Breast Cancer Now Forum

Hi Lucylump, I hope Thursday goes really well, and I am really hoping my post has calmed any fears.  I know I was scared, and expecting allsorts of instant ill effects, don't worry, it almost definitely won't be as bad as you think. xx. I am away next week, but will look out for how you got on when I get back.  Take care. xx. Hydrate, hydrate, hydrate. xx ... View more

I had my first chemo yesterday (Paclitaxel & then Trastazumab (sp?)).  I am AMAZED, and happy to report that today me and hubby had a great day trip out to the Isle of Wight cycling in the sunshine (about 20 miles).  I don't want to speak too soon and am pretty sure I will be wiped out tomorrow but today I feel remakably unaffected.  If anyone is starting soon please take some comfort from this post.  I was really scared, please don't be, I hope the start of your treatment is a gentle as mine has been.  Love and hugs to you all.  xxJ.  ... View more

Good luck tomorrow Avilajo, 40 is a great number, I hope you have lots of help. J. ... View more

I hope it passes quickly nicolaj. x @Alvilajo wrote: Also Nicola don’t forget to drink lots of water xxxx @Alvilajo wrote: Hi Nicola, I don’t think I felt sick until day 4 when i stopped the 3 anti sickness tablets they give u. Then I went on the other ones. But we’re all different. I hope you feel a bit better soon. You might have a tough day followed by a better one, rest up and don’t over do things like I do. Headache could be just stress from the day. Take care hun vic xxx     ... View more

Thanks for the reminder to keep hydrated Shi.  I start twelve cycles of Paxil tomorrow.   ... View more

I hope your headaches get better very soon Clairabella.  ❤️  ... View more

Hi mini mad.  Sorry you are here too, but equally glad ladies like you are so we all have someone to talk to.  It's hard to keep a lid on it sometimes eh?  I ordered some picc line covers on ebay, and I have heaps of scarves and snoods to make use of when the time comes.  Hope the PICC line goes ok for you lovely, they are gentle professionals and give some local anaesthetic; it really isn't too bad honestly.  xx ... View more

Thanks Alvilajo, proper dreading it.  One thing I also struggle with is wonderful friends seem to trying to make me laugh about it!  Oh haha we can all have some fun with wigs, or oh you can make a great fashion statement with wonderful funky scarves!  God bless them they must be reading some website about "how to cheer up your friend with cancer".  Clearly they have lost the plot, I am a fat 54year old, definitely young at heart, but I live and die in jeans and tee shirts and never wear a scrap of make-up.   I will never wear a wig and will prob choose snoods to keep head covered when my hair starts going on a little holiday.  Big love to you all. xx ... View more

Hi ladies, well after what seems like a long wait my chemo starts next Thurs 27th.  Paclitaxel weekly for twelve, Trastuzumab every three weeks for a year.  Had two ops earlier this year, HER2+.  Decided againgst cold cap, can't be ars**d, will probably need a scarf anyway so thought I (we) are going through enough why add more pain/discomfort.  I realise it's personal choice though, anyone choosing it is braver than me!  Had PICC line in yesterday, not tooooo bad, but every time .i go near the hospital it sets my emotions off and I struggle not to cry.  Am dreading chemo.  At home I just act normal.  The day after my first one I am due to go to the I.o.W for the day cycling!  No idea if that will happen as no idea how I am going to feel.  Does it wipe you out after just one session?  Oh flip, I am seriously dreading the next three or four months.  ... View more

Hi, good luck all,  I am waiting to hear when my chemo will begin.  I thought I was going straight to radiotherapy but yesterday they advised 12 weeks of chemo first.  They said low doses once a week for 12 weeks.  Also every three weeks something injected in my leg.....I didn't have time to ask questions as they were running two hours late with appointments.  I am waiting for someone to call me with next appointment, so can clarify then  Has anyone had "low dose"?  do you know if you still get the hair loss thing?  I am guessing not. But want to get prepared.   ... View more

Shirleyemm, this is pretty much where I am too, and it has been a scary journey.  I have had a lumpectomy, then after the histology revealed there was grade three HER2, I had to go back for another to clear the margin and lymph node removal.  Now awaithing radioT.  The Worthing team are absolutely lovely one and all, but the fear is huge, the uncertainty is torture, and the emotions are wild!  I am trying to find a local group that meet for coffee and chats, I could really do with it!  I wish you all the best, I really do, you just have to ride the waves. . xx ... View more

Hello Mel, I am in a similar emotional state, I had an awful day yesterday but today not so bad.  It really is one of those times where no-one really understands until they have been faced with this scariest of monsters isn't it. After two surgeries over the last two months I was relieved to discover I didn't need a mastectomy, and now whilst I await a meeting to decide chemo vs. radio I feel my support group around me have almost disappeared, it's like they too are relieved and they are thinking "it's only three weeks of radio and it's all over; business as usual". But the emotions!  No-one gets the emotions!  the fear, the dread, the uncertainty for years ahead, the positive days and the negative days.  Thank goodness for forums, and we are all in it together, go with it Mel, tomorrow you may feel less battered.  Sending love. x   ... View more

Hi ladies, My first posr and I am sobbing as I write.  Just having a really bad day.  Diagnosed DCIS Jan this year, quick lumpectomy, but the histology was unexpected, HER2 invasive, aggressive something or other, second op removed more tissue and lymph nodes.  Second results more positive and now awaiting radiotherap.  Essentially this puts me in a positive place I know, but today I am having a meltdown and feel a little I don't know, like a fraud.  Everyone around me is so positive like I have just been to the dentist!  I have been petrified and terrified, and now it seems, "oh, that was a storm in a teacup", "you're OK",   "three weeks of radiotherapy and it's all over".  Am I acting like a spoilt child? You ladies will understand how traumatic this has been I can't just switch off my emotions and act like it is already ancient history.  Feeling so exhausted.  ... View more