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ND
Member
since
03-05-2019
15
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5
Hugs
11-05-2020
11:36
1 Hug
Hello, thank you for asking. First cycle was ok, few side effects during second week. second cycle was horrendous.. second week onwards I was constantly vomiting and had diarrhoea. Ended up at A&E to be hooked up to fluids. I have just about managed to stop the runs using codeine tablets. my consultant has delayed my next cycle for at least two weeks. He said I was suffering from chemo toxicity, so my body needs to clear it all out and will start next cycle at a reduced dose. I lost 6kg so old dose was too much for my body. in a way I’m glad this happened now during my shielding period, don’t know what I would do if I was at work in pharmacy!!😂 my hands are painful and very dry, can’t grip or open anything!! i hope you and your family are well and safe.😁
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07-04-2020
02:52
Hello, thank you for info. loving my ginger nut biscuits at the moment😁 Be Safe ND
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07-04-2020
02:50
Hello K, Yes, thank you, having the ginger tea. It helps. Ginger Nut biscuits too😋 be safe. ND
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07-04-2020
02:48
Hello Deb, Apologies for late response. I maybe at home, but no rest from work calls!!😂 I am having fresh tumeric in most of my meals, esp when cooking Indian. So chemo unit can prescribe DOMPERIDONE for the nausea feeling, but truly fed up of taking more tablets. If it gets worse I will, but manageable at the moment. Good luck with your treatment. Make sure you protect skin from the sun SPF 100. The tablets make skin more sensitive. take care ND
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04-04-2020
06:47
Hi Deb, no worries.😊 when I was on Pablocilib, oncologist did not allow any supplements except Vit D3, which I am still taking. With capceitabine, he said I could add Tumeric, but that’s it. I have constant feeling of nausea at the moment so trying to eat small amounts but often enough. i hope you are all well. thank you ND
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30-03-2020
10:56
Hello Deb, I have Estrogen positive cancer. started the tablets on Thursday evening... so far no major side effects except bloated tummy and very sore/ painful back... so not sure if the medication is working or the metas in spine at work, so to speak!!! I was given the option of chemo tablets or IV chemo at my last appointment and all I can say glad I picked tablets considering the current situation. I’m hoping these tablets work and last a lot longer than 6 months!! Do you take any other supplements? Hope all goes well for you, Deb🥰🤔
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24-03-2020
03:31
Hello All, So I was diagnosed last year with breast cancer which had spread to lymph node under armpit, three liver lesions and just visible lesion on the spine under a PET scan. I was started on Pablocilib..worked great for 7 months and last scan at the beginning of this month showed the liver lesions were back and so too the bone lesions. my Oncologist has changed to capceitabine. pretty bummed ☹️ that pablocilib didn’t work (was told average 2yrs). oncologist said this chemo tablets work for an average of six months!! i start my first cycle this Thursday and will be self isolating for the next three months because of COVID-19!!! 😖 Any advice would be great. or suggestions thank you ND
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08-05-2019
07:50
Hello Nicky, Thank you so much for the info. I have an appointment at Royal Marsden next Tuesday for a second opinion regarding the liver mets, so will take it from there. lots of hugs ND
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07-05-2019
05:03
Hello all, So I would like to know the options available for hiking and traveling, while on zoladex, letrozole and Palbociclib. I know I won’t be able to climb mountains now!!!☹️ Really annoyed about that!!! Any advise. thanks ND
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05-05-2019
02:07
Hello, Thank you for your reply🤗 So do you follow any special diets? I have always had green smoothies but now added wheatgrass powder and other green powders. I know to avoid soyabean products but finding it hard to locate a full list of foods high in Phytoestrogens!!🤪 Any advise please😁
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03-05-2019
05:11
3 Hugs
Hello everyone, So I have been diagnosed with stage 2 breast cancer ER 8/8, PR 4/8 Her-2 neg. MRI scan also showed three lesions in the liver. Initially I was told they were benign. My case was referred to Hammersmith MDT team, who now confirm that it is cancer. The appearances of these three lesions are unusual for necrotic metastasis. Initial diagnosis was 11/3/19. Confirmation of liver was 1/5/19. I was due to start IV chemo on the 2/5/19...8cycles in total. 4 cycles of EC and 4 cycles of Docetaxol. Instead I was given Zoladex 3.6mg on the 1/5/19, with letrozole starting on the 15/5/19 and Palbociclib on the 29/5/19. They are so confident it is secondary cancer so say no need for biopsy. My mother passed away from breast cancer 35years ago in March. i have requested a second opinion via my GP. Any suggestions, please. Thank you🤗
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