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dorsetlass
Member
since
31-05-2019
14
Posts
8
Hugs
03-10-2019
11:46
Thank you for your response Nellie McNelly. I think that is what I'll do. I suppose it is because I have read that some people take it in the morning and then don't have disturbed sleep, but then probably suffer from nausea and other symptoms during the day? It's all a learning curve I suppose...I just struggle to function on little sleep.
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03-10-2019
10:41
Hi everyone, After having a mastectomy in July, I have recently started taking Tamoxifen. I wanted to delay taking it as I am still waiting for my wound to heal after it burst in early August. After several weeks of wearing a stoma bag to collect seroma fluid, I am now going to the nurse every other day to have the wound packed and dressed. My surgeon has been keen for me to start Tamoxifen, as this is the second time around with breast cancer for me ( first time around was 20 years ago and was not oestrogen receptive). So I started the tablets 2 weeks ago. I just wondered when other people took their tablet and whether it is better to take it in the morning or evening? The reason I ask is because my sleep is now all over the place and I feel pretty crappy today as I write this. I would really like to hear your thoughts on this. Thank you. Dorset Lass
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24-08-2019
01:29
Hi denzel, Thank you for your reply. I think somewhere along the way I've got my posts and replies crossed. I've just read your reply and realise what similar experiences we've had. I am also having the wound packed and dressed daily, as I have been told I have a 2cm sinus wound ( I'd never heard of a sinus wound!). My anger is due to the fact that if I had been given more after care from the day of the op, they would have seen the fluid was building up and would have drained it, instead of it being allowed to burst and cause an open wound. So my overall recovery is delayed. I agree with you, it is massively frustrating & depressing.We saw the surgeon yesterday and he thinks it will take a further 2 months to completely close 😞 Take care, dorsetlass.x
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24-08-2019
01:20
Hi Sunflower14, I hope you are feeling slightly better today? If you are worried at all, call your breast care nurses. I am now 4 and a half weeks post surgery and am still having the open wound packed and dressed on a daily basis. I've been told that I have a sinus wound and that it could take a further 2 months to completely heal and close. Of course this should never have happened and I put it down to having the mastectomy in 'day surgery' and the lack of after care. Take care of yourself, dorsetlass x
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23-08-2019
03:04
Thank you so much for replying to my message and for sharing your story. It really helps to hear that someone else has experienced this. Like you I have cried a lot over it and had begun to think it was only me. The booklet I was given only mentions seromas a bit, but doesn't go into any details. I left the hospital after surgery with no dressings and when I asked at a later date where I could get stoma bags I was told to buy them! It was only when I went to my own GP that the nurse gave me tons of dressings. She was horrified at what she saw and the lack of after care I had received. I also had antibiotics to clear up an infection. I've just seen the surgeon again and he has explained that I too have a sinus which will need to heal. He thinks it could take 2 or more months, and my surgery was 24th July. This is my second time around with breast cancer after 19 years. The first time I was in hospital with a drain for 10 days. dorsetlass x
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23-08-2019
09:49
2 Hugs
I first posted on here about three weeks ago following my mastectomy & sentinel lymph node biospy. I had the surgery done in day surgery and had a pretty rubbish recovery. I mentioned that I could feel a build up of fluid behind the wound. To cut a long story short the wound burst open 4 days later, flooding the bed with about a litre of seroma fluid. I phoned 111 and was told to go to A&E. They packed the wound and I then saw my surgeon the following day. He said the wound would be left 'open' so that it could heal from the inside up. The wound is 4cm long and 2cm wide ( the rest of my wound is sealed). I have to wear a stoma bag on my chest to collect the fluid and empty it several times a day. I am now visiting my doctor's surgery everyday to have the wound packed and for them to check for infection. As a result I am angry this happened, angry that a mastectomy can be done in day surgery & worried about getting an infection. I should have started Tamoxifen, but have put this off until I feel a bit better about the wound. I just wondered if anyone else had experienced this, as I haven't read about anyone else having a wound open ?
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22-08-2019
03:46
Hi Sunflower14, I know how you feel. I also had my surgery in a 'day surgery' slot in July 2019. I think it's ridiculous, I felt so unwell as I came round and throughout the day and had to be wheeled to the car in a wheelchair by my partner when I left the hospital. I had breast cancer 19 years ago and had a lumpectomy; I was in hospital for 10 days with a drain. My surgery this time was for a left mastectomy & sentinel lymph node biopsy. The surgeon told me the 3 nodes they had removed were the closest ones to the tumour and were checked to see if the cancer had spread. I have had complications since the surgery, partly due to it being done in 'day surgery' and also due to a lack of after care. I hope your recovery is going well and that you are receiving lots of support and care. Best wishes, dorsetlass
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29-07-2019
10:26
Hi Sandpiper, Thanks for your reply. I've just spoken to my breast care nurse and she said that it is probably seroma. I'm going to keep an eye on it and if it gets uncomfortable or I feel unwell I have to go back to the hospital. It's worrying when you hear the sound and if you start checking with 'Dr Google' you can get worried. All the best for your surgery. Best wishes, dorsetlass
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27-07-2019
03:44
Hi all, I had my mastectomy on Wednesday in day surgery. Since coming home I can hear a 'sloshing' liquid sound, like a hot water bottle in my left side ( where the breast was). Is this normal? It doesn't hurt, but sounds & feels odd. Thanks for any advice.
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05-06-2019
04:58
Hi Suzan, Thanks for your reply. I also had a lumpectomy and radiotherapy the first time around, so have been told I can't have radiotherapy again in the same breast. They think ( but are not sure) it's a new tumour and not the previous cancer come back? I think it must be a new one as this time it is ER +. I've been told that to have reconstructive surgery will be more complicated due to first cancer and that it may involve taking tissue from another part of the body. They have also mentioned Tamoxifen for 5 yrs, which I'm not looking forward to. I was due to see the breast surgeon last Friday, but it was cancelled and I'm seeing him this Friday, so hopefully will get a clearer picture of my plan/treatment etc. I hate the waiting! Are there a lot of us 'second timers' about? Is it common? Best wishes, dorsetlass.x
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02-06-2019
11:34
1 Hug
Hi all, I'm beginning to have a few questions, as things start to drop through the 'think tank'. How common/rare is it to get breast cancer again? And what are the chances of getting it in the same breast again , but a new tumour? My first diagnosis (2000) was oestrogen negative and this time ( May 2019) it is oestrogen positive. Cheers, dorsetlass.x
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02-06-2019
11:29
Hi dellywelly, Thanks for your reply. Yeah, first time around I found the lump and they advised lumpectomy & radiotherapy. I then thought everything was fine for years! So getting this result was a real shock. I had just been for a routine mammogram and got a recall letter. I was due to see the surgeon on Friday, to get my CT scan results and hopefully a date, but that was cancelled and re set for this Friday. The waiting is horrible to say the least. I've been told that re constructive surgery could be more complicated, because it is in the same breast. But I'll have to wait until I get my breast care plan. I don't fancy Tamoxifen for 5 yrs either, not having read up about side effects. dorsetlass x
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02-06-2019
11:22
Thanks for your message Paulus, it's really good to know I have somewhere to ask questions and have a rant at times.x
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31-05-2019
07:17
5 Hugs
Hi everyone, I'm new to the forum,but not new to breast cancer. I have just been diagnosed with a new tumour in my left breast, the same side as my previous cancer 19 years ago, when I was 39. The first time I had a lumpectomy and radiotherapy. This time the surgeon has said I will have to have a mastectomy and Tamoxifen for 5 yrs. This tumour is oestrogen positive, the first one wasn't. I'm all over the shop at the moment, as this was a complete shock after being clear for 19 yrs. I'm just saying hello really until I can get my head around things and ask questions.
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