Breast Cancer Now Forum

Hi I read the side effect list that the BC nurse gave me and it is on there.  I have an appointment with my oncologist in a couple of weeks so i will mention it to them then.  Are you on Perception and Pertuzumab? how many have you had? Debi ... View more

Hi Preet i am not sure how many i had before my eyes started watering, it was really on and off with it.  It was just after my last session (no.17) that it started more and my eye was also blood shot this time.  It seems to have settled down a bit again now. Debi ... View more

Thank you lovemama for your reply.  The watery eye seems to come and go.  I have had very slight watery eyes on and off with all my treatment but this time it is more persistent, it just seems unusual because it was my 17th and last session!   Debi ... View more

Hi NikNak It is a roller coaster of emotions, you are not alone.  I have had really down days, anxious days, every pain in the book days.  I make sure i get myself up every morning do a little bit of steady exercise, get out in the garden as much as i can and smile on the good days.  Its ok to rest, not feel too good but if it becomes everyday i would contact your BC team and maybe they could refer you to someone.  I have been referred to a support worker who helps me talk about how i feel and the worries i have - it helps.   The current situation doesn't help either, but we have come through so much we can get through this also.   I will keep checking back on here if you want to vent anything or just talk, i think how you are feeling is totally normal and as i said above 'you are not alone'. Take care of yourself  Debi 💖 ... View more

Hi Susan Do you have a link for the compression band?  I have been given some padding with cubes of foam in it to put in my bra, it is supposed to have a massage effect and help fluid between the breast tissues drain away.  I have been using it for a week now and the pain is less and suppleness as improved. I thought the compression band would be good to sleep in for support - not that i have a large bust - and maybe stop fluid build up overnight.   ... View more

Hi Truccles I had my surgery in Sept '19 followed by radiotherapy which finished in Dec.  My breast still feels very sore and my nipple has changed shape on the surgery side.  I mentioned this to my consultant who is sending me for a scan.  She said it is probably still settling down after all the treatment.  I have been really worried but after coming on here and reading some of the post it is reassuring to me to know that a lot of women have had some sort of breast pain and swelling long after their treatment finished and it seems to be quite normal. I am not on Tamoxifen but still have Herceptin and Pertuzumab every 3 weeks, these are due to finish in June. I am still going to go to the scan appointment even though i am anxious about visiting the hospital due to the current virus because it is the same building that the Covid patients are in.  I feel just like you with things at the moment being like Deja vu.  Was just getting back to 'normal' then back at home again.   Take care  Debi ... View more

Hi   Saw my consultant who sent me for ultrasound and then i had my seroma drained again.  I asked the lady that did the ultrasound if thats all she saw and she said yes just the fluid build up with the seroma.  I am a little more relaxed now but still fret about checking myself. Works going well, but my memory is taking some time to retain things i have been shown how to do,  hopefully it will get better with time - surely it can't still be 'chemo' brain? Best wishes to everyone and stay safe from the current virus. Regards  Debi x ... View more

Hi Sue   I was told that i would have yearly mammograms for 5 years, they said it would start 1 year after my surgery which won't be until Sept.   Debi x ... View more

Hi Everyone   Just a quick question again - is anyone scared to check for lumps?  I have found myself putting it off until 'tomorrow'.  I think i am frightened that i might find something.  I know we should be vigilant but i don't think i could cope with finding a lump and going through it all again.   Debi X   ... View more

Hi Everyone   I am now back at work - first week, i am on phased return so just a few mornings a week for now.  I can tell you i have felt very tired over this weekend, hope this improves as i get more used to the commute again.   Has anyones nails got worse since stopping treatment?  Mine were lovely when i was on chemo and radiotherapy but now they are ridged, quite brittle and flaky.   My hair is growing back but i still wear my wig, not sure i can do the short hair.  How is everyone else's hair getting on? Oots i wish i was as confident as you to go with the grey but i am struggling.  Maybe in time who knows.   All the best to everyone, we've certainly come a long way since our first posts, but girls we have smashed it!!  Thank you for the support and help on this forum.  I will keep popping back to chat and hopefully catch up with you all.  Take care and love life 💖  Debi ... View more

Hi all   Well the results of the wash in wash out hair colour was just that - a wash out!  Just gave my hair a very slight pink tinge👎   Debi ... View more

Thank Liz.  I have bought a wash in wash out one to try. i will let you know the outcome,   Debi ... View more

Hi everyone   Has anyone dyed their hair yet? how long did you wait before dying it?, mine has come back a salt and pepper grey.  I don't mind the shortness of it (i think) but not the colour.  My young natural colour was brown.  I still have Herceptin and Pertuzumab every 3 weeks so not sure if that will effect the outcome of the dye!   Debi ... View more

Hi Everyone   Got CT scan results today, everything looks fine - nothing that overly concerns consultant.  I have to have a ultrasound scan on my womb (swollen) and my seroma under my surgery arm.  If i carry on losing weight and having upper abdominal pain he would like me to have the camera down.  Feel a little relieved but not as much as  i thought i would be.  My scan also showed up a recent fractured rib !! (i thought i had badly pulled a muscle😱.   Debi xx ... View more

Hi Sue   I haven't heard anything back from my scan which was last Thursday 19th.  I could have called to ask but i want to wait until my appointment on Jan 3rd, i just want to try and enjoy myself over the Christmas break.  I will probably ring and make sure the report as been sent to my oncologist so he has the results when i go.   Debi ... View more

Hi Sue   That is wonderful news.  I am so pleased for you.  Have a great New Year.   Debi xx ... View more

Hi everyone   Sue - I am sorry to hear of your worry, i too am in the same situation.  My doctor sent me for a CT scan and blood test because of a pain i have in the middle of my chest and because of the weight i have and am still losing.  He said it was just as a precaution and he wasn't overly worried.  Even though he said that , i just keep thinking it is something more sinister and he just doesn't want to upset me before Christmas.  I go back to see him on Jan 2nd to find out my results.  I am trying to put it to the back of my mind but it keeps creeping back and then i get all upset.  I don't think i can cope with any more.  I hope you get to the bottom of yours, try and enjoy Christmas, this as taken up too much of our lives already don't let it consume you with worry.  I keep this quote about worry on my desk top, it gives me strength: I also listen to Queen "Don't stop me now" on full blast and sing along to it.   😊 Debi xx ... View more

Hi all   I hope everyone is well and getting on with things.  I noticed there hadn't been any message on the April post for quite a while. I popped on to ask a question (hoping someone is there😊) I just wondered if anyone as lost weight from the start of their diagnosis?  I was weighed by my consultant today and i have lost around a stone since March.  He has referred me for a blood tests and a CT scan which has really worried me.  Any one have the same?   Debi xx ... View more

Hi Everyone   Radiotherapy starts on Wed - 20 sessions.  Will be finished just in time for Christmas!   Can i just ask - does anyone feel reluctant to plan anything for the future?  I was going to book an holiday for Sept next year but i fear that if i book it something 'C' related will pop up and i will have to cancel and fear losing my money.  Is this a normal feeling or am i being paranoid?   Debi x ... View more