Breast Cancer Care Forum

Nettie I once broke my little toe when I stubbed it hard on the corner of a bookshelf (when I was stomping in a bad mood :) )   I did go to hospital, had it x rayed and confirmed as broken, but you are quite right they didn't actually do anything.  Don't think you can put your toe in plaster or in a sling :)  They just told me not to drive for 2 weeks as the pain might put me off braking , and then just wait for it to get better.   It eventually did.   ... View more

That's brilliant news Sonia!   Enjoy the awards :) ... View more

Hello lovely ladies   As ever, apologies for my absence, I've been so busy I could drop.  And I'm not going to get any less busy any time soon for reasons I'll get into once I've caught up with everyone.   Eek, last time I posted properly was last Friday, this could take a while!   Daisydi, the cost of care homes really is so high.  I don't begrudge the people doing the care work from making a living so I'm not saying they should reduce their rates, but it definitely feels like something that should be subsidised by the NHS.     If your mum didn't have such a good pension it would be bankrupting you and your sister, it doesn't seem right :(      And now you have to pay 2 of them at once for a few weeks, to add insult to injury!  Hopefully it will all feel worth it when your mum is settled at the new place.   Oooh Nettie, a 19 year old toyboy when you were 24, go you! :)  I've always only been out with blokes younger than me.  Well apart from my very first boyfriend who was 2 years older.  I figured they kept me young :)   Hope you are looking forward to Amsterdam.  I haven't been there for yonks.  Might have to put that right next year.   Edinbird, I'm whispering this in case any of my boys see it, but I've never been remotely maternal either!  My 3 kids have 2 different dads (first 2 with ex husband , youngest was a result of my I'll advised post divorce rebound relationship), and in both cases it was the bloke who was the one pushing to have kids.  Left up to me I definitely don't think I would have gone that route.  And I certainly don't think everyone has to have kids, I quietly envy those that have chosen not to!   All that said of course I love my boys to bits and certainly wouldn't undo them.  And having had to bring them up mainly on my own, I don't think I did a bad job at the mothering in the end.  But I do sometimes wonder what my life would have looked like if, like my sister, I hadn't gone the mum route.   And Marlyn, you're right, childbirth isn't fun!!  :)   As for all of you lot and your reincarnation stories, that was a fun read but I sadly can't join in.  I've never really had any spooky experiences or flashbacks to past lives, or anything like that.  I don't think I'm particularly in tune with the spirits :)  other than a very occasional vodka and orange!   Sonia, I really hope the docs can find something that works soon for your hands, especially as you are looking to get back to work.  Will you be resuming your studies too?   Marlyn that really is interesting about your sister's vision of the future!  Again, I have no anecdotes to add.  I'm very boring in that respect.   Rosina I can thoroughly recommend dropping to a 4 day week.  It made all the difference to me and I can't imagine going back.   Seaside I hope your sleeping patterns are improving.  Nothing worse than sleep deprivation.  Did you enjoy what you did see of the Lion King?  It made me cry!   Daisydi those were amazing photos you took of the sunset and the harvest moon!  Thanks for sharing   Trixielady good luck with your symmetrisation (I've probably spelt that wrong!) surgery next week.  I have mine on October 21st.  I'm really looking forward to not being lopsided any more :)   Susie and anyone else who is going to be in London.  Let me know when you might have a gap in your schedule to meet up for a coffee and a hug and I'll see if I can get there.    Marlyn you do make me laugh with your auto erotic neck waxing :D  I also have down bumfluff on my face and neck since chemo.  I'm kind of hoping it might bugger off on its own.  It isn't that noticeable unless you really look for it so I'm ignoring it for now.   Susie your garden looks glorious   Edinbird that curry sounded like a disaster!  Good on you for writing a review and complaining.    Nettie no underarm hair here either.  And I still don't need to use deodorant, I don't sweat under my arms at all any more.  Weird.  But everywhere else the hair has come back now.  Weirdly my down-below thick and curlies are no longer curly, they have come back straight.  Odd.    Susie you can tell your hubby that his theory was right!!! Eyebrows and lashes are pretty much back to how they were before.   Edinbird does your doc definitely think you are in full menopause then?  I know chemo can accelerate it but you are so young :(   Hopefully the associated symptoms will clear up soon   Oooh Susie another spooky story, there are so many recorded stories of near death experiences, there has to be something in it.  I always wondered if it is a hallucination caused by the brain starving of oxygen right near the end.  Thank goodness your other half survived!  Did the girl he was trying to save make it too?   Sonia I'm glad your second Zoladex injection went better than the first and you didn't stagger out of the medical facility looking like you had been shot in the stomach!  I had my first one on Monday.  It was fine (although it stung a bit going in!).   Don't blame you trying to avoid the wrist ops given the long and inconvenient recovery period.  I really hope that the cortisone injections help.  Did you have arthritis in the wrists before all this breast cancer stuff?  Or has it all come on post diagnosis?   Rosina I dare you to do the dying fly on the classroom floor just to shut them all up :) :) :)   Susie hope you had a lovely anniversary meal Daisydi I'm glad you enjoyed your holistic pampering, sounds like it was really beneficial.  I surprised myself how much I enjoyed/felt better after the reflexology sessions I had after my rads.  I've never much believed in anything like that, but I have to admit it definitely seemed to help.   Really glad to hear that the new care home is holding the room for your mum despite the old home playing sully buggers.   Susie the end is firmly in sight for your chemo now.  That seems to have gone quick but I bet it hasn't felt quick for you!  You'll be so glad to see the back of the picc line I'm sure!   Rosina you've put me to shame exercise wise this week.  I've not done as much as usual as I've been super busy.  I did have a swim on Monday but that's it.  Hoping to get to aqua aerobics tomorrow after work if I can get away in time.   Sonia glad you got to pop into work and see everyone.  Hopefully you'll be feeling better and back there soon for a bit of normality.    Wondering how our MBJ is getting on.    And also love to those who haven't popped on recently, hope life is going well.   As for me....  well....  it has been a busy week.   First of all, I have a new job!  Well, a new voluntary post anyway, no money will be changing hands.  I now do a 4 hour shift on Fridays in a local charity shop that supports the women's refuge.  I volunteered entirely on impulse and am now wondering why I did it when I reduced my paid hours at work to give me more "me" time and now instead I'm spending the time I freed up doing more tiring work unpaid!  Daft of me really :D  But I'm excited about being able to do something to help a cause close to my heart.  So it's all good.   And at my real job, my wonderful second in command, who has been an absolute star all the time I was off, and really kept the ship afloat single handedly, handed in her notice this week :(  This means I'm going to be waaaay more busy for a while, because even if I manage to replace her quickly, the new person will need training up.  And nobody will be as good as Georgina was.  She was in 5 days to my 3, but she did more than 5/8ths of the work.   I'm really going to have to step up!   Drugs wise I've now been on anastrazole for 6 days, and so far so good.  I keep waiting for the side effects to kick in and I'm pretty sure I'm not out of the woods yet.  But at least I haven't been instantly hit with something debilitating.    If anything, the one effect I can observe, it seems to have improved my sleep.  My fitbit gives me a "sleep quality" score every night.  Mine was always in the mid to high 70s, never went over 80.  For the 5 nights since I started taking the tablets I have had sleep scores in the low to mid 80s.  Might be a coincidence.  I'll keep watching it....   I also had my first zoladex implant on Monday (ouch).  So far so good with that one too, although it's very early days.   I shall be mightily pissed off if all the bad side effects land on me in 2 weeks time just as I'm about to get on the plane to New York!!!   Vanity wise I'm particularly worried about the threats of weight gain and hair thinning/ loss, which both anastrazole and zoladex state as side effects....   My hair is coming back nice and thick so far and I want to keep it that way!   And as for weight gain, I don't want that while I'm on a bit of a roll losing the weight I put on during chemo: (24lb lost since July)   I'll just have to step my exercise back up, inspired by Rosina!   The other thing that is taking up a ton of my time is the astronaut book I'm trying to get finished before I go to New York (as I want to hand deliver it to it's new home in Brooklyn).  Work in progress:   Also I decided that I'm going to risk bleaching my barnet so I can put some colour on it.  Not going to do it myself though, letting the hairdresser do it the first time, have already been in for a skin patch and strand test, all good so far.   I'm going to get them to clipper it short at the back and sides and then bleach the top bit.  Eventually I'm hoping it will grow into something along these lines (ignore the tram lines and the star, I'm not getting those :) )   Oh and while I was in town I got my nails done did:   And promptly ruined them by getting black spray paint all over them :D Ooops! I think that's all my news?   Oh - one more thing - remember that comic story I was working on for ages about Peggy the prostitute?  The book that is in came out last week and this week lots of reviews have come in and they have all been super complimentary about my work and that has been rather lovely.    So - between working 2 jobs, doing lots of art, soaking up nice praise, occasionally exercising, meeting up with friends for nights out, planning my New York trip, taking ALL the meds, and trying to keep on top of the housework, I'm a little bushed!   Night night all!   Love to everyone Sarah x ... View more

Just jumping in to get post number 6666!  :D   Will actually reply properly in a bit :) ... View more

PS Sonia I wore all black just in case!!!!  ... View more

Hi all, just the quickest of check ins.   I'm sat in the GP's waiting room with my Zoladex syringe, waiting for the nurse to get back from lunch so she can jab me   Depressingly that has given me enough time to read the side effects leaflet.  Kind of wishing I hadn't!   Susie.... my rads planning appt took forever but mine seems to have been different to everyone else's as I had a cannula (which took them over an hour to get in due to my rubbish veins) plus a CT scan in one building then a different scan in a different building then a long chat with the rads nurse.   Will post properly over the next couple of days.  Crazy busy at the mo   Love to all   Sarah x ... View more

I was pregnant and needed to get married quick before it showed!!  :D ... View more

I'll reply later properly but happy anniversary everyone! (Including Susie's coming up)   Must be the time of year for it as it was my 30th wedding anniversary a couple of days ago too (I was married 9/9/89), not that I celebrate mine much :D   As for London trips.  I'm in London a lot, often work down there midweek, plus I could hop on a train easily pretty much any monday or Friday, so if any of you are ever there and want to meet up for a coffee, just yell.   And Edinbird.... I'm amused:D ... View more

fantastic!  that's about the length/shape I want, I don't want claws :)   I might pop into one when I'm in town tomorrow, and get it done now if they accept walk ins, so I can see what it is like, and then get them done again in 3 weeks just before I jet off.... exciting times, I'm fed up of them being all raggedy and falling apart ... View more

Ta   Not sure how I'd tell the difference between a good one and a rubbish one.  I'll see if any of the far girlier-than-I ladies at work recommend a place....  ... View more

Ah cool.  I just wanted to know that it was possible before I walked into a nail place and they laughed me out of the shop :D   Thanks ladies ... View more

But if they do a gel polish they can't add any length, can they?  Isn't that just like a normal polish but stronger/longer lasting? I don't want super long nails (talons as you called them :) ) but I don't want 4 nails only halfway grown....  ... View more

Oh that new room sounds like it will be so much better for your mum, Daisy.  It really is such a worry isn't it.   My other half has been moving his nan from her previous retirement flat into a care home over the last couple of days.  She really can't be on her own any more.  It has all gone quite smoothly so fingers crossed so will yours.    One thing I forgot to mention earlier in my big post, and also a question.   The thing I forgot to mention was my nice surprise earlier with my travel insurance.  Obviously they knew about my health issues this year as I claimed from them earlier re missing my American trip in March.  But I thought I had better ring them just to see how things now work - I have an annual all countries policy, and I figured I would now need to either give them more money, or that they would cover everything other than breast cancer complications.   Anyway they asked me a few questions about my initial diagnosis and treatment to date, and then told me I am still fully covered at no extra cost.   I was rather chuffed with that!   So I can relax a bit about my trip to New York next month.   The question is about nails.  Do any of you know anything about nail salon places?  I've never set foot in one!   I've now lost 4 fingernails , but when they came off, they didn't leave naked fingertips, there were other nails underneath.  I presume it is these new nails that are forcing the old ones loose.  Very odd.   So anyway, now both my pointy fingers and both thumbs have super short nails like so:   (The one on the right).   I'd quite like nice nails for my New York trip.  Does anyone know if they could glue (or whatever they do) fake nails over the top of these, or do they need a full length nail to work with?   And how long do the fake nails last?   I am so ignorant about girly stuff :)   Sarah ... View more

I'm exactly the same with the words.  Couldn't remember the word for scissors the other week.  Had to ask my son to pass me the "pointy cutty things"   And I wrote a proposal at work yesterday that took me hours longer than usual.  Just couldn't conjure the words I wanted.     ... View more

Hi everyone sorry I've been AWOL - been insanely busy and also fighting a bit of a cold, so not a lot of catch-up-with-my-ladies time available.   So - where do I start?? :)   Marie - how are you feeling? I really hope that the heart meds are gentle on you and that things might improve for you at least a little the further away you get from the chemo that did the damage in the first place - still very annoyed on your behalf! It feels like what they ought to do with chemo is start us all off on a reduced dose for the first cycle, just to see what we can tolerate, as we are all so different, and then ramp it up if need be from cycle 2.... it seems crazy to go in with the super high dose and then go "oooops" when it is too late :(   Even for those of us who tolerated it better, it really does knock you back to a place you aren't sure you'll ever fully come back from - most of us still have aches and pains galore - and some of you have been having the sweats - and I definitely tire so much easier and quicker than before. Chemo is long term brutal! I know it has its upsides, but so many downsides too, that no amount of reading up on potential side effects in advance can really prepare you for.   Anyway - I'm rambling - I hope you're ok doc xxx   Susie - you didn't need a glass of water to chuck at your other half when he complained about the shower - you could have just doused him with the shower head! I would have! :D (This is probably why no man has dared to live with me for over a decade)   Daisydi , I'm really glad to hear that you are getting back into a better sleep pattern. Sleep deprivation is the WORST. I've not slept well the past few nights because of this cold, and I'm a very grumpy bear because of it.   Did you ever get a definitive answer re how long the meds-induced hot flushes last? Because my onco has now decided I might be peri-menopausal not post-menopausal as the lab originally indicated, I'm starting next week on a double whammy of Zoladex and Anastrazole, which apparently is the ultimate hot sweat cocktail. Oh goody. If I know they will "only" last 6 months or so, I reckon I can put up with it. If they go on for the whole 10 years, not so much!   I'm very reassured to see that our Trixielady's Letrazole sweats only lasted a month or so.   Marlyn - have you tried out that pink hairspray yet? At this rate I'm going to be the only one *without* pink hair, talk about the world turned upside down :D   As for eyelash curlers, that is something I've never even tried, that or false lashes. The thought of poking around near my eye makes me a little squeamish. Even putting mascara on makes me a bit nervous! :)   And uncaring siblings? - stuff em. My sis can be a pain as you know :) Although to be fair she does ask how I am. Just before having a go at me about something :) It's my adult sons who have shown absolutely zero interest in my health issues, which kind of surprised me, but hey ho. Maybe the whole thing just makes them uncomfortable and they would rather pretend it isn't happening.   Susie - I also use stairs as a gauge of fitness. I am still a long, long way from bounding up and down stairs like I used to, but when I am feeling really fed up I remind myself of where I was in June just after my last chemo, when it took me forever to get up the stairs and it totally wiped me out. Even the slightest incline in the street felt like climbing Everest. I'm definitely moving forward (and upward :) ), which is encouraging.   I've looked at that Dyson hairdryer too, but I just couldn't bring myself to spend that much on something so utilitarian, especially given half the time I'm drying my hair at the gym anyway with their dryers, or on a sunny day, just letting it dry by itself. They are supposed to be good though. As is their curler/straightener thing, the Airwrap. My sister treated herself to one of those the other day in John Lewis. £450!!!! for a hair curler!!!! Dyson are one of my clients at work, but sadly they don't give us a supplier discount.   Talking of hair, good news that despite still chemo-ing, you don't seem to be losing any more.   Enjoy that summerhouse while you can! it's getting chilly round these parts now.   As for "going grey gracefully", I'm somewhere between Susie's "no way" and Rosina's embracing of it. I don't mind how it is right now, kind of salt n pepa, as I'm not looking to colour it again until it is a fair bit longer (super short, brightly coloured hair will just attract those ladies from the other bus that we discussed! :D). And, like I said before I think, I actually prefer the grey to the boring mousy brown it used to be. But I'm not planning on keeping it like this forever, I do want my crazy colours back in a year or so.   My main problem with it isn't that it makes me look old, as such, but it does make me look my age :) And I'm not used to that. I'm used to kidding myself that I'm still a youngster.   When I changed my Facbook profile pic to this one earlier this week:   lots of people said very nice things, but one of my best pals commented "but this is a grown up. Where is Sarah?!" and that's exactly how I feel :D Like I am cosplaying as a 52 year old :)   Makes me wonder if perhaps it is time to grow up a little ..... but, I only think like that for a moment and then it's "nah..... :) " But yes, for the moment, I shall brave the "au naturel" ;)   Back to Daisydi - no critical illness insurance for me either. I did have one, but it was linked to my mortgage, and was there to pay the mortgage payments for me if I couldn't pay them due to not being able to work through a critical illness. I think that is the only circumstance under which it paid out, and I haven't missed any work, and besides I paid off my mortgage anyway 2 years ago when my dad passed away, so it got cancelled.   That's a genius idea about reducing retirement age if you've had cancer, I wish they did do that! Sadly I'm pretty sure they don't. My retirement age is 67 - seems like a loooooong way away.   Trixielady, liking the holiday snaps, hope you had a great time. You look a lot happier in the photo with wig than without, but I bet it was hot under there! Give it a year and I bet we will all be feeling much happier about our hair once it has a bit of length and we can slap some colour on it.   Seaside, how was your first home game? Annoyingly I missed ours as I was away, but we lost anyway (and by all accounts played really badly), so I'm not too sad :) I'll be at the rink this weekend though.   As for your hubby and him liking the short hair, that's a bonus, but you need to like it too! Maybe you can get to a compromise length over time. Or just get it how you want it and he can mind his onions :D   Back to Susie re recovery time after rads. There has been such a wide range of reactions between us all, that it is difficult to predict how quickly you will bounce back, but for me (I was lucky!) it was almost instant. If you remember I had booked the fortnight after rads off work as holiday, because both the onco and the radiotherapist warned me that the 2 weeks following treatment are the worst, and I would feel exhausted, and my skin would be peeling off etc. As it turned out, I felt absolutely fine pretty much straight away, never had any skin issues, and my energy levels were better than they had been in months. Like I say, I was lucky, but at least that's proof that you aren't 100 percent doomed to have a bad time in those 2 weeks.   I guess it depends how much you are planning to do in London, as long as you build in a few potential rest stops etc, I reckon you'll *probably* get away with it. At least if you so have a bit of the old radiotherapy sunburn you'll be covered up anyway because it will be winter....   How are you getting on with your big wardrobe clear out and re-stock? :)   Marlyn, hope you've got some more sleep since your rubbish Monday night x I do like the idea of you flouncing around in your "dramatic" t shirt though, sorry it made me giggle :)   How is operation noisy bathroom going?   Sonia, thanks for setting up that Messenger group so that we could keep in touch when this forum kicked us all out again, I did miss the non Facebook ladies though (Seaside, Susie, Daisy, Trixie etc). I didn't realise that you could use the Messenger app independently of facebook, that's good. Would you non facebookers be happy to download the app so that you could join in if the forum goes dark again?   Or I'm fine with WhatsApp, either or.   Susie, your hair looks great! Nice cut. You have way more than some of us skin'eds :) I'm totally with you on missing my fringe. I'm not used to seeing so much of my forehead :) (oh and SIL is short for sister-in-law) Marlyn - I just looked up trigger finger, we definitely don't want that!! I'm trying not to worry about any potential side effects that are listed as anything less than "common". I depressed myself looking at the Zoladex side effects online, and then thought, to balance it out, I'd look on the same website for the side effects of the blood pressure meds I've been taking for 10 years with absolutely no problems at all. Sure enough there was a scary list as long as my arm, all sorts of horrid things - not one of which I've ever experienced. So I'm trying to adopt an "I'll worry about it if it happens" mindset.   Daisydi, your oncologist is even more of a stranger than mine was. Mine disappeared for months on end too, I didn't see him once during chemo. I hope when you finally see him (or her?) in November they are at least helpful.   Nettie - you have such lovely eyes! And your hair is about the same length as mine by the look of it, wish mine would get a move on too! I'm using that Caffeine head and shoulders shampoo that I mentioned before, and taking these supplements:   Not sure if it actually makes it grow any quicker, it seems not compared to some of our other ladies, but it does seem to be growing back nice and thick and healthy.   Daisy - you mentioned hairy fingers - I'm seeing more hair on my face than I had before, on my cheeks and chin. It is very fine (bumfluff :) ) and you can only see it if you get up close, but it is annoying me a little as it wasn't there before. I'm not going to shave it off though as I don't want it coming back stubbly!! :)   Edinbird, we've spoken and you know I'm really sorry to hear how your first day back at work went :( Like the others have said, you're already doing the "putting yourself first" thing by going to Maggie's asking for some help, making new contacts of people locally who can support you etc. You've had a TOUGH year, I mean we all have, but yours has been extra tough, be kind to yourself for a while and I promise things will look brighter in a month or two.   Sonia, your hair looks great - you'd never have the foggiest clue that you were chemoing a few months ago!   Daisy - I remember you mentioned before about losing your sister in an accident, but I didn't know all the details :( I feel so guilty now for moaning about my sister on a regular basis! I do love her really. I honestly can't imagine what it must have been like for all of you, and the thought of her children (presumably not little children at that point but, still) having to come home without her is just utterly heartbreaking. I just can't think what that must have done to them :(   I can see why you needed to have a clean break after such a tragedy. Otherwise there would be so many daily reminders it would be unbearable.   On the more positive side I'm glad things are moving in the right direction for your mum's care, I hope that the move to the new facility isn't too much of an upheaval for her.   Trixie - if you don't feel like you are getting comprehensive or useful answers to your questions from the onco - would it be worth taking someone else in with you to keep prodding until you get straight answers? I'm lucky that my onco is fairly straightforward, but my friend had a similar issue with hers that you seem to have with yours. She started taking her husband to the consultations and he basically made absolutely sure that everything was answered thoroughly and to their joint satisfaction.   Susie, you're making perfect sense, don't worry :) Glad you are perking up a bit.   Sonia I'd happily eat a 2-cheese sarnie, I love cheese! (That's why I put on so much weight during chemo, my inner cheese monster was fully unleashed :D)   Rosina - don't sweat the small stuff (as irritating as it may be!)   And - I'm caught up!!! Remind me not to leave it so long next time :D   I shall leave you with some (from hundreds of!) street art pics from my exhausting long weekend (there were 2 big urban art festivals on at the same time, which was annoying, one in Cheltenham and one in Birmingham - so I was in Cheltenham all day Friday (didn't get home till nearly midnight), then in Birmingham all day Saturday (another long day), and then back to Cheltenham from lunchtime on Sunday. SO much walking, and a lot more driving than I've done for months too.   Roll on this Friday when I intend to REST UP. Love to absolutely all of you Sarah xxx         My motto :D   ... View more

Just a very quick pop in before I hit the road, this weekend is mental busy.   Just wanted to extend further big squishy hugs to Marie and Daisydi.  Love you both and I hope things look better soon.     And Edinbird....  you probably got the cannula idea from me as I had one at my rads planning meeting.  They used it to pump some kind of tracker dye through my system for the CT scan.  Maybe that isn't standard?   Catch up with you all properly on Monday x ... View more

Try not to stress.  It really doesn't help.   Easier said than done, I know. ... View more

You rant away!   I've never had any kind of scans.  Bone or otherwise.  I don't get why some people get scans and some don't.     I'm fed up too.  Let's all be fed up together. ... View more

Hi all   Edinbird I had the same rads, 3 weeks all over (right up to the neck, never had any problems with swallowing), and then a week of boosts to the tumour site.   I just came out of my onco appt and he asked me how I got on with rads and I said to him that it was a doddle.  So here's hoping it's a doddle for you (and Susie) too x   Bit deflated after my appt actually.  On the plus side he gave everything a good poke and prod and is happy at how I'm healing up / losing weight / generally looking healthy.   But after being told before that my bloods indicated that I am post menopausal, hence anastrazole only (which I wasn't too worried about), he has now decided that the bloods weren't 100 percent definitive, and that he would rather treat me as peri menopausal, which means monthly zoladex implant injections for 3 to 4 years, as well as the anastrazole.   Not only a pain in the butt as it has to be done at the GP (and my GP is literally impossible to get an appointment at, I've not managed to see them for over 2 years despite occasionally trying.  Even when I first found my lump I had to go to a different surgery to see a GP to get referred because my GP wouldn't see me), but also the side effects sound pretty nasty.  Are any of the rest of us on zoladex?  I think maybe Sonia may have mentioned it before?     Also, apparently I have bloods this Monday and my first zoledronic acid infusion Tuesday.  Which was the first I'd heard of it.  Haven't had a call or a letter.  And I have some important work meetings Tuesday morning which I'm now going to have to change.   Plus he wants me to go back to the dentist AGAIN as I've seen two, one who said I had to have 2 old dead teeth at the back of my mouth taken out before zoledronic (they have been dead for 10 years and I've had zero bother from them), the other who said that taking them out could cause more bother than leaving them be, so I should leave them be.  Now the doc wants a third opinion but I'm running out of dentists!!!  I really don't want them taken out unless it is 100 percent necessary so I think I might just insist.  But of course he has now scared me with tales of "necrotic jaw disease" or words to that effect and I don't know who to believe....   All in all, a big palaver.   Think im going to go to bed, watch a couple of episodes of Lost and not think about it all for a bit....     ... View more

Oh Marie you sound utterly defeated and I don't blame you :(   I just want to get in the car and drive to Wales and give you the biggest (gentle) squish!!   Really, really hope this turns out to be less scary and more manageable than it currently seems xx  and bugger about the cruise :( :( :(  There will be other cruises (I know that doesn't help AT ALL.  I'm still bitter about missing my American trip in March!)   So much love to you xxx ... View more