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Walsh
Member
since
22-04-2019
82
Posts
79
Hugs
3 weeks ago
2 Hugs
Hi ladies, Good news yesterday my treatment with capecitabine is working shrinkage to liver mets,Yipee.Was on pablociclib and Letrozole this stopped working after a year,thought to myself if the first line treatment does not work well how is second line treatment going to work,but there you go,how wrong I was,no side affect atall.So decided to go away to Hydro and spa hotel in Ayrshire.,with my husband. On a bit of a rant,but enjoying the start of my weekend away,I am in a hotel which is absolutely lovely they have a beautiful treatment room,which gives shoulder,neck and back massages,also facials and manicures.I had asked if I could possibly have a shoulder neck back massage but also informed them I have secondary breast cancer.I was told that they had No Onocoligy therapists.I left the treatment pretty peed off as I thought large hotels with call themselves hydro spas,would have someone trained,for this.I was thinking about the fact that they advertise spa weekends but obviously not for people suffering from cancer. Might go and suggest to manager about training a therapist to do onocology therepy. Rant over.
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23-08-2020
10:37
Hi puglia I was diagnosed in 2017,with breast cancer,lumpectomy,radiotherepy and tamoxifen.Then in 2019 secondary breast cancer to hips,pelvis,spine and mets in liver.Then in May this year was told suttle growth in two of liver mets,then started capecitabine.Just a little dryness in feet and a bit red but nothing to worry about I have hydromol ointment that helps if feet are to dry. Walsh.xxx
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22-08-2020
11:19
1 Hug
Hi puglia I have found capecitabine much better than Pablociclib and Letrozole.My white cells where always to low ended up on 75mg,always felt washed out.With capecitabine I have had absolutely no issues have been on my new treatment since May. Family have also commented on how much better I look,I have first scans on 27th August.Results on the 10th September.So quite anxious about this.Hope you find this treatment kind to you.Xx walsh
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26-07-2020
04:46
Thank. you.Started in June but not being scanned until end of August the wait is awful.like you I have liver mets which where growing,I do hope this gives better results always a worrying time but that’s the nature off this disease.
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26-07-2020
11:55
Hi wondering if someone can tell how long before scan to show if this treatment is working.Was. On pablociclib and Letrozole stopped working after a year,now on 2 week plus one week off cycle.Started new treatment in June. thank you
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30-05-2020
01:02
Hi,love mama, Thank you for this information.I am beginning to think I have a few treatments to go,when onocoligist told me that liver mets where growing I thought that was me done and Capecitabine was last resort,but the information that I have found on the forum is contrary to what I was thinking.So I would like to thank all for your kind words,and reasurrance. love to all.xx
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29-05-2020
09:16
1 Hug
Hi Nicky, Thank you for your post.Again reasurrance is what I need, I thought once the hormone therapy stops working it would be chemo from then on,so that’s good to know.Feeling a bit more positive this morning,after reading a few posts from other ladies.Back on the rollercoaster ride and see where this journey takes me.Thank you for your email.xx
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28-05-2020
11:12
1 Hug
Thank you gillyflower and Peggy. I will take on board what you have said,just need reasurrance on this new treatment.This is a journey nobody ever wants to be on.Xxx
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28-05-2020
11:03
1 Hug
Hi,bravescholar, So very strange but all my bloods have been good,and I have felt fine.Onocoligist has said my liver is healthy apart from the 4cancers being there.Hope you have the very best luck on this treatment.xx
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28-05-2020
10:47
Hi gillyflower and peggy20, Thank you for your kind words,and reasurrance.It is always helpful to get feedback and to realise that this journey Will not come to an end anytime soon.xxx
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28-05-2020
04:32
1 Hug
Hi, looking for some reasurrance.or advice.Had been on pablociclib and Letrozole for 1 year for mets to liver 4 mets,hips,spine and pelvis.was told today that two mets are showing that they are slightly getting bigger.Onocoligist has said next treatment is Capecitabine,I am gutted I only managed a year,on the pablociclib and Letrozole,which makes me think I will run out of options so quickly if I only managed a year on the newest drug .looking for ladies who can help Settle my brain as it is going haywire,xx
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20-03-2020
11:55
1 Hug
Hi 4748, the ringing in your ear must be awful.have you tried ear phones with a little music as this could distract you from the constant ringing.Sounds crazy but just a thought.Hope you feel better soon,you are probably washed out.you need to be king to yourself.xx
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20-03-2020
11:37
1 Hug
Hi, I was diagnosed in April last year,on pablociclib and Letrozole.Doing okay until I just broke down one day out of the blue,I cried anD cried I was getting ready to go to work this was in October,so it took up until then to realise it was all to much.Went to doctors anD she prescribed citalopram 20mg,it took a few weeks to kick in but I I am so glad that I visited the doctor.I can put think more clearly and things are not so dire. hope this helps.xxxx
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20-02-2020
02:41
Done tonight.
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01-02-2020
11:11
Hi, can anybody advise,my granddaughter goes to nursery,they have had an outbreak of chickenpox.She has had no sings yet,that was five days ago that nursery informed daughter. What is the procedure for myself.I am on Pablociclib,Letrozole.Just started my next cycle on Friday. thank you.
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31-12-2019
09:11
Hi Nicky, Could I ask have you many liver mets?just wondering as you state in your last correspondence that you had extensive liver op.Just grasping at straws here as I have 15mm plus tiny ones maybe six.I also have bone mets.would this operation be open to myself, xx
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28-11-2019
11:16
3 Hugs
Hi all I hope I am seeing things right but I am sure that the name The Unsurvivors has been dropped on the campaign petition. If this is the cause I thank Breast Care now for changing this awful Heading.it really hurt a lot of ladies on this forum. I hope I am right. Had good news today I have eight liver metastasis and the largest has shrunk again was 30mm is now 15mm the rest are also shrinking,pelvis,hips,and spine are stable.I am on 75mg Pablociclib and Letrozole three monthly Zometa.I started on 125mg Pablociclib in April but had to be reduced at different stages to 75mg pablo As white cells dropping to much.So I am a happy bunny today.xxxxx
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23-11-2019
12:18
@WMJ wrote: Hi Rachel, I wish you all the best. I had a liver biopsy on Tuesday and was very apprehensive. They took 4 samples in all. I wasn’t given a sedative but plenty of anaesthetic. I had to have a top up of anaesthetic once they got near the liver, as I could feel it but after that I didn’t feel a thing, just heard the clicking as the sample was taken. The thought of it was worse than the actual procedure, which is often the case. What wasn’t great was having to lie down still for at least 2 hours and then another 3 hours ‘bed rest’. Worst of all I was dying for a wee and had to wait 2 hours to go as didn’t want to use the bed pan. ? I know it is not a lung biopsy but wanted to let you know how my procedure went and how nervous I was prior to it. Take care Rachel and I hope you get a date soon and it all goes well. X Hi, Can someone tell me why a liver biopsy takes place.I have liver metastasis about eight,but no one has said anything about a biopsy. thank you
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23-11-2019
12:15
Hi, Can someone tell me why a liver biopsy takes place.I have liver metastasis about eight,but no one has said anything about a biopsy. thank you
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