped into work, it was lovely to see everyone, there has been lots of staff from other areas join our team so looks like we will be fully staffed when I get back. Got lots of comments on how my hair has thicken up and my puffy face has gone down.  B l o o d y fingers will have to catch up later xxxx ... View more

Susie, Happy anniversary to you.  Otter st Mary’s is only about an hour from me, maybe one day we can meet there, as it’s in the middle for both of us. Xx ... View more

Hi all,  I had my  Zoladex injection today, no major bleed this time so who knows why I did last time. She did do it very closely to my belly button this time, so who knows if that makes a difference.  I then went to see orthopaedic about my arthritis in my wrists which had surprise surprise has deteriorated, it looks like I need an operation on both hands, I’ve asked for one last try with cortisone injections as I kind of want to get back to work and it’s 6 weeks in plaster each hand and then a month in splints. I never had an anaesthetic before last year, looks like I’m going make up for it now 🤪.    I hope your all keeping well.  Edinbird, I was tattooed and drawn on daily, don’t wear your best bras as it stains them 😬   Trixielady, I’m hoping to plan to get back to work in October, although the appointments are mounting up again for next month, so far I’ve managed to get them all on Mondays, which was my day off. I think I just need some normality back in my life, hopefully my body will allow me.    Hope the rest of you ladies are having a  good day xx       ... View more

Seaside, it’s horrid when you can’t sleep, especially when your brain won’t rest. Hopefully you managed to get back off to sleep.  Mare you able to do phase return, but I know what you mean about worrying about going back, it’s definitely on my mind now xxx  ... View more

wow ladies I am very open minded on this subject, I love hearing all the stories. I meant to say the other day here is how you sign up to messenger without face book.   To use   Messenger   without a Facebook account: Download the   Messenger   app. Open the   Messenger   app, enter your phone number and tap Continue. Once you've confirmed your phone number, add your name and photo to get started. You'll have the option to sync your contacts so you can message anyone in your phone. Can I sign up for Messenger if I don't have a Facebook account? https://www.facebook.com › help › messenger-app   We are called February warriors, let me know the name you have signed up with, then I'll add you to the group, so we can still get our fix when the site is down xxx   ... View more

Hi Ladies, Edinbird, it makes me cross when they say you can refer yourself and then you can't. Hope it gets sorted soon.   Made me smile hearing all the reasons for why you all got married in September. we had to get married in July as football season finished, but be back from honeymoon in time for pre season training.    Well they have given me so Naproxen for my hands, magic wand isn't helping, I phone the trial team to asked if I can continue with the Aspirin Trial, they have said I can stay on the Naproxen for  2 weeks, but did I want to try paracetamol first, err i tried that first. I've just requested what will hopefully be my last sick not for a while, I want to try and get back to work in October, hopefully my hands would have settled by then..   Marilyn, you make me smile. I love your sense of humour, and who knows who we were in our last life, my youngest sister when she was younger used to talk about things she'd seen and done, which were accurate but she had never been to those places. She did out grow it, they say young minds are more susceptible.   Netti, I hope you manage to sort something out for your mum, It must be a real worry for you.   Rosina, hope your managing to juggle the work/home life balance.   Sarah, I love seeing all the street art, I will defiantly be looking out for it in the future, its no something I ever knew existed to that degree.    Seaside, i loved your photos, you look so happy, and looking good.   Trixie, Glad you had a lovely holiday, and i see you have brought back the weather, if only delayed for a while 🙂   Well my cohort are graduating today, feeling a little sad I'm not there but also feeling like I need to get my life back in order.  I need to get back on track with the dieting, and exercise. I'm away again this weekend, but I'm feeling like I need to crack on with it all now.  Hope everyone has a good weekend xx                                 1 ... View more

Daisy, That must have been awful for you. I am glad you had the courage to move and do the things you wanted.  Trixie, we are all here for you to rant away. I wish we didn’t have to take into consideration money when planning our lives it would make things much easier.  Susie, hubby got blasted last week too. I’d like to think I can talk it through rationally, but I let it all build up the explode. I feel I can tell you ladies anything, where as I don’t like to tell anyone how I’m really feeling.    Well I don’t know if it’s chemo brain, early menopause or what, I am mixing up so many words and saying things that make no sense at all today I tried to a Brie and cheese sandwich !! The lady behind the till looked really strange at me and said that’s 2 cheeses, took my friend to intervene and say what I wanted 😫 😫 😫 fingers have gone numb so will catch up later xxx ... View more

Daisy,  you've made me think, I only took 2 weeks off after my died when I was 21. We weren’t given the full picture so I had no idea she was so I’ll, so it came as a huge shock. The cancer thing has brought up so many things I don’t think I’ve ever dealt with, I think that’s why I’m reluctant to go back to work too quickly. I just hope we manage financially.  ... View more