Hi all I am just about to go and book an eye test to see if my prescription has changed as I am really struggling with the fine distance and near (no glasses pre bc diagnosis). Having worked in and managed an Opticians for 14 years I am well aware of reduced level of eye accommodation when someone is tired / run down so have put my poorer vision down to this. Since coming off HRT I woke regularly with hot flushes but always managed to get back to sleep. Since starting letrozol I struggle to get to sleep and when the hot flushes wake me I seem to lie there for 2/3 hrs before falling back into deeper sleep only for the alarm to go off for my partner to go to work. I then have the ‘tired fog’ for the rest of the day. So I have put my vision probs down to this as tired eyes don’t work as hard to get a clear picture (is a rough way of putting it). I am worried about getting back to work and coping with this tiredness- Pre bc I was lucky enough to enjoy a full nights uninterrupted sleep! Sorry to digress on this string but Anniej I note you mention a better nights sleep with CBD oil? I would be grateful to hear more on this if anyone has experience / info? love to all xx
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Thanks for posting.
Letrozole can cause a range of side effects. The severity of these can vary so much from person to person. Some women tolerate it very well, others do not and it can really impact on quality of life. When side effects develop and don’t settle down (which can sometimes happen when you first start taking it) some women may try ways of managing the side effects or try a different drug. Some however do decide to discontinue it. It’s not clear from your post if you are having side effects or concerned about them developing.
While there have been many studies looking at hormone therapy adherence, we are not aware of any overall figures that say how many women do stop taking it and at what point. These studies also don’t tell us is what the outcome of discontinuing was.
The aim of hormone treatment like letrozole is to reduce the risk of the cancer returning. It might be helpful to discuss this again with your oncologist. You may, together with your oncologist, be able to go through the online decision making tool NHS Predict. This can help demonstrate the potential additional benefit of different treatments for early invasive breast cancer after surgery. You can then weigh up the benefits against the potential drawbacks for your individual situation.
Do call our free, confidential Helpline if you would like to talk this through or have any further questions. The number is 0808 800 6000.
Our opening hours are Monday to Friday 9am - 4pm and 9am -1pm on Saturday. Out of hours you can leave a message and we will call you back when we next open.
Breast Cancer Care Nurse
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Hi Maxy, i am still on here and do look at the forums. i am still taking the letrozole, and I take various supplements to help w the side effects. (Vit D, calcium, cranberry). I’ve been taking it for 2 years now and I think my body must be used to it, however I do still have a few flushes and bone aches (mostly when tired) and the occasional uti. If you’re really struggling I really would talk to your oncologist......there are several types of Hormone suppressant ...maybe that can Change yours to something that suits you better. i wish you well xx
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