Breast Cancer Care Forum

Hi Everyone.   What a decision to have to make. I had my full clearance plus 6 more higher up 7 weeks ago. This op came totally out of the blue. My original diagnosis was in Feb this year. Had a lumpectomy and 2 nodes removed, one clear and one very stated micro cells. Told by surgeon margins clear, not need for further surgery and onto chemo and rads. Well chemo dudbt fully work out well with lucer issues and had a ct scan in July, to he told that I had another swelling in the lymph glands in the same side. Turns out that even with 3 doses of chemo one gland had grown to 22mm in size. So 16 glands removed in total and only the one tested positive. Turns out even when you think your clear something can change so quickly and without having th ct scan we might have never found it. Xx ... View more

Hi Lovewine   Sorry to jump into your thread, I'm in the April 2019 thread. I came across one of your old post from 2014 which said you had a swelling in the lymph gland just before the end of chemo. I'm in a similar situation. Lumpectomy and node removal only and straight into chemo. Unfortunately my liver reacts badly to any chemo, tried 3 types and they have now stopped it altogether. Had a ct scan last week to check the liver but been told that it shows a swelling under my arm on the same site as the surgery. What was your outcome. I'm awaiting my appointment for next week and hoping it's fluid that needs draining.   Regards Zoe ... View more

Hi. I've just turned 39 and started my journey in January. Thankfully I only needed one surgery to get margins clear. My tumour was a grade three (invasive) and they only deened it stage 2 due to the tumors being 22mm in size.    There was never a discussion that didnt involve chemo. I knew from the original diagnosis even though my lymph gland are clear.  Hope this helps the journey ahead may gave a few bumps in the road buy strength gets you over them and carry one. Xx ... View more

Haa anyone else had their FEC stopped!!!!   Hi All   What a day, normal visit to oncologist before chemo tomorrow and all has changed. After my first FEC I had neutropenia and also an issue with my Liver Function being quite high so my 2nd round of FEC was reduced (well the Red E was put to 60%). I had to have blood tests twice the following week and I thought all was well. Bloods yesterday are ok but now I've had to stop my FEC altogether to the E causing drug induced Hepatitis. So tomorrow I am switching over to T to see how my liver reacts, so may have 4 rounds in all instead of 3. Now I'm worrying that if my Liver is not in a good place then I may have to stop altogether. I know I am more fortunate than others as all my cancer was removed during surgery and that this is more belt and braces to protect myself, but its still worrying.    So bring on the T and see what happens. ... View more

I'm so sorry to hear round one is bad for you. Mine was horrendous which included s hospital stay with neutropenic sepsis.    I would def ask for emend, I had a bad reaction to the ondastratron and it was making my nausea worse.   Dont suffer in silence, ring the chemo line.   Zoe xx ... View more

Thank you for all the kind messages. Manages to get the doctor agree to let me come home so I can be here tonight to settle girls before school tomorrow. Wow what a strange thing being told your febrile neutropenia is so low. Count is now 0.38 and on 5 more days of antibiotics. Has anyone been told about what foods to avoid in the second week. Its amazing, you shouldn't even have a sandwich lol   Keep strong ❤ xx ... View more

Well like a bolt of lightening I was admitted to hospital last night..... feeling fab after a rough start and routine bloods meant a urgent admittance due to febrile neutropenia. On IV antibiotics and after a 3rd blood test its started to rise. It's all a waiting game as to when I can go home. ... View more

Thank you. I only wish I could find the energy to go for a walk. I find it hard enough to hold my head up off the pillow.   Think I may need to have a chat with myself x   ... View more

Day 5 on first round of FEC.....   Well I can honestly say the fatigue is far worse than I imagined. The sickness came within a couple of hours of being home. Starting to think I cannot do this and I'm not strong enough. I cannot even be a decent mum to my 7year old twins. Everyone keeps saying things will improve daily but its hard to keep a smiley face.   Zoe x ... View more

Thank you all for your kind replies. I'm feeling well but then I suppose it might all change on Thursday. The closer it gets the more anxious I am.   I have a 8.15am appointment so they shouldn't be running too late.   Hugs to you all xx ... View more

Thank you for your reply. I too get sick easily. I was extremely sick during pregnancy having to take three different anti sickness to survive. I've already mentioned it to the doctors so hoping I can have the works as i still need to function as a mum first and foremost.    Xx ... View more

Hi all.    New to this forum so thought I would drop in to say Hi.   Is anyone starting FEC-T.   I'm 38 and a mum of 7 year old twins girlies. I've had my surgery and my first of three rounds of FEC is on 18th April then followed by three round of T then to Radiotherepy.    Feeling ok about it, which people seem to think is rather strange. Had my long hair cut off to shoulder length in preparation as I've decided not to cold cap as I suffed migraines and im not keen on having a cold head. Fully prepared for the hair loss.  Although the oncologist say that my hair might not fall out on the FEC, I have a colleague who lost hers on the first treatment. At least were coming into the summer months not the winter.    My gorgeous girls are my rocks. They are fully aware of what is happening to Mummy and they will be the ones to shave my head when the time comes.    We are all amazing going through this blip in our lives and it's a fight we must never give into.    Zoe xx ... View more