Breast Cancer Now Forum

Hi CureDars Thanks for that link,  I will definately take a look. I did chat with my breast care nurse - she just told me to start doing the same exercises that I did after my op.   Louise ... View more

Thanks CureDars, mych appreciated. I have rung the onc unit at my hospital to ask if they had an onc physio.  I was told yes.  Yet I never knew - no-one has ever told me!  All this time (since mid Feb)  I could have had help from the specialist physio, but it was never offered. I have now rung him, but the phone is never answered snd no-one returns my calls.  I guess he is not working at the moment due to covid.  I am so upset that so much time has been wasted without me being given any help.  I have found out much more here on two replies to my post - than I have found out from my onc and radio units in 4 months. ... View more

Hi Jaybro Thank you so much for your very helpful info, much appreciated. Louise     ... View more

Hi Liz    I'm desperate to dye my grey hair - please could you let me know what brand you used, many thanks. Louise ... View more

Thanks Alvilajo, didnt realise there was a nurses section - I'll go and look for it Louise ... View more

Hi Alvilajo I had my last session 3 weeks ago. Thought I had got away with the toenail side effect.  They are so tender, am worried nails will fall off. Louise ... View more

Thanks Hodo ... View more

Hi My toenails have started to go black. They are very tender. I have read chemo causes this. Any suggestions please how to stop this. Many thanks Louise ... View more

Hi My toenails have started to go black. They are very tender. I have read chemo causes this. Any suggestions please how to stop this. Many thanks Louise ... View more

Hi Hi My toe nails have started to go black.  They are now very tender.  I have read that chemo causes this.  Any suggestions please as how to stop this getting worse.  Mant thanks   Louise   ... View more

Hi Mini Mad   Thanks for your reply.  I had Docetaxel and Charboplatin for my TN   Louise ... View more

Hi Bramley   Thanks for your reply.  I'm definitely going to follow this through with my onc.  I hope you have a great holiday,  sounds like you definitely deserve it.   Louise ... View more

Hi Susie B   I was interested to read your comments re zoledronic acid as this is something I am trying to find out about.   I'm 60 and post menapausal, have breast cancer for the 2nd time and it is TN.  Thetefore I thinl it would be beneficial to me.   However my onc has never offered it or even mentioned it.  I knew nothing about it until I saw a few posts on this site.     I am disheartened that the onc has never told me about it. If it wasnt for you lovely ladies I would be none the wiser.   It makes me wonder what else may be available that they havent mentioned to me.   My onc  also dismissed the idea of me having braca gene testing - despite my reoccurance of bc and my dad and cousin dying from cancer and my other cousin having battled cancer.  Fortunately my GP is hekping me try and get this testing.  If not I will have it done privately.   I have had a lumpectomy - it had spread to 6 out of the 9 lymph nodes they removed (just like last time).  I have just finished my 6th and last chemo session and now feel a bit lost.  I'm not sure if I will have radiotherapy or not.  Onc says not - as I had it last time, so I cant have it again.  Hiwever I have managed to persuade her to refer me to the radiotherapy consultant to see what he thinks.   Personally I want every possible treatment  so this wretched disease doesnt return again.   I have now contacted my onc about zoledronic acid - will have to wait and see what she says at my next appt (not for another 5 weeks). ... View more

Hi Minimad   So pleased to read you were clear from BRACA.  I have just had my last chemo -  I feel so ill this time.  I just want to feel normal again, hopefully it wont bectoo long before I do.   Louise ... View more

Hi Chicken Thanks for your advise - am definately going to push for this.  If not succesful I am going to have it done privately.  I have 2 daughters so I worry about them as well as myself.   Thanks Louise ... View more

Thanks Shi I have read about people having BRACA test done privately, so I will go down that route if necessary.  I got made redundant at xmas, so I can dip into that to pay for it.     I hadnt heard about the PALB2 test until now, will do a bit of google research on that and ask my onc.   Thanks Louise ... View more

Hi thanks for your reply. Cancer does run in the family.  My dad and my cousin (on dads side) both died young from cancer.  My cousin (sister of above cousin) fought cancer.  I've had it twice.  So I'm hoping to get referred.   Louise ... View more

Hi I'm Triple Negative, my second time of BC,  and am trying to get tested for the mutant gene.  My Onc wasnt very helpful.  Please can you let me know how you got tested.  So pleased for you that your results were negative.   Also what is Palb2 please?   Many thanks Louise ... View more

Thank you Shi Louise ... View more