Breast Cancer Care Forum

@WMJ wrote: Hi Rachel, I wish you all the best. I had a liver biopsy on Tuesday and was very apprehensive. They took 4 samples in all. I wasn’t given a sedative but plenty of anaesthetic. I had to have a top up of anaesthetic once they got near the liver,  as I could feel it but after that I didn’t feel a thing,  just heard the clicking as the sample was taken. The thought of it was worse than the actual procedure, which is often the case. What wasn’t great was having to lie down still for at least 2 hours and then another 3 hours ‘bed rest’. Worst of all I was dying for a wee and had to wait 2 hours to go as didn’t want to use the bed pan. ? I know it is not a lung biopsy but wanted to let you know how my procedure went and how nervous I was prior to it.  Take care Rachel and I hope you get a date soon and it all goes well. X Hi, Can someone tell me why a liver biopsy takes place.I have liver metastasis about eight,but no one has said anything about a biopsy. thank you ... View more

Hi, Can someone tell me why a liver biopsy takes place.I have liver metastasis about eight,but no one has said anything about a biopsy. thank you ... View more

Strange was thinking about her on Monday,but no not heard.xx ... View more

Sorry Rachel cannot give you advice,but thinking of you.xxx ... View more

Across so many issues we know people with secondary breast cancer feel forgotten and ignored, and that their experiences are not understood. This was from a paragraph written by hannah(Breast Care Now) Maybe this paragraph should have been read out aloud before you came up with THE UNSURVIVORS. ... View more

Good Morning   Breast Care Now and the concept of the Campaign isn’t an issue for me. It’s simply the name.    In my opinion, and many others i’m sure, 29 people (plus another small group) just doesn’t sound like a great volume of people to obtain feedback from before a decision was made on something that could upset so many people going through this. This forum alone would have generated a far higher interest and response - which i know would confirm the things being said throughout this thread.    Many of us try our best to flip the negatives of our diagnosis into something positive ie. we are living with cancer - not dying from it. The name ‘The Unsurvivors’ is therefore a name that we find upsetting and negative. We understand that in a campaign like this the name needs to show the hardest side of breast cancer, but we do feel very strongly that a less upsetting alternative could have been suggested/agreed.      ... View more

Hi, sorry just seen your post and realised nobody has answered. there is a meeting last Monday of every month at holiday inn queensferry Road,Edinburgh, lovely bunch of ladies. love xx I also diagnosed in April bone and liver mets.xx ... View more

,hi all  disappointment is an understatement,the team knew that these two threads where on going,THE UNSURVIVORS and IS IT JUST ME Breast Care Now just need to address  that disgusting,negative,no hope heading THE UNSURVIVORS, With All the responses that have been on the two threads maybe now they have realised what a huge mistake they have made,hence the reason they have not responded when they said they would,we can only hope. Sometimes in life you shrug your shoulders and say it does not matter,but I’m afraid for me not this time,I would like answers.How on earth does THE UNSURVIVORS describe those living with Metastatic Breast Cancer.Being strong throughout gruelling treatments,listening to Onocoligist with good news and bad,having to have scans to see what lies ahead for us,and everything else that we have to endure. So please have some respect BREAST CARE NOW we are SURVIVING,with the set of cards that we have been dealt with. Love to all xxxxx           ... View more

Hello eidlweiss,   Please,Just remember we are here for you.I know the shock is hard to bare at times. lots of hugs, thinking of you.xxx                 ... View more

What happened to your response,don’t say you will be posting a full response then don’t bother. We Secondary ladies and men await. ... View more

To acknowledge this would be the decent thing to do. But again thank you,for your help with links,I am not very good with the computers.I try not to let it get to me but must admit  the word is a terrible reminder. xxxx thank you much appreciated.xxx ... View more

Big thank you chick for doing this.At the moment to angry to even speak to anybody representing breast care now. They need to change that  Word,plenty of other words to choose from,that will get everybody talking about this awful disease,and making them aware of the impact that this disease brings.and everything that the campaign is trying to put over to the general public.I feel that now there is no hope,because of how  awful that word describes us. As hard as it is I felt I was doing okay,being as positive as I could be when I was diagnosed,but  now the people who are meant to be a shoulder to”lean on and understand us with secondary Breast Cancer could come up with such a word without a thought for those who are suffering everyday,with it Surely had they thought it over this word should never have been used. love and hugs to all  who are coping with this disease. xxx   ... View more

Well done what fantastic news always glad to hear that metastatic breast cancer is treatable for long periods of time.Could I please ask,but don’t mind if you don’t want to say,where are your mets.xxx just curious.xxxx ... View more

Hi there, just wanted to let you know there is anothe4 thread IS IT jUST ME.Same thoughts as yourself,I started the thread,as I was absolutely disgusting and still am at the insensitivity of the Breast Care Awarness  group how on earth did they not take into account of all of us who are suffering mentally and physically from this awful  disease but are doing there best to survive everyday.The word they have come up with I do not say.This word does not and will not apply to me EVER. Yes there is a response.But in the English Dictionary there are better words to discribe Us,this word they have come up with is not in the English Dictionary.Shame on Breast Care COMMITTEE. I WILL CONTINUE MY BEST EVERYDAY EVEN WHEN THINGS DONT GO THE WAY WE WANT IT,I KNOW I WILL NOT SURVIVE BUT I AM A SURVIVOR. We need to get rid of this horrible disgusting word that does not discribe us. take care all.xxxx                     ... View more

Ladies I have asked the question where is this campaign been highlighted,where can it be viewed.xc ... View more

Hi Yes you must see to these pains they are real.As I said in email my doctors ignored my pain,and so did the hospital it’s times like this  you become angry,because you think it’s just you being over anxious because you had primary breast cancer and they do make you feel as though you are a hypochondriac,I wish I had pushed and made a bigger nuisance of myself,a year ago when I started to have pain in my hips and back,and shooting pains down my leg. hugs to all.xxxx           ... View more