Breast Cancer Care Forum

Thanks for reply mini mad . I’ve only been offered IV Zolendronic acid, so perhaps that’s just as well with heartburn, as a poss side effect from tabs ! Will let you know how it goes ... SilverPixie x  ... View more

Hello all, Glad to hear that your op went well Louise and that you are recovering . Good to hear to Helly that the rads are flying in and are manageable ! Going for my radiotherapy plan and mark up tomorrow and then hopefully start mid December . I’m also getting an IV Zolendronic acid twice yearly for 3 years with the Herceptin next time . Anyone else having this ?  sorry to hear about your nails Kaytee .. mine are all marked as well and my toenails are discoloured  too. Taste buds coming back slowly and I’ve still no hair regrowth.. my OH and I joke about who has  got least hair .. at the mo I’m winning😂 best wishes to you all .. we’ve made it through the chemo... onwards and upwards!  SilverPixie xx ... View more

Hi LucyLump,  I’m only getting Herceptin as well,  as haven’t had Perjeta at all . But next Herceptin I’m having Zoledronic acid IV twice a year for 3 years to help prevent reoccurence  in bones .   Had my last Docetaxel yesterday with Herceptin so feeling a bit ropey today :-) still last one so another target reached .   Radiotherapy  starts in mid  Dec plus hormonal tabs for 5 years . I really feel they are covering all bases and have been well looked after . Speak to your team and see what advice they have . Mine have quite happily answered all my questions , however daft they might have seemed at the time 😊   hugs to all you ladies still on this rollercoaster but we are getting there one way or another 😊👍🏻👏👏👏 silverpixie  ... View more

LucyLump that is fantastic news ! So happy for you ! Onwards and upwards now ! Sending you a big hug x  ... View more

Hi Helly, thanks for thinking of me .... so glad you’ve finished and got to the end of chemo. I had round 5 today so only one to go ... get the side effects over with and I’m nearly through . It’s been hard , I’ve had reduced doses because of some severe side effects but I’m hopeful that it’s enough to have zapped any cancer cells lurking ! Like you I have a dedicated husband who has done all appts chemo and emergency drives to A&E at 2 in the morning !  Sending you a hug too x    silver Pixie    ... View more

Hi LucyLump, Yes, me too .. belching and feeling yuk . Haven’t got a solution though, sorry. The taste is awful isn’t it? I can’t summon up much appetite when my mouth feels dirty . I have been eating Randoms sours as they provide a brief respite and brushing teeth frequently. Are you on dose 4or 5 ? I’m on 4 and so want this to be done ...  doxcetal is a real trial .. I feel sorely tested !  Anyway , sending you a hug as I know we’re all doing our best to get through this xx ... View more

Morning Helly and all , I’m glad you’re feeling positive today after your drug changes for the next chemo. I had my 4th yesterday( doxcetral and Herceptin )   and like you am waiting for the side effects to kick as I feel sure they will !  Don’t the steroids leave you wired 😂I feel I could tackle all sorts but I think that’s not a good idea just yet !  Im on 80% dose because of my experience with excess vomiting on round 1 and they have decided to keep me at that level for now . As long as it works long term that’s fine with me .. like you its preventive as my cancer hadn’t spread although stage 3 .  Im just thankful to have got this far and have to say that regular input from you ladies has helped me along no end .. best wishes and hugs to all .. we ARE getting there ! xx   ... View more

Morning LucyLump , hope you’re feeling better now , and able enjoy the next chemo free days... that’s what I’m doing  this week . Taste is funny isn’t it? I can’t bear chocolate or tea and have developed a complete aversion to what I call manufactured sugar .. I’ve been eating hard pears and hard nectarines so they’re not fully ripe and sweet ! But my favourite is chicken gravy!!  We are getting through this and will get to the end somehow , giving each other strength and support along the way .  Best wishes to all xx ... View more

  Hi Crochet-Helly sorry to hear that Doxacetel is giving you such a rough ride.. hope you feel better today and the painkillers are helping to ease it .  That’s my next stop having just done FEC with mixed reactions . Can understand the tiredness .. it just zaps you doesnt it? We’ll get through this somehow ! 👍😊 x    ... View more

Hi SusieB and minimad  thank you both  for your helpful replies . Worth bearing in mind if it’s a problem getting a cannula in on Wed ... it may be the answer ! Hope your continuing treatment goes well too . Enjoying my last couple of ‘ normal ‘ days before Chemo World again 👍🏻😂 ... View more

Hi LucyLump,  I’m sorry to hear you had a reaction to the Perjeta but glad the nurses sorted it out quickly and effectively, ( though it must’ve been scary at the time 😳 ) and you are ok today.  I think I am one dose behind you, so when you say six weeks till your last one , it makes mine seem possible!   I’m halfway through on the next one Kaytee and like you,  have sore veins , in so don’t know how they’ll manage that . Does anyone have a PICC line and how does that impact on your week with reg checks and cleans?  I went to a post surgery exercise class yesterday ..20 ladies there ... and we had a good laugh trying to get balls up walls ! So nice to have support both here and in other groups .  Sending you all best wishes .. we can do this ! xxx ... View more

Hello Lucylump I’m sorry to hear that your result hasn’t been more definitive. Can understand your disappointment,  but  the next lot of treatment will do the job and zap it good and proper !  Sending you a hug ....  best wishes to all you July ladies ... keep on keeping on ! Xx ... View more

Hello LucyLump !  I just want to wish you good luck for your scan today .. I’ll be thinking of you and sending positive vibes 👍🏻😊 I agree about the blue badge spaces , I could have done with one the other day when calling into a store .. but somehow we muster up the energy from somewhere 🤔 Sending good wishes out to all you July ladies .. we’re  getting there xx ... View more

Hello all! well here I am Day 3 and no sickness ! Yay!! Had the emend tabs and so far it’s worked . Feel washed out but that’s to be expected ... hope I get the same for last FEC in Sept . Hope your all ok .. good luck for those with chemo this week .. how do you all remember the questions for oncologist? I get home and think l never said this or that ? Or can I blame chemo brain 🙄 anyway we’re all trying our best to get through and your support on here is so appreciated xx ... View more

Thanks for that reassurance Lucylump... I couldn’t see how I was going to get through another round with being sick all the time :-( I don’t feel quite so anxious now about Monday 🤞glad your getting through ok .. it’s not something we would  wish  on an enemy is it ☹️ Onwards ladies ! xx  ... View more

Hello all Hope everyone is ok ... I’m due my 2nd chemo on Monday as well  , Aww. Have been given Emend to take this time,  so hope it’s a smoother ride than last time . I’m going to try the frozen grapes .. anything for an easier life! x ... View more

Thanks for the reassurance Shi ... I do appreciate it . Yes am drinking plenty and temp fine at mo , feeling better this evening ... 🤞🏻 I’m over the worse this time !  Silverpixie xx ... View more

Evening ladies, thought I would just catch up here .Had my first chemo on Monday and boy my body does not like it !!  admitted to A&E at 2am tues morning and kept in all day while they treated sickness ++++ and dehydration .  Finally home late tues pm  with stronger anti sickness meds and have been  feeling better today, starting  to eat a bit and been walking in the garden ... this is not a walk in the park is it ?  Seeing oncologist on 14th so hope they step up and either reduce the dose or up the anti sickness  meds ... hope you ladies are all ok ... we’ve a hard row to hoe here but dare say we’ll get to the end somehow ! Hugs to all xx ... View more

Hi LucyLump I am so glad to hear that your 2nd round has been easier this time ... gives me hope that if it’s tricky 1st time I can have meds to improve it. Hope you feel stronger as days go on :-)  ... View more

Thanks LucyLump for replying .  Good to know how if might be and best good luck for your second lot on 25th ... will be thinking of you too x ... View more