Thank you for all of your comments and questions about the campaign.
More information, including the report setting out our recommendations for UK Governments, can be found on our website.
We shared information about the campaign in an email to all supporters on Friday and across our social media platforms. However, in future, I’ll also ensure we post in the Forum.
Before I explain more about the campaign, I’d like to apologise if the campaign name has caused upset – this was not our intention. We are reviewing all of the feedback we’re receiving to see how we can reflect it in future campaign messaging.
I wanted to explain a little bit about how the campaign was developed. For years we have been frustrated at the lack of progress in the support offered to people living with secondary breast cancer. We know we need urgency from Governments and health bodies across the UK.
We worked with our Secondary Breast Cancer Campaign Group (a group of 29 people living with secondary breast cancer from across the UK) and undertook a comprehensive survey that 2,102 people completed. A strong message we received during the development of the campaign was the need to be bold, and to emphasise the fact that people still die from secondary breast cancer as a central message of the campaign.
However, also at the core of the campaign is the ambition that people can live well with the disease, and we want to bring about urgent change to ensure that can happen for as long as possible. For example, our other campaign content features stories of people living with secondary breast cancer, highlighting that they are living well now but that we need to see improvements to diagnosis, treatment and support so that everyone can live well for as long as possible. I'd really appreciate people's thoughts on this campaign content.
The report sets out the actions needed by Government to achieve this change. Again, if people have views on any issues in the report that they would like us to cover in a similar style to the link to the video above then please get in touch with me and let me know. Similarly, if anyone would like to share their experience with us then please let me know.
I hope this information about the campaign is helpful. You can get in touch with me any time if you’d like to discuss anything in more detail. My email is Hannah.Maybour@breastcancernow.org – and we can also always arrange to speak by phone.
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Hi Nicky I work at Breast Cancer Now and wanted to let you know that we have launched a new campaign today focused on secondary breast cancer. The campaign is called 'The Unsurvivors' and aims to challenge the perception that everyone now survives breast cancer. We want to shine a light on the experiences of people living with the disease and have out recommendations to improve diagnosis, treatments and support so that women and men can live well for as long as possible. There's more information about the campaign here: www.breastcancernow.org/unsurvivors And here is a link to the full campaign report I hope this information is helpful. Thank you Hannah
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Hello everyone, As part of a new campaign, that we hope will make a massive difference to people affected by secondary breast cancer now and in the future, we have launched a new survey which we’re aiming to make the biggest of its kind. We want you to tell us about your diagnosis, treatment and support, as well as the impact secondary breast cancer has had on you. You might have seen the survey shared across some of Breast Cancer Care and Breast Cancer Now’s channels over the past week. We are really pleased that around 800 people have already taken part! We’ll listen to what people tell us and use this insight and experience to help inform our campaigning on the issues that could make the biggest improvements to secondary breast cancer treatment and care. This is your chance to have your voice heard and use your experiences to make a real difference. Please take our survey: http://www.myonlinesurvey.co.uk/BC19DMGS/ The more people who complete the survey, the more it will tell us about the current state of secondary breast cancer treatment and care in the UK. So, we need as many people as possible to take part - please share it far and wide. If you have any questions, please don't hesitate to get in touch: firstname.lastname@example.org Thank you as always for your support Hannah
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Hi everyone, We’re looking for people from across the UK, with secondary breast cancer, to join our newly formed Secondary Breast Cancer Campaign Group. We’ll be bringing together around 25 people, with a wide range of backgrounds and experiences, to join this exciting new group to help shape a new campaign and test our ideas. You can read more about the Campaign Group and apply here: https://www.surveymonkey.co.uk/r/8WYJTMS Applications will close on Sunday 14 April. We will let all applicants know if they have been successful by Friday 19 April. If you have any questions about the group, f eel free to comment on this thread, or if you wish to ask a question privately, please just contact me: Hannah.Maybour@breastcancercare.org.uk Thanks everyone, Hannah
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