Breast Cancer Now Forum

I got a labradoodle almost 2 weeks ago.  She's fairly catching on to toilet training.  She'll do anything for a treat!  First dog as well. ... View more

before I had liver operation I was advised the treatment was working and my cancer had shrunk from 5cm to 3.1cm the surgeon advised that he has known people to still be here 10 years later without cancer coming back but said he is not god and could not say how long I would have to live but this operation would give me the best chance. I was then taken into another room where I had to sign for cancer research to take my cancer after the operation  and the cancer research lady said the operation I was about to have is a virtual cure. I was shocked with what she had said as I was advised by my oncologist that I had probably 2 years to live and the longest they have known anyone to live with my type of cancer was 4 years and now I was being told that this is a cure.  I asked was she sure and was told that it is not documented and I would not find it in any journals but it is a virtual cure not for everyone but this is the best thing out there for a cure  and said again this is a cure.   I could not believe what I was hearing. I had the operation on 15th Sep 2020 and still recovering and in a bad way in a lot of pain and discomfort and coldness throughout my body and my fingertips are ice cold    after the operation whilst I was still in hospital the surgeon come to see me as I was in a bad way after the operation and said he was very pleased with the way the operation went and he said statically I would have a better chance now and statically 5 years now to live. I was left confused with this as was advised that the operation would be a cure and now being told that I may have a bit longer to live and may live 5 years instead of two years but what happened to the cure I was told. when I got released from hospital a week later I spoke to my oncologist who was shocked to learn that the hospital stopped all my treatment 3 weeks prior to operation and when I told her what cancer researched said about the operation being a cure. I could tell by the way she acted and sounded that this was not the case. the oncologist said she has been chasing the hospital each day to get the staging of the cancer that was removed.  this confused me even more as knew I had stage 4 cancer that had been removed and now I am told they need to find the staging of the cancer itself and then they would contact me regarding this and now I have received a letter advising that the oncologist want to see me in the hospital next week to talk to me to discuss. I am left again shaken and scared and very confused with it all. has anyone else had a liver resection ? any advise would be very much appreciated as i am very confused and scared. ... View more

I am so sorry to read this and it sounds like you’ve had such a shock. I was diagnosed originally in July 2013 and with my secondary January 2017 of which it also has spread to my liver. I was put on an oral chemo Capecitabine of which I think is a much more doable chemo from the intravenous ones.  I’ve had some side effects  but not horrendous, my hair thinned a lot but it hasn’t gone completely this time. I’m am lucky to be still on my first line of treatment after 3 years and at first my lesion reduced in size considerably but I thhink I’ve been stable now for nearly 2 years. I hope this reassures you a little and once you’ve got your head around things you will learn to live with this as your new normal. If you have any other questions don’t hesitate to ask or private message me, sending lots of love.   Lisa aka asilmcs Xx ... View more

Hi  interested in post- third week in hospital following a large Pulmonary Embolism and Pneumonia, also have Lung mets  still get very breathless on exertion and my 02 levels are up and down  how long did it take you all to recover?  On Ibrance and Letrazole xx ... View more

God bless you for being so positive, keep it up, you never know what the boffins May have in preparation. ... View more

Stay strong and positive it has the best impact on our mental state xxx ... View more