Hi. I am 17 months on, started on Palbocyclib, Anastrazole and Denusomab. First 7 months I was really really well, then I has rashes that lasted 12 weeks - partly my fault for not contacting Macmillan and GP initially - and then a rash around the site of the 3rd denusomab injection. I am now on 3 monthly Zolendronic infusions - if you change to these follow all the advice about drinking loads of water and taking paracetamol the day before and note that mine are given on a chemo ward. The Palbocyclib dosage has been reduced this year as it made me feel very tired/exhausted but other than that and brain fog I am still keeping well. I can no longer sew for more than 20 minutes a day, or follow complicated texts/novels, etc., so I have had to come to terms with what I am now able to do but, you know, everything is still working, I can rest when I’m tired, and the medication has kept everything stable.
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Hello, i also have lung metastices. My breast cancer was not discovered until it had already spread to liver and lung. Unfortunately the primary does not show on any type of scan as it is hiding behind my nipple I only found it by accident and my first consultant never could feel it as normal breast palpating misses it. Fortunately the specialist nurse and surgeon found it so I was able to have a biopsy. MRI showed the spread and I was started on Anastrazole, when that stopped working I was put onto Tamoxifen which worked for a year only, then onto Exemestane. In April this year one of the lung squatters doubled in size so it was all change again. I am now on Fulvestrant injections in my buttocks and Abemaciclib targeted chemo pills. I am very lucky to be on the Abemaciclib because although it is available via the National Cancer Fund for some reason I don’t qualify but Nottingham still had it on extended access until two days after my visit. I have a two hour journey to Nottingham every month to have my see the consultant, jabs and collect my pills, I have blood tests at my GP and take the results with me. I go to Nottingham although I live north of Lincoln because I wanted to go to a centre of excellence, I would not be on my present treatment had I gone to Lincoln. They have given me 5 years for which I am grateful and hope to have a couple more. I thank God for the NHS and Eli Lily who provide the Abemaciclib foc as the treatment I am on at present costs thousands of pounds a month. I continue to be active, walking my dogs and playing with my ukulele band. The Abemaciclib does have some nasty gastro intestinal side effects but I am learning to control them. There is life after diagnoses, maybe not as long as without the squatters but I have no complaints.
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