Breast Cancer Now Forum

Hi, theres a video link further down on this feed which i think is via the LSN ( https://www.lymphoedema.org/) plus the info on this BC Now website .  Also there are some youtube videos on Breast Cancer Haven and on My simple steps which Ive found useful.  Hope that helps and wish you well ... View more

Hi Bookish Thank you for that, its really helpful to know that and how it helps you.  I will definately take what you say on board and will monitor for next time I speak with my breast care nurse.  She wants me to keep in touch with her about it - Im glad she said that to me because sometimes the reactions from specialists make me feel like Im making a fuss which can be frustrating and then Im nervous about calling them up.     Thank you for replying, its so useful to know that about how the sleeve helps you, its all about helping ourselves manage isnt it?  Sometimes because there is no major swelling I just dismiss it but it feels like it doesnt want to bend and I have to rest it which is not always practical.  I'll jot everything down! ... View more

Hi Maxy Thank you, yes it is difficult at the moment and with telephone consults being used more often and trying to explain it over the phone etc!  Having said that I'd rather not go to the hospital for this at the moment anyway!  Im being sent some info on lymphoedema and self management (bit like yourself probably) to do some exercises etc as from what I understand a sleeve is only helpful with a lot of swelling?  The pain is worse some days than others isnt it.  Thank you for sharing, thats very kind. ... View more

Thank you, thats very kind. ... View more

Thank you, that's really good to know and interesting you have similar. I've noticed it flares when I try to do exercises too. Sometimes you think you should just get on with it and it's side effects etc but that sounds hopeful so I will ask.  Thank you, I appreciate you taking time to reply for me and glad you have yours under control. ... View more

Hi old spice  I get the spots all over my legs too, so conscious of them and they stand out like crazy and sometimes go scabby.  So I understand.  I'm told they'dh go when stop tamoxifen but they're here for a flippin long time yet! ... View more

Thank you Louise and to yountio.  It sounds different to what you're experiencing but I wish you well too and hope yours resolves soon  ... View more

Hi there I've had bad problems with my opposite shoulder since radiotherapy and now waiting for an orthopaedic appointment. I can hardly use that arm despite doing exercises at the time to avoid problems!!   The position you have to lye in during treatment may affect it too? Wishing you well     ... View more